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(Rerun) Hidradenitis Suppurativa: Coping, Support, and Living Well with Kathryn Shusta, HS Advocate
Manage episode 402125117 series 2986227
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Hidradenitis Suppurativa (HS) is a chronic, inflammatory skin condition that causes recurrent and painful nodules, boils, abscesses and lesions of the skin.
Living with a chronic skin condition like HS is not just about managing physical symptoms and flare-ups. Living with a recurring, painful and sometimes visible condition can impact a person's emotions, social life and relationships. HS presents on the skin, but it can really take a toll on the whole body, emotionally and physically. There are a lot more nights in and a lot more ‘self-care.
In this podcast episode, Marni spoke with Kathryn Shusta, creator of KS and HS.
Kathryn started her HS advocacy work in 2020 by creating KS and HS, an Instagram page that raises awareness of HS and what it is like to live with a chronic illness. She was not diagnosed with HS until she was 17 years old, 7 years after her first HS flare. Unfortunately, this is a common occurrence for people with Hidradenitis Suppurativa.
Kathryn began her Instagram as an outlet for her feelings about HS. Since then, she has found advocating and helping others to be rewarding and inspiring. She uses her background is in social work and public administration to inform her practice in advocacy. She promotes information based on research and evidence-based best practices through the lens of her own HS experiences. For fun, Kathryn likes to crochet while watching her favourite movies and go on adventures in her hometown.
Join us in this incredible episode as Kathryn uncovers the biggest misconceptions and shares first-hand experience with Hidradenitis Suppurativa.
Learn more about Kathryn Shusta here:
Website: https://ksandhs.com/
Instagram: @ksandhs
Resources:
https://www.hs-foundation.org/
https://www.nobsabouths.com/
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