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Confronting Ageism with Lynch Syndrome
Manage episode 310287070 series 3051496
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Janelle was diagnosed with MLH1-associated Lynch syndrome as a young adult. With a background in pre-med and public health, she has found it easier than some to navigate the healthcare system and make sure she is getting the screenings that she needs. But she has also run into a lot of ignorance and ageism along the way. Working in the field of oncology has also made it harder for her to keep her diagnosis compartmentalized, forcing her to confront it more often than she normally would at her age.
Have thoughts or a related story you’d like to share? Leave us a short voice message here! We may use your message on a future show.
Related Resources:
Lynch Syndrome/HNPCC Facebook Support Group
Lynch Syndrome Support Group / LSI Facebook Support Group
Related Grey Genetics News Corner blog posts:
Why Have You Never Heard of Lynch Syndrome?
What Can 23andme tell you about your colorectal cancer risk?
Other Patient Stories episodes related to Lynch syndrome:
She with Lynch - with Georgia Hurst
Family Health History and a Missed Diagnosis of Lynch Syndrome - with Ann Jeffers Brown
Living with Lynch Syndrome - with Melanie Breault
Read other Patient Stories on the Grey Genetics Patient Stories Page
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