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In this episode, the host of our podcast, David Clifford, talks about Personal Independence. He describes how we can maintain it while also staying safe. Though losing one’s driver’s license is frustrating, personal independence is just more than having the privilege to drive. A level-four Epilepsy Center has all the things that people need to lear…
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In this episode, we describe Responsive Neurostimulation for Seizures (or RNS) and the RNS System created by NeuroPace Inc. Mike McKenna from NeuroPace Inc. generously comes on the show to describe his own experience with The RNS System. Though RNS sounds a lot like VNS, the two technologies are quite different. Does the RNS System Work? The NeuroP…
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This episode includes the basics of Epilepsy. Have you ever asked yourself, if I had the chance to give advice what would I say? In this episode, the host of our Epilepsy podcast, David Clifford, goes back in time to 1991 to give his former-self advice about Epilepsy and seizures. Are You New to Epilepsy? You should know that it affects a little mo…
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The EEG (or Electroencephalography) has become the quintessential tool for Neurologists (or Epileptologists) to determine what is going on in our heads. It measures the tiny electrical changes in our brain. Neurologists arrange the data in a montage so it can be inspected. A trained Neurologist can use the EEG data to determine the origination of o…
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Have you ever thought about creating a fundraising event for your local Epilepsy Awareness charity? You should! We invite Josh Green (Twitter @JoshGreen321) from Epilepsy Foundation Eastern Pennsylvania to tell us about their NOLA-Themed-Virtual-Gala on March 5-7, 2021. He also provides some handy tips so you can get your own virtual gala ready for…
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In this episode, we celebrate some stories of Presidents whose lives were entangled with seizures or Epilepsy. Were you motivated by the stories of the Presidents described in this episode? We would love to hear any comments you have. You can always reach out to us via email at social@brainablaze.com or via Twitter @BrainAblaze. Thank you so much f…
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In this episode, Christin Godale comes on to the show to provide advice to families that include students looking to transition from high school to University. The transition from high school to university is hard on anyone that tries it. When one add Epilepsy or seizures the transition becomes even more complicated. Christin Godale Christin Godale…
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Have you ever wondered how anti-seizure medications are discovered? In this episode, we walk you through the different generations of anti-seizure medications and tell the stories behind some of the most notable meds. We really appreciate you listening to our show. Without you, we could raise Epilepsy awareness. The National Institute of Neurologic…
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In our Triggers episode last season, we covered many common Triggers that affect our Epilepsy community. In this episode, we provide tools anyone can use to discover which Triggers affect their seizures. It often feels that there are thousands of possible Triggers for our seizures. Discovering which Triggers affect your seizures gives you freedom. …
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In this episode, we argue that Caretakers (or carers) deserve the right to be full-fledged members in our Epilepsy Community. “He takes care of me more than I could ever take care of him.” – Angelina Simms @angelinasimms While we can never truly describe what a seizure feels like to a person who has never had one, carers (and especially Carers of s…
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Every country (and state) treats Cannabis (or medical marijuana) differently. This has led to many questions from many people in our Epilepsy community regarding the potential use and efficacy of cannabis to reduce our seizures. In this episode, we try to clear up questions regarding cannabis and its future in […] The post 041: The Cannabis Debate …
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Welcome back to Season 2. In this episode, our host, David Clifford, walks through the vision for the newest season of the Brain Ablaze Epilepsy Podcast. We’re looking to help even more people this year by providing content targeted to a wider audience. Can you help us by providing a […] The post 040: Welcome to Season 2 appeared first on Brain Abl…
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Our podcast is still on hiatus, but we want to wish you all a wonderful holiday season. We hope you are safe, happy, and of course, seizure-free. Thank you so much for the support during Brain Ablaze’s first year. Contact Us If you have any questions or comments about this […] The post BONUS: Holiday Special appeared first on Brain Ablaze.…
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There are so many people that contributed at multiple levels to make Brain Ablaze’s inaugural year so remarkable. We just want to take a moment to say, “Thank You!”. Here are just a few that made the tip-top of the list in no particular order. Jo Mackenzie Jo is Brain […] The post 039: 2020 in Review appeared first on Brain Ablaze.…
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We at Brain Ablaze are not medical professionals. Instead, we rely on Seizure First Aid information from the Center for Disease Control and Prevention, or the CDC. Here’s an overview of what they have on their site, Seizure first aid is critically important because of just how often seizures occur. […] The post 038: Seizure First Aid appeared first…
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In our third (and last) episode in this series on careers, we argue that Epilepsy shouldn’t stop any of us from having a meaningful career that we also love. There are plenty of careers that just don’t seem a great fit for people with Epilepsy, but that doesn’t mean there […] The post 037: Careers – Fired Up! appeared first on Brain Ablaze.…
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Have you ever asked, “When is the right time to tell a prospective employer about my Epilepsy?”. In this episode, our host, David Clifford, helps to answer that very question by telling the story of his worst technical interview experience. We know that covid-19 still ravishes economies around the world. […] The post 036: Careers – Not If, but When…
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In this episode, we help you navigate the Reasonable Accommodations negotiation process by giving you tips regarding how to talk to your employer about your Epilepsy. When people with Epilepsy in the United States start a conversation about careers, one of the first things that will be mentioned is the […] The post 035: Careers – Reasonable Accommo…
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VNS or (Vagus Nerve Stimulation) can be a new tool for you to control your seizures. In this episode, we invite the author of Vivien’s Rain: My Daughter’s Battle With Epilepsy, Mike Knox, to the show to help us learn more about VNS and how VNS has changed his family’s […] The post 034: VNS (with Mike Knox) appeared first on Brain Ablaze.…
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In this episode, we invite French Dietician Matthew Cress to the show to help clear up some of the questions that we have about the Ketogenic diet. Initially only reserved for people with intractable (or medical-resistant) Epilepsy, the Ketogenic diet is gaining popularity for all people with Epilepsy. The Ketogenic […] The post 033: Ketogenic Diet…
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In this episode, our host, David Clifford, tries to provide context around the statement that every person new to Epilepsy seems to make, “I just want a normal life!”. The process of adapting to Epilepsy is tough and often long. One thing that hinders us in the search for true […] The post 032: What is Normal? appeared first on Brain Ablaze.…
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In this week’s episode, we invite Dr. Wesley Kerr, MD, PhD from the Neurology department at the University of California in Los Angeles onto the show to explain the finer details of Functional Seizures (or Dissociative Seizures). What are Functional (or Dissociative Seizures)? As Doctor Kerr described, one of the […] The post 031: What’s In a Name?…
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In this episode, we’re going to continue from our last episode and exploration of Stress and Anxiety. Our host, David Clifford, describes what he calls the Stress Seizure Spiral then gives you the tools to be able to recognize you’re in it and how to safely get out. Jump to […] The post 030: Stress Seizure Spiral appeared first on Brain Ablaze.…
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In this episode, we cover Stress and Anxiety, the differences between them, and how to combat both to improve your life. Studies have shown that the incidence of Anxiety Disorders in people with Epilepsy is almost two-fold than in the general public. In our Triggers episode, we covered that all […] The post 029: Stress and Anxiety appeared first on…
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In this episode, our host, David Clifford, gives an update regarding Brain Ablaze and reluctantly asks for your help. He reveals a vital secret that could affect the future of Brain Ablaze. We Need Your Help Unfortunately, we cannot pay. Everything we do is voluntary to help those with Epilepsy. […] The post 028: Coming Clean and Moving Forward app…
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In this episode, our host, David Clifford, transports us back to 1990 when at just fifteen years old he had his first seizure. Every story has a first, a first that is the beginning of everything. Supporting Epilepsy Research We have a new initiative here at Brain Ablaze. We’re trying […] The post 027: Feels Like the First Time appeared first on Br…
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In this episode, we stare down the monster that has plagued our Epilepsy community for decades, SUDEP, or SUdden Death from EPilepsy. We present three tragic stories of SUDEP. In the United States, there are 55 (and 1 in the UK) thousand Epilepsy-related deaths in the United States each year. […] The post 026: Mortality appeared first on Brain Abla…
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Every one of us must adapt to our Epilepsy and the seizures it causes. It is a brutal process, but with the right attitude, perseverance, and luck we can solve our own puzzle and attain our goals. We guarantee it! We will always have people in our corners and people […] The post 025: Beating the Blame appeared first on Brain Ablaze.…
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Our host, David Clifford, talks about one of the things he loves most: Sleep. We do a deep dive into how to learn how much sleep you do need, how to improve the quality of sleep you get, and of course Nocturnal Seizures. The best way to learn more about […] The post 024: Sleep Till Brooklyn appeared first on Brain Ablaze.…
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In this,, our last episode on our current series on Stigma, We go across the world to learn what to do when stigma hits close to home. Our friend, Peter Meyer, tells us of his secret life with Epilepsy and the lengths to which his family went to hide it […] The post 023: Dirty Family Secret appeared first on Brain Ablaze.…
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In this episode, we continue our Stigma series to talk through the different types of people that we often encounter when trying to fight against Stigma and give advice on how best to interact with them. Each person is different of course, but we often find that that there are […] The post 022: Hero’s Journey appeared first on Brain Ablaze.…
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In this episode, our host and longtime intractable epilepsy sufferer, David Clifford takes us back to 1983 to tell a story of when his own stigma against others changed the path of his own life. So pop your collar and grab your jellies, because we’re in for an awesome ride. […] The post 021: Stigma ’83 appeared first on Brain Ablaze.…
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Our last episode presented the events leading up to the resection neurosurgery that our host, David Clifford, undertook in 2017. This episode covers what happened immediately after the surgery and provides an update of his recovery. There are plenty of risks regarding surgery and one should investigate and consider all […] The post 020: The Recover…
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In this episode, our host, David Clifford, walks through the events leading up to his neurosurgery in 2017. This is part one of a two-part series. Make sure that you listen to 020: The Recovery to learn the whole story. Neurosurgery is often the last resort for people of epilepsy […] The post 019: The Surgery appeared first on Brain Ablaze.…
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Jump to the Episode Our host, David Clifford, walks through what he has learned living with intractable epilepsy for more than a quarter of a century. Approximately, 70% of people with epilepsy effectively control their Epilepsy through medication. For the rest, medication has little to no effect. Our host refers […] The post 018: Under the Grind a…
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Our host, David Clifford, talks through how Epilepsy is related to Traumatic Brain Injury including an injury he suffered in a car accident in his teens. This is the video that inspired this episode, where a New York City Police Officer throws a young girl to the ground for her […] The post 017: Traumatic Brain Injury appeared first on Brain Ablaze…
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If you’ve always wondered: “Why doesn’t my doctor listen to me?”, “Why does my doctor push medication on me?” or “Why is my doctor so terrible?” then this episode is for you. The host of our podcast, David Clifford, covers the relationship between epilepsy patients and neurologists using vital statistics […] The post 016: By the Numbers appeared fi…
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Last episode, we covered the things that things people do that annoy the members of the Epilepsy community. In this episode, our host of the Brain Ablaze Epilepsy Podcast, David Clifford, changes things up to explain the different side of the same story by walking through some of the things […] The post 015: Faux Pas (Part 2) appeared first on Brai…
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In this episode, we walk through some of the faux pas that members of the general public often make that often cause confusion or even playful eye-rolls from members of the Epilepsy community. This episode was inspired by the #seizurechallenge, a recent Tik Tok trend that has people (mostly teens) […] The post 014: Faux Pas (Part 1) appeared first …
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In this episode (player link at bottom), I walk through the concepts of Adult Neurogenesis and Neuroplasticity, why they are important to the people of Epilepsy, and how they can be used now to help with your recovery. Gaining neuroplasticity means pushing your brain in ways that it wouldn’t normally […] The post 013: Neurogenesis and Plasticity ap…
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In this episode, our host, David Clifford, walks through a Status Epilepticus event he experienced. When a seizure lasts more than five minutes, it becomes a true emergency situation because there is a good chance that the seizure will not end by itself naturally. Additionally, if a person with Epilepsy […] The post 012: Status Epilepticus appeared…
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In this very special episode our host, David Clifford, welcomes up-and-coming comedian Trevor Harris to discuss his fight with Cerebral Palsy and Epilepsy. Cerebral Palsy is the most common motor disability in childhood, with an estimated 764,000 people living with at least one symptom in the United States. An estimated […] The post 011: Cerebral P…
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In this episode of the Brain Ablaze Epilepsy Podcast our host, David Clifford, walks through some of the things he has learned when he recently invested time to improve his own memory. Stress is a huge factor with regard to the optimization of one’s memory. This ARTICLE is a great […] The post 010: Memory is Made of This appeared first on Brain Abl…
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With the outbreak COVID-19 and resulting pandemic, febrile (or fever) seizures have certainly been in the minds of some parents. In this episode, our host and long-time intractable epilepsy sufferer, David Clifford, gets out of his comfort zone to explain the details of febrile seizures, a scary but common scenario […] The post 009: Febrile Seizure…
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Does Epilepsy cause Depression? Does Depression cause Epilepsy? In this episode, I review the association between Epilepsy and Depression while also providing tips to fight the ebb and flow of the Cycle of Depression. Never in the history of the world has there been more people physically isolated than the […] The post 008: Epilepsy and Depression …
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This episode was originally released on Purple Day, March 26th, 2020. In it, our host and long-time uncontrolled epilepsy sufferer, David Clifford, describes why he advocates for Epilepsy Awareness and why it is so important to tell people around you that you have seizures. In this episode, we also welcome […] The post 007: Speak Up appeared first …
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My hope for this episode is to provide something that can be shared with people that do not experience seizures and illuminate a tiny sliver of the life of an epileptic. In this episode, I try to describe what I feel before, during, and after the different types of seizures […] The post 006: What Does a Seizure Feel Like? appeared first on Brain Ab…
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Are “flashing lights”, as most people think, the most statistically likely trigger for a Seizure? In this episode, I provide tips and tricks on how to avoid the triggers that are statistically the most likely to cause breakthrough seizures. To Know theyself is the beginning of Wisdom. SOCRATES Where to […] The post 005: Let’s Talk Triggers appeared…
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In this episode, I reluctantly open up about my almost thirty-year-long personal struggle with uncontrolled seizures and describe the great lengths to which I went to overcome them. I want to first thank everyone that has supported me through my decades-long adventures with Epilepsy that ultimately led to my role […] The post 004: Our Host appeared…
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In this episode, our host and long-time uncontrolled epilepsy sufferer, David Clifford, dives deep into how medical professionals from your doctors, nurses, and pharmacists classify the different types of Seizures. We also welcome a new advertiser to the show, this summer’s big blockbuster movie. If you have questions, or even […] The post 003: Cla…
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