E28: There is Hope for Ataxia w/Courtney Ng

Disabled Girls Who Lift

It can sometimes become lonely and confusing to live with a rare, chronic disease, or to not be diagnosed at all. Today we speak with Courtney Ng, co-founder of Hope for Ataxia, a grassroots organization raising global awareness of Ataxia through the dissemination of user stories, information, and support groups. Courtney shares details of her life at 25 when she was diagnosed with Ataxia but had no one to turn to or relate with, but it contributed to self-discovery and experimentation. She informs our listeners that they “are not alone in their chronic illness. There is support out there and we are on this journey together.”

Host for this episode: Marcia Darbouze (@thatdoc.marcia)

A message from DGWL: We do our very best to ensure we are inclusive to all members of the community. Not very many podcasts consider the deaf and hard-of-hearing population, but we applaud those who do and challenge those who don’t. That said, we are looking for volunteers to help us transcribe future episodes--there are transcriptions available online for our current episodes--but we still need help! Please send us a message on our website--www.disabledgirlswholift.com--if you have transcribing experience and are interested in joining the crew!