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Вміст надано Breathe In: A Cystic Fibrosis Podcast, Gunnar Esiason, and The Salty Cysters. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Breathe In: A Cystic Fibrosis Podcast, Gunnar Esiason, and The Salty Cysters або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
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Breathe In #50 - The Lighter Side of Cystic Fibrosis
Manage episode 217715770 series 1776486
Вміст надано Breathe In: A Cystic Fibrosis Podcast, Gunnar Esiason, and The Salty Cysters. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Breathe In: A Cystic Fibrosis Podcast, Gunnar Esiason, and The Salty Cysters або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
Cystic fibrosis is a brutal, unrelenting illness, but there is a lighter side to the disease. Like anything in life, simple mistakes or seemingly very serious experiences can also be funny. Gunnar, Lea and Tiffany tell of a few times when cystic fibrosis led to uncontrollable laughter, from recovery room stories, to the "smelly side" of CF, uncomfortable conversations and a number of awkward moments. The trio also agrees that humor is an effective coping mechanism and hopes that others are able to look back on some very serious moments and laugh!
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99 епізодів
Manage episode 217715770 series 1776486
Вміст надано Breathe In: A Cystic Fibrosis Podcast, Gunnar Esiason, and The Salty Cysters. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Breathe In: A Cystic Fibrosis Podcast, Gunnar Esiason, and The Salty Cysters або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
Cystic fibrosis is a brutal, unrelenting illness, but there is a lighter side to the disease. Like anything in life, simple mistakes or seemingly very serious experiences can also be funny. Gunnar, Lea and Tiffany tell of a few times when cystic fibrosis led to uncontrollable laughter, from recovery room stories, to the "smelly side" of CF, uncomfortable conversations and a number of awkward moments. The trio also agrees that humor is an effective coping mechanism and hopes that others are able to look back on some very serious moments and laugh!
…
continue reading
99 епізодів
Усі епізоди
×This week on Breathe In, Tiffany is on her own again while Gunnar battles his way through final exams. Tiffany is joined by a new voice on the podcast, Holly Seay, 24, from Georgia, a newlywed with CF. Holly takes us through her life with CF and how she met her now husband. Prior to their wedding, Holly and her now husband never lived together. Holly talks about the adjustment period and how her husband has acclimated to the CF life. She gives advice to those that are wanting to get married. The podcast ends with Holly and Tiffany's recommendations for the week.…
On this episode of Breathe In, Gunnar takes the day off and Tiffany takes over with a returning guest, Audrey Kostelec, 23 from Washington State. You may remember Audrey from the emergency podcast we had on FaceBook Live in March. This time we talk about Audrey and her CF journey. Audrey explains how she was misdiagnosed and has recently been placed on disability. The two chat about how being on disability has helped Audrey's health in a positive way. They end the podcast with the usual fun recommendations segment (Girly ones, sorry guys!). You won't want to miss this episode!…
A mere few days following the FDA's approval of Trikafta, cystic fibrosis patients across the United States began dosing. This week's podcast looks back at Gunnar's time in the triple combo study. Think of this podcast as a follow to Gunnar's blog over on GunnarEsiason.com. Gunnar talks about both the immediate and long term affects of having been on the medication and what his hopes are for the CF community. Gunnar and Tiffany reaffirm the scientific community's commitment to a treatment for the final 10% of CF patients and a cure for all CF patients.…
Gunnar and Tiffany welcome back the podcast after a brief (unplanned!) hiatus. Tiffany announces that she started working a new job and has begun living out her goal of working full time. Gunnar talks about fighting through a round a midterms in the first quarter MBA term. The duo chat about getting their flu shots, why CF community members must adhere to flu shot recommendations from the CDC and how patients and families can be proactive during peak cold and flu season.…
After a few weeks off, Gunnar and Tiffany return to the podcast with Gunnar's girlfriend, Darcy. This time, though, Darcy puts on her social worker hat and takes the podcast through a clinical lens into the world of self care. It's established early on in the podcast that self care is a bit of a misnomer these days because of Instagram, while Darcy actually defines it as doing things that are often uncomfortable or that we avoid, and ultimately contribute to bettering our minds, bodies and spirits. The podcast is then broken down into seven buckets: 1) Saying No 2) Accepting Help 3) Practicing Self Compassion 4) Letting go of what you can't control 5) Making time for things or people that are important 6) Setting boundaries with people that bring you into their drama or dysfunction 7)Making a long list of short term and long term goals…
Tiffany is joined by Ashlee Terwilliger, 35, with cystic fibrosis and a double lung transplant survivor. The two talk about Ashlee's life growing up and how becoming a teacher affected her health and how she handled all the germs. As her health declined, she became pregnant and Ashlee takes us through being pregnant and labor with a low lung function and then ultimately needing to have a lifesaving double lung transplant. They end the podcast with awesome recommendations and advice for those wanting to have a child. You won't want to miss this!…
Olivia Duesterberg, 26 with cystic fibrosis, joins the podcast from Denver, Colorado. Olivia, like Gunnar, is fresh off a move to a new place, so this week on Breathe In, the team tackles what it takes to transition care, a routine, and everything in between when someone with CF needs to move to a brand new place. Olivia mentions that she had been consulting with the CF team in the Denver area due to a specific bacterial infection, but when she was finally ready to move to Denver's care system full time, she did so through the inpatient ward following a medical emergency. Gunnar's transition, while certainly still on going, has been less rocky, but he talks about moving over a clinical trial, meeting a new CF team and starting grad school.…
With Tiffany off for the week, Gunnar is joined by his girlfriend, Darcy, and Jack Goodwin, who dated the late Mallory Smith. Jack talks about his relationship with Mallory and her posthumously published memoir, "Salt in My Soul: An Unfinished Life". Gunnar, Darcy and Jack talk about the dynamics of what goes into a relationship with someone who might have cystic fibrosis, the risks, realities and what good often comes from them. Jack talks about his favorite part of the book and shares some memories that didn't make the final publication. Finally, Darcy and Jack offer some advice for people who might be dating someone with CF. "Salt in My Soul: An Unfinished Life" by Mallory Smith can be purchased wherever you get your books!…
Amanda Varnes, 24 with cystic fibrosis, joins Gunnar and Tiffany on the podcast for a second time. Amanda last appeared on Breathe In Podcast in November of 2018. Since then, she has been re-transplanted again, making Amanda one of the very few people in the entire world who has received three double lung transplants. Amanda talks about falling into organ rejection following and the lead up to her May transplant at Duke. Since being transplanted, Amanda has suffered from two very serious complications related to the surgery and subsequent recovery, including a brief bought of paralysis. While Amanda does stress that her complications were considered quite rare, she talks about persevering through them and her overall will to live. Amanda has since recovered and is working hard in a physical rehab program!…
Fresh off Gunnar's colonoscopy last week, the Breathe In duo talks about their experiences going through various medical procedures, and how they are able to cope with the physical and emotional hurdles that come with them. Gunnar details a brief panic attack he had on the table in the endoscopy suite, which leads Tiffany to share a story about her recent gall bladder surgery. The duo recount times when the procedures were either easier or more difficult than they had anticipated. Tiffany talks about a sinus surgery and Gunnar recalls the time an oral surgery unrelated to CF went bad!…
Carly Klassen, 22 with cystic fibrosis from Boise, Idaho, joins the podcast to talk about her digital art platform More Than Sick. Carly's Insagram account @MoreThanSick has been charging through the cystic fibrosis virtual community and features digital sketches of different women fight back against CF! Carly talks about her motivation to start More Than Sick, and her ongoing project, #thestrengthofcysterhood. Carly mentions that she has used More Than Sick as her way of opening up about her CF, and sharing artwork featuring the people who have inspired her! Carly's journey throughout the entire creative process is an amazing story, one you certainly will not want to miss!…
Cat Kurban, 22, joins Tiff on this episode of Breathe In. Cat was diagnosed with cystic fibrosis at the age of 18 years old. Cat explains to Tiff how she was diagnosed after a shoulder surgery that had been an issue for quite some time. The two talk about Cat's life changing and how her routine changed tremendously. Cat shares about making her way into the CF community and coming to terms with having cystic fibrosis so late in the game. She definitely shows how positivity and a great mindset will guide you through life changing news.…
Breathe In takes a different angle this week and responds to a current event - San Francisco's proposed ban of e-cigarettes and the popular Juul device. Gunnar notes that he has some complex feelings when he comes across a smoker or someone who uses an e-cigarette - on one hand he recognizes addiction as an illness unto itself, but the economic burden of lifestyle illness on the healthcare system is significant and difficult to look past. Tiffany relates stories of protecting herself at concerts and the time she confronted a smoker while she was on the transplant list.…
Somer Love joins Tiff on this week where the two talk about "reinventing" themselves after they both hit significant birthdays in the past month of May. Somer and Tiff talk about how they have this sense of wanting to take a new journey and start over in a way. Somer talks about going to her favorite place, San Diego, and having the ocean steer her in the right direction. Tiff wants to take this new lease and get a job, move out, and *hopefully* get married in the near future. Somer and Tiff go on about support systems and how important having good friends is to boost you to your full potential.…
After a long stretch of featuring guests on the podcast, Gunnar and Tiffany return to the show's roots and have a chat with each other. Tiffany, who just returned from Hawaii with her boyfriend, Jeff, talks about being able to enjoy an active vacation after years on the transplant list. Now that she's post transplant, though, she needs to take sun sensitivity very seriously, and talks through some of the precautionary steps she takes to prevent prolonged sun exposure. Gunnar tells Tiffany that he has been trying out different exercise classes and plans to report on the ones he thinks are best for people with CF in the coming weeks. Gunnar also mentions that the Boomer Esiason Foundation is at the tail end of peak fundraising season, and shares one of his favorite BEF memories. Gunnar and Tiffany wrap up the show with a new segment - recommends - where they each talk about something their listeners should try!…
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