))
This Mess Called MPS
Manage episode 321472231 series 3320145
Вміст надано Joe Woolworth and National MPS Society. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Joe Woolworth and National MPS Society або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
On this episode:
- In this special Bonus Episode, we wanted to introduce the dedicated individuals that will be hosting the official podcast of the National MPS Society: Our Voices.
- Terri Klein, Maureen Cote, Stephanie Cozine, and Jason Madison are here to talk about "This Mess Called MPS."
- Terri introduces the National MPS Society and explains what causes MPS and ML.
- These rare diseases collectively impact about 1 in 25,000 live births.
- Maureen shares her story of how her extended family members received an MPS VI diagnosis and when she knew she wanted to be a part of the National MPS Society's Board of Directors.
- Jason shares his story of being diagnosed as a child and living with MPS II as an adult.
- Stephanie shares how her son was diagnosed with MPS I and how she came to find an inspiring community in the National MPS Society.
- We discuss the hope that lives in this community and the vision we have for the podcast, Our Voices.
Mentioned on this episode:
The National MPS Society exists to cure, support, and advocate for MPS and ML.
If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you really like the podcast we'd appreciate you telling a friend (maybe even two).
17 епізодів
Поширити
