Neuropsychological Symptoms of Conditions Associated With Ehlers Danlos Syndrome With Guest Dr. Veronica Burton

The Spoonie Struggle

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Episode 38: Neuropsychological Symptoms of Conditions Associated With Ehlers Danlos Syndrome With Guest Dr. Veronica Burton

In this episode, Dr. Veronica Burton discusses the neuropsychological symptoms of complications that can occur from Ehlers Danlos Syndrome. For craniocervical instability, the syndrome can impinge on CSF flow or impinge on the blood flow or brain stem, which can lead to symptoms, including difficulty with memory and brain fog. For treatment, it can be helpful to use a hard collar, undergo a neurological evaluation, and do physical therapy to stabilize the neck. Idiopathic intracranial hypertension can sometimes be associated with CCI/AAI and can lead to disruption in bloodflow and blockages along the venous drainage system. Associated symptoms include memory difficulty, brain fog, concentration, and executive dysfunction. Treatment includes a good workup, treating the symptoms, stress management, sleep hygiene, pain management, neck strengthening, posture management, physical therapy, and education. Chiari malformations can also occur, and is generally thought to be when the cerebellar tonsils dip 5mm further down than they should. Neuropsychological symptoms of Chiari malformation include memory and attention difficulties, reduced executive functioning, and brain fog. Tethered cord may or may not lead to cognitive difficulties. However, if it causes or exacerbates Chiari malformation, cognitive difficulties can arise. For POTS, neuropsychological symptoms can include difficulty with concentration and reduced cognitive efficiency.

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