A Childfree Man’s Perspective On Living With A Fatal Genetic Disease (With Todd Warner)

Dinky

Today, we’re talking to a very special guest: Todd Warner. Todd has been a long-time Dinky community member — but when we met him at our Portland Happy Hour in October, we knew we had to sit down to talk with him more about his life. I think it’s safe to call Todd an activity junkie: as a typical Oregonian, he was an avid hiker, biker, skier, boat enthusiast, and beyond. Unfortunately, in the early 2010s, Todd started to notice his body taking on limitations — and ultimately was diagnosed with an ultra-rare and likely fatal disease known as Valosin Containing Protein disease, often referred to as VCP. So, today we’ll be talking with Todd about his life, his experience living with VCP, and if he has any regrets about not having kids.
Follow Todd on Instagram and donate to find a cure for VCP.
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