Exploring New Paths to Healing

My Spoonie Sisters

*Trigger Warning*
What if your lifelong pain was dismissed as mere imagination? Join us as we explore Riane's powerful narrative of self-advocacy and perseverance in the face of medical doubt. As a Hawaii native, Riane offers an intimate look into her life with juvenile rheumatoid arthritis and chronic migraines, shedding light on how these experiences, along with her grandmother's wisdom, have shaped her path in health and advocacy. Her story is a testament to the resilience needed to overcome the emotional and physical hurdles of chronic illness, emphasizing the importance of community support in this journey.
Riane’s candid recount of navigating the healthcare system during the tumultuous times of the COVID-19 pandemic offers a poignant perspective on the challenges of securing an accurate diagnosis. The episode uncovers the often-dismissive nature of medical professionals towards those with rare conditions, and Riane’s persistence in finding a compassionate healthcare team, leading to the discovery of an uncommon autoimmune disease, Ankaculitis. Her journey underscores the critical role of self-advocacy and the collaborative effort required between patient and practitioner to achieve effective care.
We then shift focus to Riane's experiences with medication management and alternative treatments, highlighting the nuanced use of cannabis microdosing and Eastern medicine. Discussions range from the drawbacks of traditional pain management methods to the promising benefits of acupuncture and cupping, offering listeners a broadened perspective on personalizing treatment options. As Riane passionately shares her journey, we explore her literary venture, "Blurred Vision," a poetry book inspired by her experiences with trauma, offering a dual narrative of healing from both survivor and perpetrator perspectives. This episode is a heartfelt call to explore and embrace diverse healing paths on one’s journey to wellness.
https://www.instagram.com/rianescorner?igsh=MW9rdDBwM3NsZ3JseA==

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Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.

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Розділи

1. Chronic Illness Warrior Shares Journey (00:00:00)

2. Navigating Autoimmune Diagnosis and Treatment (00:11:19)

3. Navigating Medication and Insurance Battles (00:19:27)

4. Exploring Cannabis Microdosing and Medication Management (00:34:35)

5. Healing Journey and Eastern Medicine Insights (00:44:30)