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EFFIE PARKS
Manage episode 315247393 series 3085162
Вміст надано Christopher Velona. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Christopher Velona або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
Effie Parks was born in the magical land of Montana, where she was raised with her 12 loving siblings. After moving to Washington and marrying her husband, Casey, they were blessed with the birth of their son, Ford Canon Parks. When she learned that Ford had been born with an extremely rare genetic condition – CTNNB1 syndrome – she dove into the world of advocacy. Effie also has a daughter, Ezzy age 3, who gives her a run for her money in the speaking category. Effie is also the host of her own podcast, Once Upon a Gene, where she speaks to others about their journey through life with rare diseases.
You can check out Effie's current work through these links below!
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