843 - The Native Biodata Consortium: Data Sovereignty For Good

Public Health On Call

Вміст надано The Johns Hopkins Bloomberg School of Public Health. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією The Johns Hopkins Bloomberg School of Public Health або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.

1M ago 14:40

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About this episode:

Since the mapping of the human genome in 2003, scientists have sought data from Indigenous and isolated populations. But often that research doesn’t translate into better health care for the groups whose biological specimens informed it. In this episode: all about the Native Biodata Consortium, a research organization that collects, stores, and shares data from indigenous environments and communities.

Guest:

Joseph Yracheta, Pūrepecha, is a biomedical researcher and the executive director of the Native Biodata Consortium.

Host:

Dr. Josh Sharfstein is vice dean for public health practice and community engagement at the Johns Hopkins Bloomberg School of Public Health, a faculty member in health policy, a pediatrician, and former secretary of Maryland’s Health Department.

Show links and related content:

Rapid Acceleration of Diagnostics (RADx)—The National Institutes of Health
Native Americans Graves Protection and Repatriation Act—National Park Service
Tribal Data Repository—Data for Indigenous Innovations, Interventions and Implementations

Have a question about something you heard? Looking for a transcript? Want to suggest a topic or guest? Contact us via email or visit our website.

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