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Вміст надано LupusLA. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією LupusLA або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
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When a young Eva Kollisch arrives as a refugee in New York in 1940, she finds a community among socialists who share her values and idealism. She soon discovers ‘the cause’ isn’t as idyllic as it seems. Little does she know this is the beginning of a lifelong commitment to activism and her determination to create radical change in ways that include belonging, love and one's full self. In addition to Eva Kollisch’s memoirs Girl in Movement (2000) and The Ground Under My Feet (2014), LBI’s collections include an oral history interview with Eva conducted in 2014 and the papers of Eva’s mother, poet Margarete Kolllisch, which document Eva’s childhood experience on the Kindertransport. Learn more at www.lbi.org/kollisch . Exile is a production of the Leo Baeck Institute , New York | Berlin and Antica Productions . It’s narrated by Mandy Patinkin. Executive Producers include Katrina Onstad, Stuart Coxe, and Bernie Blum. Senior Producer is Debbie Pacheco. Associate Producers are Hailey Choi and Emily Morantz. Research and translation by Isabella Kempf. Sound design and audio mix by Philip Wilson, with help from Cameron McIver. Theme music by Oliver Wickham. Voice acting by Natalia Bushnik. Special thanks to the Kollisch family for the use of Eva’s two memoirs, “Girl in Movement” and “The Ground Under My Feet”, the Sophia Smith Collection at Smith College and their “Voices of Feminism Oral History Project”, and Soundtrack New York.…
Episode #14 with Liz Morasso
Manage episode 359738908 series 3463598
Вміст надано LupusLA. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією LupusLA або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Liz Morasso, a lupus patient and clinical social worker.
79 епізодів
Manage episode 359738908 series 3463598
Вміст надано LupusLA. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією LupusLA або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Liz Morasso, a lupus patient and clinical social worker.
79 епізодів
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1 Season 4 | Episode #11 with OBGYN, Fertility Specialist and Lupus Patient, Dr. Katherine VanHise 28:00
Season FOUR Episode ELEVEN of the Your Story Our Fight® podcast welcomes Dr. Katherine VanHise. Katherine is an OBGYN and fertility specialist based in Beverly Hills, California. Immediately following her graduation from OBGYN residency she developed her first symptoms of lupus. Her diagnosis of SLE came 15 months later after consulting with over 20 physicians across different specialties and institutions. Her journey navigating the health care system and a lupus diagnosis significantly transformed her personal and professional life. She aspires to empower her patients and those around her to maintain hope in times of uncertainty and continually advocate for themselves.…

1 Season 4 | Episode #10 with Author, Business Coach, National Trainer and Lupus Patient, Connie Sparks 29:17
Season FOUR Episode TEN of the Your Story Our Fight® podcast welcomes Connie Sparks. Connie Sparks is the Founder of Wadeco Business Center, LLC a MWBE, DBE, WOSB, and SB-designated entity. Connie’s consulting and financing career spans over 24 years and is widely recognized as an award-winning leading expert on business development, strategic planning, and supplier contracting. She has worked with business owners at all levels, on building their businesses, tapping into new markets, and more importantly, changing their mindsets to forward-thinking CEOs. Connie has been honored by the San Fernando Valley Business Journal Women's Council- Business Owner of the Year Award (2018), U.S. Small Business Administration-Business Champion Award (2009), Toastmasters International-President’s Distinguished Award 2004, National Association of Female Executives (NAFE)-Business Woman of the Year (2006), and nominated by the Los Angeles Business Journal-Women Who Make A Difference (2007-2009).…
Season FOUR Episode NINE of the Your Story Our Fight® podcast welcomes Alicia Evans. Alicia lives with lupus and several other autoimmune and connective tissue diseases, which has made her passionate about raising awareness of chronic illness. As a parent of twins with autism, Alicia has gained unique insights into caregiving and advocacy. She enjoy decorating with and selling vintage items, as well as creating succulent, seashell décor & jewelry.…
Season FOUR Episode EIGHT of the Your Story Our Fight® podcast welcomes Regan Birr. Regan is the owner of Regan MOVES, a wellness and fitness company for people with chronic challenges. Regan has lupus and arthritis. She spent many years in severe pain, until she started exercising in a special way: she holds a bachelor’s degree in mechanical engineering from the University of Saskatchewan and used her background to design a low-torque, easy-on-the-joints exercise program. She earned her personal and group training certification, and teaches Regan MOVES 3 days a week, online. Regan believes that even though it can be extremely challenging, we CAN move past our limitations - and empower ourselves for health and happiness. She gives talks to businesses and health organizations around the U.S. including Medical University of South Carolina, Duke University, and Health Partners. Regan is also the founder and executive director of the Lupus Research Foundation in Minnesota.…

1 Season 4 | Episode #7 with Dental Hygienist, Current Dental Student and Lupus Patient, Risa Regalado, RDH 37:12
Season FOUR Episode SEVEN of the Your Story Our Fight® podcast welcomes Risa A. Regalado, RDH. Risa A. Regalado, RDH is the youngest of 3 siblings (2 older brothers) and grew up in Laguna Niguel, Ca. Risa attended undergrad at UCSB, then dental hygiene at USC. She practiced hygiene for a decade in Santa Monica and Beverly Hills before moving to Arizona for dental school. Risa is currently a third year dental student at Midwestern University.…

1 Season 4 | Episode #6 with Master Certified Grief and Transformation Coach and Lupus Patient, Olivia Abousaid 28:13
Season FOUR Episode SIX of the Your Story Our Fight® podcast welcomes Olivia Abousaid. Master Certified Grief and Transformation Coach, Olivia Abousaid understands the profound significance of resilience through her own journey. She was diagnosed with discoid lupus and SLE in July of 2021. Olivia has cultivated a deep appreciation for personal growth and transformation while navigating the limitations of chronic illness. Based in Los Angeles, she harnesses her life experiences and coaching expertise to empower individuals to transform grief into action and empowerment. Olivia's coaching transcends one-size-fits-all solutions. She creates a safe, supportive space for clients to explore their unique goals, navigate grief, overcome challenges, and embrace their authentic selves.…

1 Season 4 | Episode #5 with Computer Scientist, Certified Yoga Instructor, Lupus Advocate and Lupus Patient, Sheba Family Zaman 36:44
Season FOUR Episode FIVE of the Your Story Our Fight® podcast welcomes Sheba Family Zaman. As a computer scientist, Sheba has spent the last 20 years working in a technical software role with the quality department of pharmaceutical and life science companies. Her role spans from pre-sales technical information to professional services post-sale with the goal of digitizing critical data that can affect patient safety. She speaks regularly at industry conferences on data integrity and contamination control strategies for aseptic drug manufacturers. She was recently President of non-profit organization – the Parenteral Drug Association, SouthernCalifornia Chapter – for an elected term of 2 years. It is an educational organization dedicated to the connection of science, people, and regulation in a non-bias platform. In June of 2006, Dr. Dan Wallace diagnosed Sheba with Systemic Lupus Erythematosus and Nephritis following struggles with frequent fevers, joint/muscle pain, debilitating fatigue, visibly swollen lymph nodes, and hair loss. Born and raised in Montréal, she soon moved to Southern California to be closer to her family and support system. After grappling with the side effects of strong medications and some tough love counseling from her sister, she started to take her health into her own hands and has spent the last decade avidly reading and educating herself on Lupus and optimal health. Today, Sheba lives in Santa Monica and leads a very active lifestyle as a certified yoga instructor, scuba diver, tennis player, skier, beach volleyball player, runner, and global adventure traveler. She is now working to give back to the community and advocate for Lupus.…

1 Season 4 | Episode #4 with Model, Actress, Designer, Lupus Advocate and Lupus Patient, Mercedes Yvette 30:02
Season FOUR Episode FOUR of the Your Story Our Fight® podcast welcomes Mercedes Yvette. Mercedes Yvette Shorte gained fame as a contestant on America’s Next Top Model, leading to a successful 20-year career in modeling and acting. She later became a spokesperson for the Lupus Foundation of America, advocating for awareness and funding on a national level. Now, Mercedes channels her passion into the luxury design world through Luxe Design Living, providing tailored furnishings and décor solutions to the design community and beyond. Representing high-end manufacturers, she brings exquisite products to life in both residential and commercial spaces, blending artistry with functionality.…

1 Season 4 | Episode #3 with Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner, Tiffany Kaloustian 28:57
Season FOUR Episode THREE of the Your Story Our Fight® podcast welcomes Tiffany Kaloustian. Functional Medicine Health Practitioner, and Certified Naturopathic Practitioner. Tiffany's personal journey battling severe lupus has fueled her passion for helping others find their path to wellness. She is well versed in a variety of holistic healing modalities, including nervous system regulation, Vagal tone, nutrition, detoxing, mindful practices, movement, and purposeful supplement protocols. Tiffany shares not only her profound personal story of battling and overcoming lupus, but also how she uses her expertise to change lives daily.…
Season FOUR Episode TWO of the Your Story Our Fight® podcast welcomes Charissa Barsos. Charissa is a nurse practitioner with over 15 years of medical experience. She graduated with her BSN from Millikin University in Decatur, IL, in 2010 and worked as a cardiothoracic surgery RN for 5 years. Charissa graduated with her FNP from Olivet Nazarene University in Bourbonnais, IL, in 2015 and DNP from Indian Wesleyan University in Marion, IN, in 2023. She has been a nurse practitioner for almost 10 years and is currently practicing in a tribal health facility in Northern California. She is board-certified in diabetes management. She resides with her husband and son in Northern California. Charissa has been living with lupus symptoms since her early teens but has been diagnosed for about 5 years. She is currently continuing to pursue treatment for her lupus.…

1 Season 4 | Episode #1 with Integrative Nutrition Health Coach and Lupus Patient, Elizabeth Lo Serro 29:59
Season FOUR Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth Lo Serro. As a certified Integrative Nutrition Health Coach, Elizabeth helps clients alleviate fatigue, pain, and rashes while promoting the growth of beautiful, healthy hair. Through her unique approach, Elizabeth empowers people to feel energized, resilient, and radiant. With her expertise in holistic health and her own lived experience with Lupus for 21 years, having been diagnosed at 5 years old, Elizabeth's mission is to build bridges between individuals and their health goals, fostering transformative journeys towards vibrant well-being.…
Season THREE Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Dion Langley. Dion was born and raised in Portsmouth, Va. He was diagnosed with Systemic Lupus Erythematosus ( SLE ) in 2010. Dion decided to use his career as a professional drummer as an avenue to promote Lupus advocacy. Dion also established the #BeatLupus organization as a place where people affected by Lupus can meet in person to provide individual with emotional support, practical advice for living with Lupus and information about treatment and management strategies. In 2020 Dion released "BEAT IT LIKE A DRUM," a song dedicated to the Lupus community with the understanding that we will BEAT LUPUS motivate patients to keep fighting.…

1 Season 3 | Episode #17 with Board member of the Lupus Research Alliance, Lupus Advocate and Lupus Patient, Molly McCabe 25:49
Season THREE Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Molly McCabe. Molly McCabe began her career at the young age of 16 when she joined the inaugural board for the Kids Making Miracles program at Doernbecher Children’s Hospital. She also was part of the founding family that created Potluck in the Park in 1993 where she served the homeless every Sunday for three years. Molly worked as a CASA and served on the Family Council of the Scripps family. Molly and her mother, Debbie McCabe, created the nonprofit, Molly’s Fund Fighting Lupus, in 2007 and she served on the board for ten years there. Molly has been a lupus advocate for over 17 years, wherein she was a patient advocate for GlaxoSmithKline, and reviewed grants for the Lupus Research Program at the Department of Defense CDMRP for three years. She was given the Spirit Award from the Autoimmune Advocacy Alliance in 2014 for extraordinary spirit, dedication and community support while living with autoimmunity. In 2019, Molly was honored at the Breaking Through Gala for the Lupus Research Alliance. She also received the 2021 Community Spirit Award from the Randall Children’s Hospital Kite Society. Currently, she is on the board of the Lupus Research Alliance, Randall Children’s Hospital, and the Mirimar Impact Fund. In 2019, she established the Karen Reiter Scholarship at the James Toland Vocal Arts Competition and is the Business Manager for Mata Advocacy and Support. She has serves as a judge for the White House Fellowship program for the past two years. She is also the proprietor of an art gallery in Portland, Oregon, “ The Lobby .” Molly McCabe is the founder of the Use Your Voice competition.…

1 Season 3 | Episode #16 with Advocate, Educator, and Founder of Lupus In Color, Racquel Dozier 30:25
Season THREE Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Racquel Dozier. Racquel H. Dozier is a passionate lupus advocate, educator, and the founder of Lupus In Color. Her mission is to educate, inspire, encourage, and empower lupus warriors and their supporters worldwide. Through Lupus In Color, Racquel advocates for lupus warriors one butterfly at a time, striving to make a positive impact in the lives of those affected by lupus.…

1 Season 3 | Episode #15 with Spoken Word Poet, Singer, Education Consultant, and Lupus Patient, Shanelle Gabriel 31:51
Season THREE Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Shanelle Gabriel. Shanelle Gabriel is a spoken word poet, singer, education consultant, and lupus warrior from Brooklyn, NY. She has shared her fusion of poetry and soulful singing in esteemed venues from The Vatican to Lincoln Center, and has penned and featured in national poetry campaigns with Pandora Music, NFL Draft, and more. With over 18 years as an educator, she uses the arts to facilitate workshops on creating culturally supportive work and learning spaces. She is the mother of three albums, which are available on all streaming platforms, and aims to show others they can live a full life while battling a chronic illness.…
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