Hemophilia and Axel's Story, feat. Patient Advocate Kristina Robinson

Wait, How Do You Spell That? A Rare Disease Podcast

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1M ago 27:37

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In this episode of the podcast we talk with Kristina Robinson, a patient advocate and mother whose son, Axel, was diagnosed with hemophilia A when he was 10 months old. That’s a rare bleeding disorder, sometimes called “classic hemophilia,” that is characterized by excessive bleeding from cuts, unexplained bruising, joint swelling and more. Since her son was diagnosed, Kristina has been his #1 champion, advocating for hemophilia awareness in her home state and beyond.

Keep up with Kristina and Axel on Instagram!
Learn more about hemophilia and ways that you can get involved at the New England Hemophilia Association!

Editor's Note: Chronic conditions and rare diseases don’t discriminate. Patient Worthy and our partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a story to share, learn more about how your voice can help spread awareness and inspire individuals from all walks of life here: https://shorturl.at/sPV02

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#Fitness #Rare Disease #Patient Worthy