IJLCD - The impact of communication on health care for people living with Motor Neurone Disease

RCSLT - Royal College of Speech and Language Therapists

Most people diagnosed with motor neurone disease (MND) will develop speech impairment over the course of the disease. Some will develop cognitive, linguistic or behavioural disturbance. Does this impact their ability to be involved in and make decisions about their healthcare?

In this podcast we chat with Dr Camille Paynter and Dr Susan Mathers about their research into this question.

The paper is: The impact of communication on healthcare involvement for people living with motor neurone disease and the careers: A longitudinal qualitative study.
Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel, Madeline Cruice

First Published:
21 July 2022

Useful resources:
Access the paper here: The impact of communication on healthcare involvement for people living with motor neurone disease and the careers: A longitudinal qualitative study.
How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration. Paynter C, Mathers S, Gregory H, Vogel AP, Cruice M. Disabil Rehabil. 2022 Jun;44(13):3095-3103. doi: 10.1080/09638288.2020.1855261.

Using the Concept of Health Literacy to Understand How People Living with Motor Neurone Disease and Carers Engage in Healthcare: A Longitudinal Qualitative Study. Paynter C, Mathers S, Gregory H, Vogel AP, Cruice M. Healthcare (Basel). 2022 Jul 24;10(8):1371. doi: 10.3390/healthcare10081371.

Communication and cognitive impairments and health care decision making in MND: A narrative review. Paynter C, Cruice M, Mathers S, Gregory H, Vogel AP. J Eval Clin Pract. 2019 Dec;25(6):1182-1192. doi: 10.1111/jep.13219.
NOTES:
For RCSLT members, access this paper by navigating to the IJLCD website from our A-Z journals list here. Also, if you would like further information on the research terms used in the podcast, or many other aspects of research design, please navigate to the ‘Sage Research Methods’ collection from the Research Methods page of the RCSLT website’.
The interview is conducted by Jacques Strauss, freelance producer, on behalf of The Royal College of Speech and Language Therapists.
Please be aware that the views expressed are those of the guests and not the RCSLT.