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Вміст надано Emily Harrington. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Emily Harrington або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
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The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching.

1:18:45
 
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Manage episode 394271636 series 3324084
Вміст надано Emily Harrington. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Emily Harrington або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.

Indianapolis transplants met as kids, but they didn't become a serious couple until Andrew rescued Brook from a traumatic relationship. This heroic foundation of care and love is ever present in this interview as Brook looks to Andrew for the medical details and Andrew looks to Brook for unconditional support.

Listen as the parents of four explain their identical twin boys D-bifunctional protein deficiency diagnosis. Simply put, they can't digest long-chain fatty acids. Tragically put, they are put in the "failure to thrive category." The longest child has lived with this diagnosis for 4 years and 1 month, with the average child living only two years. They openly discuss the decision to opt out of tracheostomies, the high cost of, well, everything, Andrew's 1 a.m. work schedule, the genetic probability with their current pregnancy **SPOILER**, not having any family close and the support from their church and school. If you want to help this deserving family, message me OR Venmo @Brook-Cooper-5 OR gofundme.com/f/eyubx7

I’d like to thank this episode’s sponsor, Fern & Flora at 512 East John Street in the heartbeat of Champaign. Campus. Easily accessible and with on-street parking, it’s a breeze to get in and out, or, let them do the heavy lifting with same day delivery options! All information can be found at fernandflorashop.com. Follow on Instagram @fernandflorashop for all inventory changes and flower inspo.

Thank you so much for listening! However your podcast host of choice allows, please positively: rate, review, comment and give all the stars! Don’t forget to follow, subscribe, share and ring that notification bell so you know when the next episode drops!

Also, search and follow hyperlocalscu on all social media. If I forgot anything or you need me, visit my website at HyperLocalsCU.com. Byee.

  continue reading

Розділи

1. The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:00:00)

2. [Ad] Mindfully Gay Podcast (00:15:03)

3. (Cont.) The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:15:55)

137 епізодів

Artwork
iconПоширити
 
Manage episode 394271636 series 3324084
Вміст надано Emily Harrington. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Emily Harrington або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.

Indianapolis transplants met as kids, but they didn't become a serious couple until Andrew rescued Brook from a traumatic relationship. This heroic foundation of care and love is ever present in this interview as Brook looks to Andrew for the medical details and Andrew looks to Brook for unconditional support.

Listen as the parents of four explain their identical twin boys D-bifunctional protein deficiency diagnosis. Simply put, they can't digest long-chain fatty acids. Tragically put, they are put in the "failure to thrive category." The longest child has lived with this diagnosis for 4 years and 1 month, with the average child living only two years. They openly discuss the decision to opt out of tracheostomies, the high cost of, well, everything, Andrew's 1 a.m. work schedule, the genetic probability with their current pregnancy **SPOILER**, not having any family close and the support from their church and school. If you want to help this deserving family, message me OR Venmo @Brook-Cooper-5 OR gofundme.com/f/eyubx7

I’d like to thank this episode’s sponsor, Fern & Flora at 512 East John Street in the heartbeat of Champaign. Campus. Easily accessible and with on-street parking, it’s a breeze to get in and out, or, let them do the heavy lifting with same day delivery options! All information can be found at fernandflorashop.com. Follow on Instagram @fernandflorashop for all inventory changes and flower inspo.

Thank you so much for listening! However your podcast host of choice allows, please positively: rate, review, comment and give all the stars! Don’t forget to follow, subscribe, share and ring that notification bell so you know when the next episode drops!

Also, search and follow hyperlocalscu on all social media. If I forgot anything or you need me, visit my website at HyperLocalsCU.com. Byee.

  continue reading

Розділи

1. The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:00:00)

2. [Ad] Mindfully Gay Podcast (00:15:03)

3. (Cont.) The Rush Family (Andrew Danner & Brook Cooper). Living in the Limbo of Hospice for their Twin Babies and Anticipating the End While Hopefully Researching. (00:15:55)

137 епізодів

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