Кращі подкасти про Staying Connected (2024)

1
Debbie Vaughan, sharing Josh Doss’s story with VEDS 1:15:07

28d ago1:15:07

1:15:07

Today we will be hearing from Debbie Vaughan about her experience with Vascular Ehlers-Danlos syndrome (VEDS) and her late husband, Josh’s, story with VEDS. Josh passed away not long after their son was born. Near the end of the interview, we’ll also hear how she’s seen things change for people with VEDS in the last 27 years. In the episode, we men…

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CEO of Veri: Anttoni Aniebonam 57:10

9d ago57:10

57:10

"The best companies are bought, not sold." In the latest podcast, Kyriakos is joined by @RealAnttoni, CEO of @veristable, the company that helps users discover better metabolic health, who just completed an acquisition with @ouraring. 03:55 How Veri Started11:00 The first Growth Hack12:10 The First Launch15:45 Evolution of the Product22:07 Meal Sco…

1
Melanie Case 43:39

1M ago43:39

43:39

Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 2002, a couple years after she had a thoracic aortic dissection following the delivery of her second child. This aortic dissection went undiagnosed for about two years, and after it was discovered, it led to her diagnosis with Marfan syndrome. Find more informati…

1
CEO of Prenuvo: Andrew Lacy 35:13

1M ago35:13

35:13

'If you find cancer too early, we as doctors might not know what to do with it.' In the latest podcast, we discuss with @andrewlacy, founder and CEO of @prenuvo, the company that helps find conditions before they become crises.01:30 Midlife crisis06:40 the ‘Secret Society’08:30 Quote from a doctor: ’ If you find lung cancer too early, I don’t know …

1
Nancy Billon 47:21

1M ago47:21

47:21

In this episode we’re going to talk to Nancy Billon, who was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) with a combination of her medical history and a genetic test that revealed a VUS on COL3A1. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and …

1
Hugh Cox 51:09

2M ago51:09

51:09

In this episode we’re going to talk to Hugh Cox, a member of the Vascular Ehlers-Danlos Syndrome community diagnosed just in 2022. He was first misdiagnosed with a clotting disorder. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. If you would…

1
Maggie Buckley 48:51

2M ago48:51

48:51

In this episode we’re going to talk to Maggie Buckley, a long-time member of the community who was diagnosed with hypermobile EDS when she was a child. Recently, a genetic test revealed she has the gene mutation for Loeys-Dietz type 5. If you want to know what an okapi is, check out this info here. Find more information, including support groups an…

1
Erin Langley 47:42

2M ago47:42

47:42

Erin Langley was tested for VEDS (Vascular Ehlers-Danlos Syndrome) due to some concerning family history, but her results came back as a Variant of Unknown/Uncertain Significance, or VUS. In this episode, she shares her experience with those results and how she’s found support in the meantime. Link to the articles mentioned in the interview: The kn…

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Chief Digital Product Officer of Les Mills: Amber Taylor 55:04

2M ago55:04

55:04

Amber Taylor is the Chief Digital Product Officer at Les Mills. In a discussion with Kyriakos , Amber discusses about her journey with Amazon, Nike, and joining Les Mills, the company behind the fitness classes offered in over 20,000 clubs across more than 100 countries. Chapters 00:00 Introduction and Background 03:18 Training for Marathons and Me…

1
Carlos Horn 45:42

2M ago45:42

45:42

Carlos Horn was diagnosed with VEDS (Vascular Ehlers-Danlos Syndrome) last year, in 2023. With a history of multiple aneurysms and a stroke, a doctor sent him to a vascular specialist who wanted to rule out genetic causes. In this episode, Carlos talks about the events that led to his diagnosis, how his lifestyle has changed since, and his hopes fo…

1
VP of Teamworks: Sean Harrington 1:01:14

2M ago1:01:14

1:01:14

Kyriakos is discussing with Sean Harrington , VP of Teamworks, and founder of Notemeal. Sean Harrington shares his journey from working with the New England Patriots to starting his own company, which was eventually acquired by Teamworks. He discusses the importance of technology in sports, particularly in areas like nutrition and performance track…

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CTO of Function Health: Mike Nemke 47:02

3M ago47:02

47:02

In our latest podcast Kyriakos is joined by Mike Nemke co-founder of Function Health. He discusses his background as a Green Beret and the leadership lessons he learned. He emphasizes the importance of building teams and trusting others to maximize outcomes. He also shares the founding story of Function Health, including how he met his co-founders …

1
Special: Emotional Recovery 40:21

5M ago40:21

40:21

After my recent renal dissection, kidney infarction, and iliac dissection with Vascular Ehlers-Danlos Syndrome (VEDS), I wanted to know what emotional recovery was like for others after medical events. This episode features clips of people with VEDS, Marfan, and Loeys-Dietz syndromes, sharing what emotional recovery was like for them after diagnosi…

1
John Anthony: Swim.com, WHOOP, Google Health, and Podium 59:42

5M ago59:42

59:42

In this podcast, we are joined by John Anthony, who led the teams at Swim.com, WHOOP, Google Health and others. He created and led technologies such as AI-based swim trackers, WHOOP's Live Heart Rate functionality, Google's Health connect, and many others. Chapters 00:00 Introduction 04:19 The AI wearable for swimmers 10:22 Joining Whoop and the Im…

1
CEO of Osmind: Lucia Huang 49:33

5M ago49:33

49:33

In this conversation, Kyriakos Eleftheriou is joined by Lucia Huang , CEO of Osmind. They discuss the founding story, the problem in mental health, fundraising, and many more. Chapters 00:00 Intro 03:03 Founding Story 11:31 User Feedback 21:19 The Y Combinator Experience 23:14 Go-to-Market Strategy 23:50 Tracking Patient Outcomes and Interim Feedba…

1
Reconnecting with my brother, Jacob Frederick 1:03:34

5M ago1:03:34

1:03:34

My brother, Jacob Frederick, rejoins the show. Our last interview was only a couple weeks before my recent renal artery dissection/kidney infarction and iliac dissection. In this episode, we talk about both of our experiences with those medical events in November and the aftermath. Find more information, including support groups and webinars, about…

1
Sheila Felske 35:37

5M ago35:37

35:37

Today we’re going to hear from Sheila Felske, who is joining us to share her experience with Vascular Ehlers-Danos Syndrome (VEDS), which she was diagnosed with last year. Sheila had her first carotid artery dissection soon after her first daughter was born, and then had an achilles tendon rupture after her second daughter was born. Then in 2022, s…

1
Deb Kruk 30:15

6M ago30:15

30:15

Deb Kruk was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in her mid-60s, following the loss of her 40 year old son, Brian, to an aortic dissection. They did not know Brian had VEDS when he died. In this episode, she shares that experience, processing her own diagnosis, things she loved about Brian, and more. Find more information, includi…

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CMO of Oura - Doug Sweeny 49:45

6M ago49:45

49:45

Doug Sweeny is the Chief Marketing Officer at ŌURA Health, home of the Oura Ring. He oversees the company's marketing, growth, and brand. In the latest discussion with Kyriakos, they discussed about marketing, brand, and his journey with ŌURA. Doug has led iconic brands like One Medical, Nest, Levi's, Adidas, and General Motors EV1. 0:00 - Introduc…

1
Betsy Matarrita 56:42

6M ago56:42

56:42

Betsy Matarrita was born and raised in Costa Rica, and was diagnosed with Marfan syndrome when she was a young child. Growing up, she didn’t know anyone else with Marfan syndrome, and they had to come to the US to get medical care for scoliosis as a child, when her and her family did not speak English. In this episode, she shares her medical story,…

1
CTO of Equinox: Eswar Veluri 54:15

6M ago54:15

54:15

In this conversation, Kyriakos is discussing with Eswar, the Chief Technology Officer for Equinox. They discuss Eswar's journey at Equinox and the company's technology and user experience evolution. They also delve into the role of data in enhancing the athlete experience and personalizing workouts. The conversation covers various topics related to…

1
Roe Nania 28:23

6M ago28:23

28:23

Roe Nania shares her family’s story with Vascular Ehlers-Danlos syndrome (VEDS). Roe’s brother, Angelo, was the first person diagnosed in the family, and died from an aortic dissection in 2019. After his death, more members of the family got tested and diagnosed, and it’s assumed that her father also died from VEDS. Find more information, including…

1
Kevin Kroeker 32:17

6M ago32:17

32:17

Kevin Kroeker shares his story with Loeys-Dietz syndrome, which he was diagnosed with in his 50s after a spontaneous coronary artery dissection (SCAD). His Loeys-Dietz diagnosis explained a prior event with his carotid artery, and uncovered a larger family history of Loeys-Dietz. Find more information, including support groups and webinars, about V…

1
CEO of Numan: Sokratis Papafloratos 41:55

6M ago41:55

41:55

In our latest podcast, Sokratis, Numan founder and CEO, discusses the company's evolution in the pursuit of improving Men's Health.He outlines Numan's growth, product innovations, growth channels, and many moreSokratis looks ahead to technology's potential to revolutionize healthcare with personalized insights and interventions. More about Numan ► …

1
Catching up with Tyler Farley 45:47

7M ago45:47

45:47

Tyler Farley was originally on Staying Connected in 2022 to share his story with VEDS or Vascular Ehlers-Danlos Syndrome. He returns in this episode to share his recent experience with a bowel perforation in the fall of 2023, and how he is moving forward, as well as his experience meeting other people in person with VEDS, Marfan, and Loeys-Dietz at…

1
CEO of Instalab and ex Y Combinator Partner: Adora Cheung 47:55

7M ago47:55

47:55

In the latest episode with Kyriakos, we explore InstaLab with Adora Cheung, who transitioned from personal health struggles to creating a pioneering preventative healthcare company. Adora discusses how InstaLab is altering the landscape of health diagnostics by making advanced testing more accessible and understandable for everyone. She emphasizes …

1
CEO of OK Capsule: Dr Andrew Brandeis 52:57

7M ago52:57

52:57

In this episode with Kyriakos from Terra, the CEO of the OK Capsule, Dr. Andrew Brandeis shares his journey from naturopathic doctor to founder of a company revolutionizing personalized supplements. Dr. Andrew's transition from healthcare practitioner to tech entrepreneur highlights the potential of technology to tailor health solutions. His vision…

1
Founder of MYZONE: Dave Wright 1:02:05

8M ago1:02:05

1:02:05

Dave Wright, the founder of MyZone, discusses with Kyriakos the journey of creating MyZone and the challenges of manufacturing wearable technology. He shares insights on finding the right manufacturer in China and the importance of building strong relationships. Dave also explains the unique B2B approach of MyZone, connecting consumers with fitness…

1
Founder of CORE: Wulf Glatz 40:53

8M ago40:53

40:53

In this interview, Kyriakos connected with Wulf Glatz, the founder of CORE, to discuss his wearable technology that tracks the core body temperature to optimize athlete performance. Here are some of the highlights of the conversation: Glatz explains that unlike skin temperature, which varies a lot, core temperature gives a reliable measure of someo…

1
Liam Nelson 47:39

9M ago47:39

47:39

Liam Nelson was diagnosed with Marfan syndrome when he was 11 years old. In this interview, we talk about how he handled his diagnosis, his career in film and comedy, his involvement in the Marfan community, and more. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdiet…

1
Founder of Kaged - Kris Gethin 57:18

9M ago57:18

57:18

Join Kyriakos from Terra API as he delves into an extensive interview with Kris Gethin , renowned bodybuilder and founder of Kaged Muscle. This hour-long conversation covers Kris's journey in the fitness industry, his pivotal role at bodybuilding.com, insights on biohacking, and the founding principles behind Kaged Muscle.0:00 Intro2:10 Racing moto…

1
Lauren Atherton 45:39

10M ago45:39

45:39

Lauren Atherton was diagnosed with Loeys-Dietz syndrome after an aortic dissection when she was 28 years old. In this interview, we talk about that dissection, how she’s dealt with her diagnosis, and more. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and m…

1
Michelle Lucena 43:56

10M ago43:56

43:56

Michelle Lucena was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, after two carotid artery dissections. In this interview, we talk about how these dissections affected her military career, how she’s handled her diagnosis, and how she’s held onto her passion of physical fitness. Find more information, including support groups and webinars…

1
Founding Partner at NEXT VENTŪRES - Melanie Strong 59:42

10M ago59:42

59:42

Melanie Strong shares her journey at Nike and the inception of NEXT VENTŪRES. Starting at Nike in 2002, Melanie's role evolved from managing non-e-commerce websites to spearheading Nike's digital products, including the Nike Run Club app. She recounts Nike's strategic shift in soccer, initially dominated by Adidas, and how Nike disrupted the market…

1
Taborski McClellen

10M ago

—

Taborski McClellen was diagnosed with Marfan syndrome between 12-13 years old. In the time since his diagnosis, he’s had two retinal detachments, a lung collapse, and an aortic dissection. In this interview, he talks about his story with Marfan, and his book, Living with Marfan syndrome in the Hands of GOD. Find more information, including support …

1
Founder of the Cycling Power Meter - Uli Schoberer 41:01

10M ago41:01

41:01

In this interview, Ulrich Schoberer, the founder of the cycling power meter, delves into his journey from a medical engineering student and cyclist to an innovator revolutionizing cycling training. He shares the inspiration behind creating the power meter, addressing the gap in cycling performance metrics. Schoberer details the technical challenges…

1
Jacob Frederick (Katie’s brother) 1:09:46

10M ago1:09:46

1:09:46

I was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS), in 2017. In this episode, I’m joined by my brother, Jacob Frederick, to talk about his experience with my diagnosis and hospitalizations. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.o…

1
Allison Pullins 45:05

10M ago45:05

45:05

Allison’s son, James, was diagnosed with Marfan when he was 3 years old, following a lens dislocation. James is now 8 years old, and in this episode, Allison talks about his diagnosis story, how they handle communicating Marfan with James, research, navigating the US healthcare care system, and more. Find more information, including support groups …

1
Grace Barnhart 42:29

11M ago42:29

42:29

Grace Barnhart was diagnosed with Marfan syndrome when she was 4 years old. She’s also a caregiver to her dad who has Marfan syndrome. In this episode, she talks about growing up with Marfan, getting involved in advocacy and community at a young age, medical events she’s dealt with of her own and of her dad’s, and how she lives her life as a young …

1
Founder of Inside Tracker: Gil Blander 48:36

11M ago48:36

48:36

In this podcast, we connected with Gil Blander, founder of InsideTracker, a longevity company that creates evidence-based solutions that are simple, clear, and actionable.Gil explains his personal motivations for working with longevity and how he witnessed a close family member facing mortality at a young age. He discusses his journey of studying b…

1
Mary Meyers 49:52

11M ago49:52

49:52

Mary Meyers’ daughter, Adalynn, was diagnosed with Loeys-Dietz Syndrome when she was about a year and half old. In this episode, Mary tells the story of Adalynn’s diagnosis following problems with feeding, food allergies, cleft palate, hypermobility, and more, as well as her experience as a parent learning to live with this diagnosis and become an …

1
Co-founder of ZOE - George Hadjigeorgiou 51:05

11M ago51:05

51:05

In this podcast, we connected with George Hadjigeorgiou, co-founder of Zoe, a health science company that is committed to helping people live to their fullest.George highlights how they started with the science first at Zoe and why thinking from first principles led them to conduct their own research studies instead of relying on existing knowledge…

1
Message from Katie 2:55

11M ago2:55

2:55

I (Katie) am currently the hospital with a renal artery dissection and kidney infarction. This show will take a pause, and the season will be resumed when I am feeling up to it. Thanks for all your support! SourceKatie Wright

1
Brent Tuinstra 1:02:47

11M ago1:02:47

1:02:47

Brent Tuinstra was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) in his thirties after a bowel perforation. In this episode, Brent talks about the experience with the bowel perforation, the misdiagnosis of Crohn’s that came before his VEDS diagnosis, what it felt like getting diagnosed with VEDS, and how he’s gotten involved since. Find mor…

1
Episode 18: The 'B' Word: Berlin 30:40

11M ago30:40

30:40

What makes Berlin so attractive? Has the German capital become 'normal'? Does someone really walk sheep on an abandoned airstrip? Author and broadcaster John Kampfner and RTL journalist Katharina Delling discuss Berlin's allure, British and German idiosyncrasies and a recent poll of UK peoples attitudes towards Germany in this latest episode of the…

1
Co-Founder of O2X Human Performance: Paul McCullough 46:53

11M ago46:53

46:53

In this podcast, we connected with former Navy SEAL Phil McCullough, founder and managing director of O2X Human Performance, a Boston-based organization providing comprehensive science-backed programs to elite sports teams, federal agencies, and the military.Paul talks about his motivations for joining the military at a young age and the strong cul…

1
Dominga Noe 1:03:40

11M ago1:03:40

1:03:40

Dominga Noe was diagnosed with Marfan syndrome at 9 years old following her father’s aortic dissection. Since her diagnosis, she’s become very involved in the community, and now runs the teen program as an employee of The Marfan Foundation. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at theveds…

1
Delaney Kinstner 37:46

12M ago37:46

37:46

Delaney Kinstner was diagnosed with Vascular Ehlers-Danlos Syndrome after a serious medical event 10 days after delivering her child caused her to be sedated and on ECMO for several weeks. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. If you…

1
CEO of Supersapiens: Phil Southerland 59:08

1y ago59:08

59:08

In this podcast, we spoke with the CEO and founder of Supersapiens, the company that is on a mission to use real-time glucose insights to shape the future of human performance. Phil discusses his personal motivations for starting Supersapiens as a Type1 diabetic and his love for entrepreneurship. He also gave us exclusive insights into the company'…

1
Kristen St. John 37:03

1y ago37:03

37:03

Kristen St. John, whose daughter Marcie was diagnosed with Vascular Ehlers-Danlos Syndrome, or VEDS, shares her and Marcie’s experience with diagnosis and life with VEDS, including a bowel perforation that Marcie had at 4 years old. Find more information about VEDS, including support groups and medical webinars, at thevedsmovement.org If you would …

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