NeuroJewology: A Tale of Multiple Sclerosis, Parkinson's & Muscular Dystrophy in South Florida

Glass Half Full with Leslie Krongold, Ed.D.

#Disability #Fitness #Leslie Krongold, Ed.D #Leslie@GlassHalfFull.online (Leslie Krongold #Alternative Health #Chronichealthcondition #Nutrition #Selfcare #Wellness #Yoga #Health and Well-Being

46:55

The War and Treaty’s Michael and Tanya Trotter grew up in Cleveland, Ohio, and Washington, DC, respectively, but both have family roots in the South. They also grew up in the musical traditions of their churches – Tanya in the Black Baptist Church and Michael in the Seventh Day Adventist Church – where they learned the power of song to move people. After becoming a father at a very young age, Michael eventually joined the armed forces and served in Iraq and Germany, where he took up songwriting as a way of dealing with his experiences there. Meanwhile Tanya embarked on a singing and acting career after a breakthrough appearance in Sister Act 2 alongside Whoopi Goldberg and Lauryn Hill. Now, after a long and sometimes traumatic journey, Michael and Tanya are married, touring, winning all sorts of awards, and set to release their fifth album together, and their fourth as The War and Treaty. Sid talks to Michael and Tanya about the new record, Plus One , as well as their collaboration with Miranda Lambert, what it was like to record at FAME studios in Muscle Shoals, and how they’re blending country, soul, gospel, and R&B. Learn more about your ad choices. Visit podcastchoices.com/adchoices…

5 років тому 31:02

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Two friends from grade school share their stories of a diagnosis of a neurological condition. Marc has Multiple Sclerosis and Steve has Parkinson's disease. I have a form of muscular dystrophy called myotonic dystrophy. It's purely coincidental we all went to the same synagogue; there is no correlation between being Jewish and having a neurological condition.

Both Marc and Steve maintain positive attitudes. Marc has educated himself thoroughly about MS. Steve has tried different exercise programs customized for people with Parkinson's and now facilitates a support group.

107 епізодів

Glass Half Full with Leslie Krongold, Ed.D.

NeuroJewology: A Tale of Multiple Sclerosis, Parkinson's & Muscular Dystrophy in South Florida

Glass Half Full with Leslie Krongold, Ed.D.

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published 5 років тому

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MP3•Головна епізоду

107 епізодів

#Disability #Fitness #Leslie Krongold, Ed.D #Leslie@GlassHalfFull.online (Leslie Krongold #Alternative Health #Chronichealthcondition #Nutrition #Selfcare #Wellness #Yoga #Health and Well-Being

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Glass Half Full with Leslie Krongold, Ed.D.

1
Wuzzup: Growing older with a progressive health condition 22:47

1 year тому22:47

22:47

An episode to catch everyone up on what’s been going on in the life of someone in their early 60s with a progressive health condition. Waning energy prohibits many of us for reaching all of the goals we’d like to achieve. It takes time to acclimate to a new normal and reassess which goals are most important and how best to achieve them dealing with new limitations. Foremost for someone with myotonic dystrophy, like myself, is getting enough sleep so I have energy to maintain a regular movement practice even with shifting mobility. The annual May Movement Challenge I’ve produced for the last three years will change. To stay current, join the Movement Challenge Facebook group. If you live near the north coast of California, or plan to visit, check out a new local program – Leslie’s Accessible Walks .…

Glass Half Full with Leslie Krongold, Ed.D.

1
What is AAC (Augmentative and Alternative Communication)? 25:29

2 years тому25:29

25:29

My guest for this Glass Half Full podcast episode is Patrick Regan. Patrick is a young man living in Alaska with SMA (spinal muscle atrophy) who uses AAC to communicate. We've gotten to know each other through online BORP classes -- Tai Chi and Pilates . Our communication previous to our Zoom podcast recording was through Zoom’s chat. Patrick is not able to speak and uses technology to communicate via text or assisted speech. Our podcast recording was the first time I actually saw him live since he usually has a photo of himself in the Zoom window. And he varies the photos so I’ve seen him dressed up for different themes especially in the Rumba with Tina dance class. Anyhow, Patrick has proven himself to be quite tech savvy and I wanted to learn more about the AAC (Augmentative and Alternative Communication) he uses.…

Glass Half Full with Leslie Krongold, Ed.D.

1
Why is Movement my Medicine? 42:06

2 years тому42:06

42:06

I don’t know who coined the term movement is medicine, but it resonates for me. My early experiences with exercise were not joyful; grade school physical education was bad medicine. But once I started dancing with friends in high school – before carding and ID checks were mandatory – I experienced movement in a positive way. Shortly after college I started a yoga practice which was medicine for my body and mind. In this podcast episode I tell my story of what led up to the 2021 launch of the May Movement Challenge -- a month of free online movement classes that are meant to be accessible and adaptive for anyone and everyone. You’ll also hear from Natalie Graniela – one of the several movement instructors participating in the annual May Movement Challenge . Natalie talks about her gyrokinesis movement practice and working with senior adults as well as people with different bodies and abilities. For more information visit the website: https://maymovementchallenge.com , register for this year’s month of free online movement classes: https://us02web.zoom.us/meeting/register/tZMvd-yhrDsrGNB8RbtdI8mhTYG-_BUJ90mB , and join the Facebook group: https://www.facebook.com/groups/166227591989420…

Glass Half Full with Leslie Krongold, Ed.D.

1
We need innovative solutions when it comes to the rare (disease) community 30:50

2 years тому30:50

30:50

February 28th is Rare Disease Day. Twenty-five to 30 million Americans live with a rare disease. For more facts and figures related to rare diseases, check the NORD website . This podcast episode catches up with Aditi Kantipuly, a physician and advocate, immersed in the rare disease community. As a young girl Aditi learned about a child born with osteogenesis imperfecta – a rare bone condition – and has been captivated ever since. Her journey includes a masters program in public health, a Fulbright scholarship to small villages throughout India, and medical school. Currently she’s exploring the roles of health equity and social immunity. For earlier podcast episodes related to rare disease, It’s not that easy being rare , Rare disease and the need for research , and Rare and invisible disability + spoon theory . Check this webpage for a list of other podcast programs related to rare disease.…

Glass Half Full with Leslie Krongold, Ed.D.

1
Coping with the Holidays 54:07

2 years тому54:07

54:07

The holidays can be difficult for most anyone but if you live with a chronic health condition and/or physical disability, the barriers to joy and festivity may increase. Four women engage in conversation about coping with the holidays -- Leslie Krongold with myotonic muscular dystrophy, Andrea Klein with collagen 6 congenital muscular dystrophy, Janice Laurence with Charcot Marie Tooth neuromuscular disease, and Roma Leffmann who advocates for people with acquired disabilities as a stroke survivor. Together they discuss issues related to #dysphagia #celiacdisease #incontinence #osteoporosis #singlelife #disability #myotonic #musculardystrophy #respiratoryproblems #stroke #adaptivefitness #dance #glutenfree #ableism #gifting #mobility and, of course, #coping…

Glass Half Full with Leslie Krongold, Ed.D.

1
Driving Less Dazy: Responsible vs. Independent? 17:42

2 years тому17:42

17:42

When to stop driving a moving vehicle? That is the question to ponder; is it a toss up between being a responsible adult or maintaining a sense of independence? For many people, this is a difficult choice. If you live in an urban or suburban location you may have many options available if you give up driving. For others, a car may be a necessity -- one needed to get to gainful employment, purchase groceries, or use to transport family members more disabled than yourself. In this academic paper , physicians discuss health conditions that predispose patients for difficulties with tasks required for driving a car safely. People with Alzheimer dementia, epilepsy, visual impairments, sleep apnea syndrome, cardiac dysrhythmias, substance dependency, and neurological disorders with a cognitive component are at risk. In this MDA Engage recorded webinar , the presenter shares this factoid -- For every mile driven there are 20 decisions that need to be made and less than ½ second to react This podcast episode explores the decision-making process for podcast host, Leslie Krongold, as well as for guest, Keisha Greaves . Both chose to give up driving before a doctor told them to. If you, or a loved one, are concerned about your current driving skills, take this online assessment to gauge whether or not you should explore driving options. Each U.S. state has unique laws regarding senior and/or drivers with specific disabilities; check what your state has on the books. If you're a caregiver in search of advice for your loved one, check out this U.S. Dept of Transportation website .…

Glass Half Full with Leslie Krongold, Ed.D.

1
International Myotonic Dystrophy Awareness Day 17:21

2 years тому17:21

17:21

September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation . The purpose of this Awareness Day is t o garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease. To learn about the different types of myotonic dystrophy, visit this NORD webpage . In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family: Food = Medicine Passion and Motivation to Move through the Hard Stuff Working with Wounded Warriors Music Gives Me a Peace Bubble Salute to Caregivers Stories of Healing with Essential Oils…

Glass Half Full with Leslie Krongold, Ed.D.

1
Don't Laugh At Me - I know how it feels 47:39

3 years тому47:39

47:39

The lyrics to Don't Laugh at Me speak to anyone who has felt like an outsider. Whether or not you were bullied as a child, this song will likely resonate with you. Steve Seskin, the singer-songwriter, and his co-writer were first inspired by a young girl's experience of teasing in grade school. But, the song encompasses inequities experienced by those living with physical and developmental disabilities as well as people experiencing hard times. A few months ago I [Leslie] first heard the song in the online dance class, Rumba with Tina . Many of the other virtual dancers were familiar with it and sang along. I just cried. After the class I googled the song title and discovered I knew the songwriter. Steve's wife, Ellen, has been a participant in the Northern California Myotonic Dystrophy Support Group I facilitated. What a small world! Steve's songs have been recorded by recording artists such as Garth Brooks, Reba McEntire, Waylon Jennings, Tim McGraw, Colin Raye, and Mark Wills. Visit Steve's website to learn more about his music and check out the organization Steve is involved with: Operation Respect .…

Glass Half Full with Leslie Krongold, Ed.D.

1
Uncover the stronger part of yourself... 34:05

3 years тому34:05

34:05

Liz Ann Kurdrna, Pilates instructor, feels like her emotional recovery from a rock climbing injury is ongoing yet "knowing that I have to show up for someone else…by teaching…it helps. It helps you uncover the stronger part of yourself." In this podcast episode, Liz Ann talks about her lifelong love of rock climbing as well as her participation in other outdoor activities such as swimming, snow skiing, and cycling. In Montana, where she's lived for the past 20+ years, she teaches online and in-person Pilates. Liz Ann has competed in local Triathlon events with the Challenged Athletes Foundation . In this video, Liz Ann demonstrates a few Pilates Breathwork exercises. To learn more about Liz Ann's online classes, check her website . You can register for her Seated Pilates class sponsored by BORP.…

Glass Half Full with Leslie Krongold, Ed.D.

1
Neuropathy: Patient Turned Patient Advocate 47:40

3 years тому47:40

47:40

Glenn Ribotsky, a Board member with the Western Neuropathy Association, shares his dramatic initiation as a patient into the world of peripheral neuropathy. Now, 18 years later he advocates and offers support to others experiencing the often, invisible pain of a neuropathy.

Glass Half Full with Leslie Krongold, Ed.D.

1
Physician with Muscular Dystrophy Champions Genetic Testing 28:28

3 years тому28:28

28:28

Dr. William Lowery, a practicing pulmonologist at Alameda Hospital in Northern California, was diagnosed with Limb-Girdle muscular dystrophy some 20 years ago. He's now founded a non-profit organization to help others shorten their diagnostic odyssey with free genetic testing and his expert guidance.…

Glass Half Full with Leslie Krongold, Ed.D.

1
“Don’t worry, be happy! It could be worse. It is what it is” by Toxic Positivity. 12:37

3 years тому12:37

12:37

What is Toxic Positivity? How to avoid it and what to do when confronted with it. One definition in the context of overstressed teachers during the pandemic includes "toxic positivity as focusing on the positive and ignoring the negative. This mindset has caused a lot of teachers to feel guilty, stressed, and overwhelmed." One mental health website's definition, " Some signs of toxic positivity statements may be dismissing emotions, minimizing someone’s experience, giving one’s perspective instead of validating someone’s emotions, shaming someone for expressing frustration, and brushing things off."…

Glass Half Full with Leslie Krongold, Ed.D.

1
The size of a grapefruit in your head; I’m grateful that I’m still here 22:31

3 years тому22:31

22:31

When you're told you have a tumor the size of a grapefruit growing in your brain, and you have it removed, and you live to tell the story about it without experiencing profound disability, then you have a lot to be grateful for. That's what happened to Amy. Learn more about Amy's health story in this podcast episode. She had no idea about a brain tumor until family members made an intervention and tests revealed the source of her various symptoms which taken individually caused no alarm for Amy. 'Tis the season to be grateful. And Amy is grateful for much. What are you grateful for? In the latest AARP magazine Michael J. Fox talks about how gratitude is a source for his continued optimism in spite of having to give up acting because of unreliable speech. The UC-Berkeley Center for the Greater Good explores the concept of gratitude with evidence-based research. Check out articles and video clips here . An earlier podcast episode, Gratitude & Thinking Small , includes an interview with noted author and Buddhist practitioner, Toni Bernhard.…

Glass Half Full with Leslie Krongold, Ed.D.

1
Rare and Invisible Disability + Spoon Theory 17:17

3 years тому17:17

17:17

Traditionally the month of October is the time to become aware of people with disabilities -- either a visible or invisible disability -- but here we're drawing attention to all those who face physical and mental health challenges. With 1 in 10 Americans diagnosed with a rare disorder (whether it's a visible or invisible disability) and all of the others making up ~ 25% of Americans with chronic health conditions, let's practice an awareness on a daily basis. Sunny Ammerman, NORD Ambassador for Indiana, talks about spoon theory, her role as a Patient Advocate for NORD and the Pituitary Network Association, and her blog, Insomnia Doodles . Earlier podcast episodes have explored Disability Awareness -- The D Word and The Pirate as a Disability Action Figure. To learn more about Rare Disease, listen to this podcast episode, It's Not That Easy Being Rare . Sunny is an avid gamer and Virtual Reality enthusiast; stay tuned for a future episode where she shares her love of VR.…

Glass Half Full with Leslie Krongold, Ed.D.

1
Skin Cancer or Adult Acne? 10:51

3 years тому10:51