Lyme Disease and TBD Funding: Why Is It SO Underfunded? With Bonnie Crater and Heather Gray FDN-P
Manage episode 391783715 series 3283875
Episode 87. In this podcast Heather Gray FND-P and Bonnie Crater delves into the often unseen world of Lyme disease, exploring its impact on individuals, families, and the fight for awareness and funding. It weaves together powerful personal stories with insightful discussions on advocacy efforts and research advancements.
In this podcast you will discover
(0:10) Bonnie Carter's journey with Lyme and its impact
(1:45) Girl Scout moms unite against Lyme: A foundation's story
(3:00) Understanding the emotional and financial burdens
(3:31) Centre for Lyme Action's mission and Capitol Hill success
(4:45) Lyme's rising prevalence across various locations
(6:00) Why increased awareness and advocacy are crucial
(9:15) Inclusive and scientific approach: Centre's guiding principles
(11:00) Heather Gray FND-P passion for research funding and mental health support
(14:38) Tick Act and its impact on research and education
(16:15) Challenges of accurate patient counts and diagnostic tools
(17:30) Research priorities: Reliable testing and innovative treatments
(20:00) The Kay Hagan Tick Act: A major legislative achievement
(21:15) Addressing the funding disparity between Lyme and other diseases
(22:30) Alpha Gal syndrome: Another tick-borne illness to consider
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Reach Bonnie here: https://centerforlymeaction.org/
Reach Heather Gray FDN-P here: heather@thelymeboss.com
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Guest Bio : Bonnie Crater is co-founder and board director of Center for Lyme Action. Bonnie is also co-founder and co-chair of Bay Area Lyme Foundation and former chair of the BAL science committee which drives the research agenda, champions innovation, and seeks partners to chart new paths in Lyme research. Bonnie is 2 time CEO and is a multi-time vice president of marketing in Silicon Valley. She currently serves on the board of the CB Wellness Foundation and on the Town of Portola Valley’s Nature and Science Committee. Ms. Crater holds an AB in Biology from Princeton University
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