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Meet Zuly; A story about strength, rare disease, advocating, medical miracles, Systemic Juvenile Idiopathic Arthritis and Secondary Hemophagocytic Lymph Histiocytosis.
Manage episode 451184391 series 3553274
Вміст надано Keri Henson aka Momsday Prepper. Весь вміст подкастів, включаючи епізоди, графіку та описи подкастів, завантажується та надається безпосередньо компанією Keri Henson aka Momsday Prepper або його партнером по платформі подкастів. Якщо ви вважаєте, що хтось використовує ваш захищений авторським правом твір без вашого дозволу, ви можете виконати процедуру, описану тут https://uk.player.fm/legal.
She is more fierce than a mountain lion in Big Ben! Meet Zuly, a mom of three, a courageous advocate for her children and other parents who have children with rare diseases. From standing up to the medical industry to taking on Capitol Hill, Zuly has worked tirelessly to not only save her daughter’s life, but to make the changes necessary to save others. Her journey began when her third child was diagnosed with Systemic Juvenile Idiopathic Arthritis and Secondary Hemophagocytic Lymph Histiocytosis. Join us in the Bunker to day to discuss mama trauma, motherhood, momsday moments, Mexico, Iraq, refugee, pregnancy, Systemic Juvenile Idiopathic Arthritis and Secondary Hemophagocytic Lymph Histiocytosis, survival, anxiety, medical miracles, medical establishments, medical mysteries, rare diseases, and HOPE!
If you like this episode and want to connect other Mama Trauma Survivors to the Momsday Bunker, please like and share!
Follow the Keri Momsday Prepper on Facebook and Keri_Henson_aka_Momsdayprepper for tips and tricks on preparedness. You can reach Keri at MomsdayPrepper
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