Addressing the LGBTQI+ Health Disparities Gap

Multiple Myeloma CancerCare Connect Education Workshops

#Medicine #CancerCare #Cancer Care #Cancer #Education Workshops #Cancer Workshops #Cancer Education #Health and Well-Being #Fitness

29:22

The world often feels rigged. And this episode is a wake-up call to recognize the barriers that exist for those who don’t fit the traditional mold. In this episode, which is a kind of tribute to my dear departed Dad, I recount some powerful lessons from the man who was a brilliant psychiatrist and my biggest champion. He taught me that if something feels off about the environment you’re in, it probably is—and it’s absolutely hella-not your fault. We dare to break into the uncomfortable truth that many workplaces are designed for a very specific demographic, leaving neurodivergent individuals, particularly those on the autism spectrum, feeling excluded. I share three stories in which my Dad imparted to me more than my fair share of his wisdom, and I'm hoping you to can feel empowered. You'll learn that we can advocate for ourselves and others to create a more inclusive work culture. Newsletter Paste this into your browser if the newsletter link is broken - https://www.lbeehealth.com/ Join our Patreon - https://differentnotbrokenpodcast.com/patreon Mentioned in this episode: Sign Up For Our Newsletter Stay updated on all the things! Get added to our newsletter mailing list. Newsletter…

рік тому 1:04:56

MP3•Головна епізоду

- Overview of Cancer & the LGBTQI+ Community, Including HIV & HPV - The LGBTQI+ Community’s Disproportionate Cancer Burden - Addressing the LGBTQI+ Health Disparities Gap, Including Mistrust of Health Care Providers - Barriers to Health Care Access, Including Discrimination - Health Care, Cancer Screening, Palliative and Supportive Care, Affordable Housing - Gay Men & Lesbian Cancer Issues - Transgender/Gender-Nonconforming People’s Cancer Concerns - Challenges for LGBTQI+ Caregivers - Social Security Disability Benefits for LGBTQI+ People Living with Cancer - Military Service and the LGBTQI+ Community - Practical, Financial, Emotional & Social Concerns - Cancer Resources for the LGBTQI+ Community - Questions to Ask Our Panel of Experts

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Addressing the LGBTQI+ Health Disparities Gap

Multiple Myeloma CancerCare Connect Education Workshops

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MP3•Головна епізоду

59 епізодів

#Medicine #CancerCare #Cancer Care #Cancer #Education Workshops #Cancer Workshops #Cancer Education #Health and Well-Being #Fitness

Усі епізоди

1
Managing Eye and Vision Changes Related to Cancer Treatments 57:10

11 днів тому57:10

57:10

- Overview of Common Eye & Vision Changes Related to Cancer Treatments - Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors - Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters & Flashing Lights - The Role of the Multidisciplinary Team - Tips to Manage Low Vision & How Eye Products Can Help You Manage Eye/Vision Changes - Clinical Trials: How Research Increases Your Treatment Options - Communicating with Your Health Care Team - Guidelines for Eye Examinations & Check-Ups - Quality-of-Life Concerns - Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Appointments & Discussion of Open Notes - Questions for Our Panel of Expert…

1
Trends in Oncology & Treatment Planning: A Guide to Getting the Best Care 56:59

16 днів тому56:59

56:59

- Understanding Your Cancer Diagnosis & Treatment Options - Clinical Trial Opportunities: How Research Increases Treatment Options - Factors That May Affect Treatment Planning - How Your Health Care Team May Help You Address Your Care - Participating in Decisions about Your Treatment Plans, Side Effect Prevention & Management - Understanding the Role of Supportive Care - The Role of Self Advocacy in Your Oncology Care - Key Questions to Ask Your Health Care Team about Quality-of-Life Concerns - Preparing for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts…

1
Coping with the Stresses of Caregiving When Your Loved One Has Multiple Myeloma 57:37

29 днів тому57:37

57:37

- Overview of the Treatment of Multiple Myeloma - Deciding to Become a Caregiver - Your Important Role in Decision Making - Challenges in Communicating with the Health Care Team - Your Role in Adherence: Weekends, Holidays & Vacations - Coping with Each Day, on Special Occasions, Anniversaries & Birthdays - Managing Family, Friends, & Traditions - Long-Distance Caregiving - The Benefits of Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Self-Care Tips for Managing Lifestyle, Nutrition, Hydration, & Stress - Relaxation Exercises for Caregivers - Questions for Our Panel of Experts…

1
Progress in the Treatment of Multiple Myeloma 54:00

5 weeks тому54:00

54:00

- Discussion of the Progress in the Treatment of Multiple Myeloma - Current Standard of Care, Including Clinical Trial Updates - New & Emerging Treatments - The Role of Transplantation - Preventing & Managing Treatment Side Effects, Symptoms, Discomfort & Pain - Reducing Complications of Bone Disease - Talking with Your Treatment Team About Quality-of-Life Concerns - The Increasing Role of Telehealth & Telemedicine Appointments, Lifestyle, Physical Activity & Balance Concerns, with Practical Tips - Nutrition & Hydration Concerns & Tips - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts…

1
Updates on CAR T-cell Therapies 53:09

5 weeks тому53:09

53:09

- Overview of CAR T-Cell Therapies - Understanding CARs – Chimeric Antigen Receptors - When to Consider CAR T-Cell Therapies as a Treatment Choice - Clinical Trials for CAR T-Cell Therapies - Discussion of CAR T-Cell Therapies - Managing Potential Treatment Side Effects - Specific Examples of How CAR T-Cell Therapies Contribute to Oncology Care - Key Questions to Ask Your Health Care Team about CAR T-Cell Therapies - The Benefits of CAR T-Cell Therapies - Follow-Up Care: What to Expect - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology and List of Questions - Questions for Our Panel of Experts…

1
Coping with Cancer 1:01:42

7 weeks тому1:01:42

1:01:42

- How to Cope While Waiting for Test Results from Cancer Work-Up - Managing Cancer When You Have Other Health Problems - The Impact of Chronic Illness on Cancer Treatment - The Importance of Adherence: Taking Your Treatment on Schedule - Reducing Harmful Drug Interactions - The Role of Clinical Trials: How Research Increases Your Treatment Options - Knowing When to Call Your Health Care Team Between Appointments - Key Questions to Ask Your Health Care Team - The Role of the Dietitian & Physical Therapist in Helping You Cope with Cancer - Quality-of-Life Concerns - Managing the Emotional, Social, Practical & Financial Issues of Coping with Cancer - Creating the Right Care Plan for You, Including Scheduling Appointments & Follow-Up Care - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts…

1
Understanding the Different Names for Biomarker Testing and Their Role in Selecting the Best Treatment for You 56:49

8 weeks тому56:49

56:49

- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment - Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing - The Relationship Between Biomarker Testing & Precision Medicine - Types of Biomarker Tests for Cancer Treatment - Do I Need Biomarker Testing for My Cancer? - How is Biomarker Testing Done? Using Samples of Your Cancer & Your Healthy Cells - Samples are Sent to the Lab Where Pathologists Test for Certain Biomarkers - Some Results Might Lead to Genetic Testing – Inherited or Germline Mutations - Some Biomarker Testing is Done as Part of Clinical Trials for New Cancer Treatments - Other Uses of Biomarkers – Determining a Person’s Cancer Risk or Finding Cancer - Biomarkers Used to Show if a Treatment is Effective or May Show if Cancer is Returning - Biomarkers Play Such an Important Role in Choosing the Best Treatment for You & In Determining Your Progress - Questions for Our Panel of Experts…

1
Understanding the Important Role that Biomarker Testing Plays in Informing the Treatment of Cancer 58:17

9 weeks тому58:17

58:17

- Overview & Definition of Biomarkers - What are Some Examples of Biomarker Testing - How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer is so Important - The Role of the Pathologist - Benefits of Biomarker Testing & Precision Medicine - Predicting Response to Treatment - Clinical Trials: How Research Contributes to Your Treatment Options - Key Questions to Ask Your Health Care Team - Guidelines for Preparing for Telehealth Appointments with Your Health Care Team, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Quality-of-Life Concerns - Questions for Our Panel of Experts…

1
Clinical Trials: How They Transform the Treatment of Cancer 55:49

12 weeks тому55:49

55:49

- Overview of Clinical Trials & Why They are Important - Understanding Your Treatment Options, Including Clinical Trials - Concerns About Participating in Clinical Trials - Types of Clinical Trials - What Happens in a Clinical Trial? - The Meaning of Informed Consent - Benefits & Risks of Participation - How & Where Clinical Trials are Conducted - How to Participate in Clinical Trials - Specific Questions to Ask Your Health Care Team About Clinical Trial Participation - Guidelines for Preparing for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Accessing Resources for Clinical Trials - Questions for Our Panel of Experts…

1
Understanding Treatment-Related Skin Toxicity: Practical Tips to Cope with Rash, Dry/Itchy/Peeling Skin and Nail Changes 57:16

15 weeks тому57:16

57:16

- Skin Toxicity - How Cancer Treatments Affect Your Skin - The Multidisciplinary Approach to Managing Skin Changes & Irritation - Practical Tips to Manage Rash, Dry/Itchy/Peeling Skin & Nail Changes - Sun Safety Tips During Cancer Treatments - When to Call Your Health Care Team about Skin Toxicity - The Role of Clinical Trials: How Research Increases Your Treatment Options - The Importance of Communicating with Your Health Care Team: Key Questions to Ask - Quality-of-Life Concerns - How to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts…

1
Update from the 2024 American Society of Hematology (ASH) Annual Meeting 1:01:39

19 weeks тому1:01:39

1:01:39

- Overview of Blood Cancers - New Research Presented at ASH - Disease-Specific Treatment Updates from ASH on: Leukemia, Lymphoma, Multiple Myeloma & Myeloproliferative Neoplasms (MPNs) - The Role of Precision Medicine & Clinical Trials - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Key Questions to Ask Your Health Care Team About Quality-of-Life Concerns - Questions for Our Panel of Experts…

1
Cancer in the Workplace, Health Insurance, Finances and Returning to School 1:06:03

20 weeks тому1:06:03

1:06:03

- Overview of the Challenges Young Adults Living with Cancer Face - Talking with the Health Care Team About Survivorship Questions & Concerns - Choosing Who & What to Tell Others: Disclosure - School: Deciding How to Deal with Financing Education– Community College, Technical Training, College, Graduate School – Scholarships - Financial Concerns, Including Health Insurance, School, College & Career - Knowing Your Rights: ADA (Americans with Disabilities Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Working During Cancer Treatment: Suggestions from the Health Care Team - Dealing with Physical Changes Due to Cancer or Its Treatment - Short & Long-Term Follow-Up for Young Adult Cancer Survivors: Young Adult Follow-Up Clinic - Coping with Fear of Cancer Recurrence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Quality-of-Life Concerns & Discussion of OpenNotes - Questions to Ask Our Panel of Experts…

1
Challenges Young Adults with Cancer Face: Coping Tips 1:10:55

21 weeks тому1:10:55

1:10:55

- Overview of Young Adults Living with Cancer, Including Delays in Diagnosis - Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs - The Importance of Treatment Summaries - Follow Up with Your Oncologist & Primary Care Doctor - Managing Post Treatment Side Effects/Late Effects - Talking with the Health Care Team About Survivorship Questions & Concerns - Financial Concerns, Including Health Insurance Coverage, School, College & Career - Knowing Your Rights: ADA (Americans with Disabilities Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Choosing Who & What to Tell Others: Disclosure - Working During Cancer Treatment: Suggestions from the Health Care Team - Dealing with Physical Changes Due to Cancer or Its Treatment - Coping with Concerns About Cancer Recurrence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions and Discussion of OpenNotes - Questions to Ask Our Panel of Experts…

1
Chemotherapy: Novel Approaches to Prevent and Manage Gastrointestinal Treatment Side Effects 1:04:47

23 weeks тому1:04:47

1:04:47

- Why Chemotherapy Causes Treatment Side Effects & Discomfort - Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomatitis, Diarrhea, Constipation, Weight Gain or Weight Loss - How Health Care Teams Approach Management & Prevention of These Common GI Side Effects - Prevention Strategies - The Role of the Oncology Nurse in Preventing Side Effects - Current Research Directions to Improve Control of GI Treatment Side Effects - Developing a Detailed Plan with Your Oncology Team to Manage and Prevent GI Chemotherapy Treatment Side Effects - The Importance of Being Prepared Before Treatment Starts - New Agents - The Importance of Clinical Trials - Communicating with Your Health Care Team about Quality-of-Life Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, and Discussion of OpenNotes - Questions for Our Panel of Experts…

1
Update on CAR T-Cell Therapies 1:00:54

27 weeks тому1:00:54

1:00:54

- Overview of CAR T-Cell Therapies - Understanding CARs – Chimeric Antigen Receptors - When to Consider CAR T-Cell Therapies as a Treatment Choice - Clinical Trials for CAR T-Cell Therapies - Discussion of CAR T-Cell Therapies - Managing Potential Treatment Side Effects - Specific Examples of How CAR T-Cell Therapies Contributes to Oncology Care - Key Questions to Ask Your Health Care Team about CAR T-Cell Therapies - The Benefits of CAR T-Cell Therapies - Follow-Up Care: What to Expect - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Quality-of-Life Concerns - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Caregiving for Your Loved One with Cancer 51:52

32 weeks тому51:52

51:52

- Definition of a Caregiver - What Research Tells Us About Caregivers’ Well Being - Caregiving for an Older Adult - Caregiving for a Younger Adult - Caregiving for a Friend - Caregivers for Cancer Survivors - Couples, Partners, Siblings & Friends - Family, Partner & Friend Communication - Care Coordination: Challenges & Tips - Stresses on Family, Partners & Loved Ones - Coping with Holidays, Birthdays & Special Occasions - Managing Family, Friends, Partners & Traditions - The Important Role of Long-Distance Caregivers - Practical Tips for Managing Caregivers’ Stress - Strategies for Self-Care - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of Open Notes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Current Perspectives on Cancer Survivorship 55:47

33 weeks тому55:47

55:47

- Overview of Cancer Survivorship - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries and Encounter Notes - Follow-Up with Your Oncologist and Primary Care Doctor, Including Discussion of Health Screening and Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, and Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Current Perspectives on the Future of Cancer Research 1:13:03

44 weeks тому1:13:03

1:13:03

- Understanding the Future of Cancer Research & Clinical Trials - Increased Focus on Earlier Detection & Treatment of Cancer - Health Care Disparities Research - Enhanced Knowledge of the Molecular Portrait of Cancer - Artificial Intelligence (AI) Driven Approaches for Diagnosis & Treatment of Cancer - Microsatellite Instability (MSI): Mutations in DNA Mismatch Repair Genes – Implications for Treatment - Immunotherapy - CAR T Cell Therapy - Immune Checkpoint Inhibitors & Blockade - Monoclonal Antibodies - Cancer Treatment Vaccines - Immune System Modulators - Targeted Immunotherapies - Radiopharmaceutical Therapy (RPT) - Antibody-Drug Conjugates (ADCs) - Robotic Surgery - Additional Focus on Lifestyle, Exercise, Nutrition & Hydration - Increasing Role of Telehealth/Telemedicine Appointments - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
How Health Care Disparities May Influence Your Cancer Treatment 59:22

46 weeks тому59:22

59:22

- Disproportionate Burden of COVID & Cancer on People of Color - Social Determinants of Health, Including Languages Spoken & Health Literacy - Influence of the Local & Regional Environment in Which You Live on Your Access to Oncology Care - Effect of COVID on Health Care Systems - How Race May Impact Your Access to Cancer Treatment, Management of Treatment Side Effects & Pain Management - How to Find the Right Cancer Care Team for You - Access to Cancer Treatment in the LGBTQI+ Community - Costs of Housing & Cancer Treatment - Food & Pharmacy Deserts - Food Insecurity: Tips to Increase Your Access to Health Promoting Nutrition - Work Commitments & Transportation to Treatment - Your Rights Under the Americans with Disability Act (ADA) & Family and Medical Leave Act (FMLA) - How Telehealth May Help You with Greater Health Equity - Practical Tips to Cope with Health Care Disparities: Valuing Your Identity - Guidelines for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Trusted Family/Friend to Join the Appointment, Quality-of-Life Concerns & Discussion of OpenNotes - Key Questions to Ask Your Health Care Team - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
What’s New in Precision Medicine 1:00:04

46 weeks тому1:00:04

1:00:04

- Understanding Precision Medicine: Overview & Value of Precision Medicine - How Precision Medicine is Different from Targeted Treatments? - Precision Medicine Role’s in Informing Treatment Decisions: Predicting Response to Treatment - The Role of Precision Medicine in Deciding the Treatment for Lung Cancer, Leukemia & Colon Cancer - Talking with Your Health Care Team About Precision Medicine & its Benefits - The Role of the Pathologist - OpenNotes – Asking Your Health Care Team & Pathologist to Help You Understand OpenNotes - How Precision Medicine Contributes to Treatment Options & Quality of Life - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Taking Your Blood Cancer Adherence Treatment on Schedule 57:54

46 weeks тому57:54

57:54

- Overview of Blood Cancer Treatments - Understanding Treatment Side Effects - Working with Your Health Care Team to Manage Each Treatment Side Effects - Dealing with Blood Cancer Treatments & Other Co-Morbid Health Treatments - Adjusting to Your Blood Cancer Treatment Over Time - The Importance of Taking Your Blood Cancer Treatment on Schedule – Adherence - Can I Take My Medications at Any Time of the Day? - The Value of Time of Day Consistency in Taking Your Pills - Challenges to Taking Your Treatment on Schedule - Practical Tips & Opportunities to Overcome Them - Review of Resources to Remind You to Take Your Pills on Schedule - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel & Holidays - Communicating with Your Hematology Oncology Team About Adherence, Including Your Pharmacist - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Caring for Your Loved One with Cancer 1:00:43

51 weeks тому1:00:43

1:00:43

- Definition of a Caregiver - What Research Tells Us About Caregivers’ Well Being - Caregiving for an Older Adult - Caregiving for a Younger Adult - Couples, Partners, Siblings, & Friends - Challenges for Caregivers of Cancer Survivors - Family, Partner, & Friend Communication - Care Coordination Challenges & Tips - Stresses on Family, Partners, Friends, & Loved Ones - Coping with Holidays, Birthdays, & Special Occasions - Managing Family, Friends, Partners, & Traditions - Long-Distance Caregiving - Practical Tips for Managing Caregivers’ Stress - Strategies for Self-Care - The Increasing Role of Telemedicine Appointments - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Diverse Populations Participating in Decisions about Your Care 57:57

1 year тому57:57

57:57

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Appointments with Your Health Care Team, Including Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Managing Eye and Vision Changes Related to Cancer Treatments 55:04

1 year тому55:04

55:04

- Overview of Common Eye & Vision Changes Related to Cancer Treatments - Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors - Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights - The Role of the Multidisciplinary Team - Tips to Manage Low Vision & How Eye Products Can Help You Manage Eye/Vision Changes - Clinical Trials & Communicating with Your Health Care Team - Guidelines for Eye Examinations & Check-Ups - Quality-of-Life Concerns - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Diverse Populations Living with Multiple Myeloma: Treatment Advances 1:05:55

1 year тому1:05:55

1:05:55

- Overview of Diverse Populations Living with Multiple Myeloma - How Race May Impact Your Access to the Treatment of Multiple Myeloma - Social Determinants of Health, Including Languages Spoken & Health Literacy - Current Standard of Care - New & Emerging Treatments - The Role of Transplantation - Preventing & Managing Treatment Side Effects, Symptoms, Discomfort & Pain - Reducing Complications of Bone Disease - How to Find Your Best Care Team - Talking with Your Treatment Team about Quality-of-Life Concerns - The Increasing Role of Telehealth/Telemedicine Appointments - How Telehealth May Help in Advancing Your Health Equity - Lifestyle, Physical Activity & Balance Concerns, with Practical Tips - Food Insecurity & Food Deserts: Tips to Increase Your Access to Health Promoting Nutrition - Nutrition & Hydration Concerns & Tips - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - How to Cope with Health Care Disparities - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Coping with the Stresses of Caregiving When Your Loved One Has Multiple Myeloma 58:02

1 year тому58:02

58:02

- Overview of the Treatment of Multiple Myeloma - Deciding to Become a Caregiver - Your Important Role in Decision Making - Challenges in Communicating with the Health Care Team - Your Role in Adherence: Weekends, Holidays & Vacations - Coping with Each Day, on Special Occasions, Anniversaries, & Birthdays - Managing Family, Friends, & Traditions - Long-Distance Caregiving - The Benefits of Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & Discussion of OpenNotes - Self-Care Tips for Managing Lifestyle, Nutrition, Hydration & Stress - Relaxation Exercises for Caregivers - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Progress in the Treatment of Multiple Myeloma 1:09:53

1 year тому1:09:53

1:09:53

- Discussion of the Progress in the Treatment of Multiple Myeloma - Current Standard of Care, Including Clinical Trial Updates - New & Emerging Treatments - The Role of Transplantation - Preventing & Managing Treatment Side Effects, Symptoms, Discomfort & Pain - Reducing Complications of Bone Disease - Talking with Your Treatment Team about Quality-of-Life Concerns - The Increasing Role of Telehealth & Telemedicine Appointments - Lifestyle, Physical Activity & Balance Concerns, with Practical Tips - Nutrition & Hydration Concerns & Tips - Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Understanding the Different Names for Biomarker Testing & Their Role in Selecting the Best Treatment for You 1:01:37

1 year тому1:01:37

1:01:37

- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment - Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing - The Relationship Between Biomarker Testing & Precision Medicine - Types of Biomarker Tests for Cancer Treatment - Do I Need Biomarker Testing for My Cancer? - How is Biomarker Testing Done? Using Samples of Your Cancer & Your Healthy Cells - Samples are Sent to the Lab Where Pathologists Test for Certain Biomarkers - Some Results Might Lead to Genetic Testing – Inherited or Germline Mutations - Some Biomarker Testing is Done as Part of Clinical Trials for New Cancer Treatments - Other Uses of Biomarkers – Determining a Person’s Cancer Risk or Finding Cancer - Biomarkers Used to Show if a Treatment is Effective or May Show if Cancer is Returning – Examples Will Be Provided - Biomarkers Play Such an Important Role in Choosing the Best Treatment for You & in Determining Your Progress - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Chemotherapy: Novel Approaches to Prevent and Manage Gastrointestinal Treatment Side Effects 1:01:36

1 year тому1:01:36

1:01:36

- Why Chemotherapy Causes Treatment Side Effects & Discomfort - Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them - Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomatitis, Diarrhea, Constipation, Weight Gain or Weight Loss - How Health Care Teams Approach Management & Prevention of These Common GI Side Effects - Prevention Strategies - The Role of the Oncology Nurse in Preventing Side Effects - Current Research Directions to Improve Control of GI Treatment Side Effects - Developing a Detailed Plan with Your Oncology Team to Manage & Prevent GI Chemotherapy Treatment Side Effects - The Importance of Being Prepared Before Treatment Starts - New Agents - The Importance of Clinical Trials - Communicating with Your Health Care Team about Quality-of-Life Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions to Ask Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Understanding the Important Role that Biomarker Testing Plays in Informing the Treatment of Cancer 1:03:42

1 year тому1:03:42

1:03:42

- Overview and Definition of Biomarkers - What Are Some Examples of Biomarker Testing - How Biomarker Testing Provides Useful Information for Cancer Treatment - Why the Molecular Portrait of Cancer Is So Important - The Role of the Pathologist - Benefits of Biomarker Testing & Precision Medicine - Predicting Response to Treatment - Clinical Trials: How Research Contributes to Your Treatment Options - Key Questions to Ask Your Health Care Team - Guidelines to Prepare for Telehealth/Telemedicine Appointments with Your Health Care Team, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Quality-of-Life Concerns - Questions to Ask Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Young Adult Survivorship: Fertility, Sexuality and Intimacy 1:00:50

1 year тому1:00:50

1:00:50

- Unique Needs of Young Adult Cancer Survivors - Identity, Relationships & Intimacy - Dating - Couples/Partners Dealing with Survivorship - Communicating about Sex - Sexuality & Intimacy - Sex Drive: Ability & Desire - Tips to Deal with Vaginal Dryness, Premature Menopause, Erectile Dysfunction, Premature Ejaculation & Sperm Banking - Low Desire: How to Get My Groove Back - Body Image: Feeling Improved Sexual Self-Esteem - Fertility Choices & Coping with Infertility - Medical Options for Assisted Pregnancy - Health Maintenance Needs for Young Adult Cancer Survivors - Long-Term Follow-Up for Young Adult Cancer Survivors - Questions to Ask Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Addressing the LGBTQI+ Health Disparities Gap 1:04:56

1 year тому1:04:56

1:04:56

Multiple Myeloma CancerCare Connect Education Workshops

1
Challenges Young Adults with Cancer Face: Coping Tips 59:37

1 year тому59:37

59:37

- Overview of Young Adults Living with Cancer, including Delays in Diagnosis - Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs - The Importance of Treatment Summaries - Follow-Up with Your Oncologist & Primary Care Doctor - Managing Post Treatment Side Effects/Late Effects - Talking with the Health Care Team about Survivorship Questions & Concerns - Financial Concerns, Including Health Insurance Coverage, School, College & Career - Knowing Your Rights: ADA (Americans with Disability Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Choosing Who & What to Tell Others: Disclosure - Working During Cancer Treatment: Suggestions from the Health Care Team - Dealing with Physical Changes Due to Cancer or Its Treatment - Coping with Concerns about Cancer Recurrence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions to Ask Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Current Perspectives on Cancer Survivorship 57:03

1 year тому57:03

57:03

- Overview of Cancer Survivorship, in the Context of COVID - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries & Encounter Notes - Follow-Up with Your Oncologist & Primary Care Doctor, including Discussion of Health Screening & Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Diverse Populations Participating in Decisions About Your Care With Your Health Care Team 1:04:06

2 years тому1:04:06

1:04:06

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care? - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team about Your Treatment Plan - How to Self-Advocate with Health Care Staff: Language Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine If They are the Best Team for You - Guidelines to Improve Your Communication with Your Health Care Team, including Prepared List of Questions & Follow-Up Appointments - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Understanding Diagnostic Technologies and Biomarkers 35:53

2 years тому35:53

35:53

- Overview & Definition of Biomarkers & Diagnostic Technologies - How Biomarkers & Diagnostic Technologies Shape & Improve Treatment Decisions - Why the Molecular Portrait of Cancer is Important - The Role of the Pathologist - Benefits of Biomarkers, Precision Medicine & Diagnostic Technologies - Predicting Response to Treatment - Clinical Trials: How Research Contributes to Your Treatment Options - Key Questions to Ask Your Health Care Team - Guidelines for Preparing for Telehealth Appointments with Your Health Care Team, including Technology, Prepared List of Questions & Discussion of OpenNotes - Quality-of-Life Concerns - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Addressing the LGBTQI+ Health Disparities Gap 1:08:20

2 years тому1:08:20

1:08:20

- Overview of Cancer & the LGBTQI+ Community, including HIV & HPV - The LGBTQI+ Community’s Disproportionate Cancer Burden - Addressing the LGBTQI+ Health Disparities Gap, including Mistrust of Health Care Providers - Barriers to Health Care Access, including Discrimination - Health Care, Cancer Screening, Palliative & Supportive Care, Affordable Housing - Gay Men & Lesbian Cancer Issues - Transgender/Gender-Nonconforming People’s Cancer Concerns - Challenges for LGBTQI+ Caregivers - Social Security Disability Benefits for LGBTQI+ People Living with Cancer - Military Service and the LGBTQI+ Community - Practical, Financial, Emotional & Social Concerns - Cancer Resources for the LGBTQI+ Community - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Taking Your Pills on Schedule: Its Importance in Managing Cancer 1:00:52

2 years тому1:00:52

1:00:52

- Overview of Cancer Treatments - Definition of Adherence: Taking Your Pills on Schedule - Its Important Role in Managing Cancer - Barriers to Taking Your Pills - Practical Tips to Overcome These Barriers, including Family, Partners & Others - Computer, Tablet & Phone Reminders including Emails, Texts & Apps - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel & Holidays - Communicating with Your Health Care Team about Adherence - Reminders from Your Pharmacy & Pharmacist - Clinical Trials on Adherence - Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Understanding How Health Care Disparities May Influence Your Cancer Treatment and Care: With Tips and Strategies to Find the Best Cancer Treatment and Health Care Team for You 1:04:18

2 years тому1:04:18

1:04:18

- Disproportionate Burden of COVID, Omicron & Cancer on People of Color - Social Determinants of Health, including Language Spoken & Health Literacy - Influence of the Local & Regional Environment in Which You Live - Effect of COVID & Omicron on Health Care Systems - How Race May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management - Tips to Find Your Best Care Team - Access to Cancer Treatment in the LGBTQ Community - The Role of Housing, Cost of Treatment & Care on Your Health - Food & Pharmacy Deserts - Food Insecurity: Tips to Increase Your Access to Health Promoting Nutrition - Job Commitments, Access & Transportation to Treatment - How Telehealth May Help in Advancing Your Health Equity - Tips to Cope with Health Care Disparities: Valuing Your Identity - Guidelines to Communicate with Your Health Care Team - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Current Perspectives on Cancer Survivorship 1:01:28

2 years тому1:01:28

1:01:28

- Overview of Cancer Survivorship - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries - Follow-Up with Your Oncologist & Primary Care Doctor, including Discussion of Health Screening & Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Taking Your Pills on Schedule: Why It Is So Important in Managing Cancer 58:41

3 years тому58:41

58:41

- Overview of Cancer Treatments - Definition of Adherence: Taking Your Pills on Schedule - Its Important Role in Managing Cancer - Barriers to Taking Your Pills - Practical Tips to Overcome These Barriers, including Family, Partners & Others - Computer, Tablet & Phone Reminders including Emails, Texts & Apps - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel & Holidays - Communicating with Your Health Care Team about Adherence - Reminders from Your Pharmacy & Pharmacist - Clinical Trials on Adherence - The Increasing Role of Telehealth/Telemedicine Appointments - Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions, Follow-Up Care & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Current Perspectives on Cancer Survivorship 59:11

3 years тому59:11

59:11

- Overview of Cancer Survivorship, in the Context of COVID-19 & Its Variants - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries - The Increasing Role of Telehealth/Telemedicine Appointments - Follow-Up with Your Oncologist & Primary Care Doctor - Talking with Your Health Care Team about Your Survivorship Questions & Concerns - Guidelines for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Current Perspectives on Cancer Survivorship 1:03:56

4 years тому1:03:56

1:03:56

- Overview of Cancer Survivorship, in the Context of COVID-19 - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries - Follow-Up with Your Oncologist and Primary Care Doctor, including Discussion of Health Screening & Concerns - The Increasing Role of Telehealth & Telemedicine Appointments - Guidelines to Prepare for Telehealth/ Telemedicine Appointment, including Technology & List of Questions - Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
The 9/11 Community, Cancer & COVID-19 1:00:28

4 years тому1:00:28

1:00:28

* Overview of Cancer, in the 9/11 Community, in the Context of COVID-19 * Living with Cancer, Co-Morbid Health Problems & Long-Term Effects of 9/11 * Understanding Post Traumatic Stress, in the 9/11 Community, while Coping with the Pandemic * Discussion of COVID-19, 9/11 & Cancer in the 9/11 Community: Post Traumatic Stress Disorder & Concerns * Cost of Health Care & General/Practical Financial Worries * Strategies & Resources to Cope with Financial, Practical, Emotional & Personal Concerns * The World Trade Center Health Program & 9/11 Victim Compensation Fund: How to Register * For the 911 Community: Support Groups, Financial Assistance, Practical Help & Resource Navigation * Review of Resources to Help the 911 Community Living with Cancer & Other Health Issues, including Respiratory Illnesses, during COVID-19 * Key Tips & Strategies to Manage Your Stress * Questions for Our Panel of Experts…

Multiple Myeloma CancerCare Connect Education Workshops

1
Managing the Cost of Living with Cancer 1:03:05

5 years тому1:03:05