What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

Proud Stutter

Вміст надано Maya Chupkov. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Maya Chupkov або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.

5M ago 32:18

MP3•Головна епізоду

Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.

This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.

Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.

If you'd like to reach out to Bobby, you can email him at [email protected].

Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content
Advertising Inquiries: https://redcircle.com/brands
Privacy & Opt-Out: https://redcircle.com/privacy

105 епізодів

#Fitness #Society #Relationship #Conversations #Podcasting Education #Kids And Families #Self-Improvement #Mental Health #Maya Chupkov