The Charles Bonnet Syndrome podcast

#Fitness #Anguilla #Shaimond Foye

44:18

AI and Generative AI are transforming cybersecurity by enhancing threat detection and response. These technologies offer unmatched accuracy and efficiency, making them crucial for protecting sensitive data. As cyber threats evolve, integrating AI into security strategies is essential. This week, Dave, Esmee and Rob talk to Corence Klop, CISO at the Rabobank, about the expanding role of AI and Generative AI in cybersecurity, and how to begin integrating these technologies into your organization. TLDR 04:45 Rob is confused about wrong AI information for a hotel booking 08:20 Conversation with Corence 33:40 How can you identify the state of flow for your end-user in agile practices? 40:50 Going to the swimming pool and disco with your daughter Guest Corence Klop: https://www.linkedin.com/in/corenceklop/ Hosts Dave Chapman: https://www.linkedin.com/in/chapmandr/ Esmee van de Giessen: https://www.linkedin.com/in/esmeevandegiessen/ Rob Kernahan: https://www.linkedin.com/in/rob-kernahan/ Production Marcel van der Burg: https://www.linkedin.com/in/marcel-vd-burg/ Dave Chapman: https://www.linkedin.com/in/chapmandr/ Sound Ben Corbett: https://www.linkedin.com/in/ben-corbett-3b6a11135/ Louis Corbett: https://www.linkedin.com/in/louis-corbett-087250264/ ' Cloud Realities' is an original podcast from Capgemini…

The Charles Bonnet Syndrome Podcast

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This podcast is for people with Charles Bonnet Syndrome (CBS), their caregivers, and allies. It's a space to offer awareness, information, support and hope. CBS is a condition that causes visual hallucinations in people who are blind or visually impaired. Host Shaimond Foye and occasional co-hosts interview people with CBS, their caregivers, ambassadors, PhDs, and medical professionals. We also explore broader topics relevant to the visually impaired community, providing helpful information and resources. Hosts and guests share their insights and research as we all work together to make a positive difference in the lives of people living with this condition.

46 епізодів

The Charles Bonnet Syndrome Podcast

updated 15 годин тому

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46 епізодів

#Fitness #Anguilla #Shaimond Foye

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1
Episode 46: Exploring Intracortical Visual Prosthesis with Dr. Phil Troyk 36:57

15 hours тому36:57

36:57

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Phil Troyk, a professor and leading research innovator in the field of biomedical engineering at the Illinois Institute of Technology. Dr. Troyk discusses the FDA-approved Intracortical Visual Prosthesis (ICVP) project, which aims to help blind individuals perceive artificial vision by bypassing the eyes and optic nerve, directly stimulating the brain's vision centers through wireless implants. The conversation covers the history of the project, its technological advancements, participant recruitment, and the future potential of this groundbreaking research. Dr. Troyk and his team are actively recruiting participants for this Intracortical Visual Prosthesis (ICVP) project. If you or someone you know are interested in participating, email icvp@iit.edu For more information about the study, listen to this podcast episode or visit https://chicagolighthouse.org/icvp/ Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 45: Exploring Vision Restoration with Functional Neurosurgeon Dr. Nader Pouratian 39:40

15 днів тому39:40

39:40

In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond interviews Dr. Nader Pouratian, a professor and chair of neurological surgery at UT Southwestern Medical Center in Dallas. Dr. Pouratian discusses his work on experimental treatments aimed at restoring vision for individuals who have lost it, specifically through the use of neural devices and deep brain stimulation. The conversation delves into the intricacies of the Orion Visual Cortical Prosthesis Trial, touching upon the experimental process, patient outcomes, and future prospects in the field. Dr. Pouratian also emphasizes the importance of integrating technology and patient engagement to enhance research and therapeutic solutions. Whether you're interested in cutting-edge medical research or curious about innovative treatments for vision loss, this episode provides valuable insights directly from an expert in the field. For more on Dr. Pouratian https://www.utsouthwestern.edu/education/medical-school/departments/neurological-surgery/ Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 44: Living with CBS: Frank Hill Sr.'s Story 26:41

29 днів тому26:41

26:41

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Frank Hill Sr., who has experienced visual hallucinations caused by CBS for six years due to glaucoma. Frank shares his initial confusion about the condition and describes the vivid and intrusive visions he encounters daily seeing animals, unclear human figures and more. He credits his faith in God for helping him cope. Throughout the discussion, Frank discusses the persistence of these hallucinations, the methods he uses to manage them, and his belief that understanding and unwavering faith are key to dealing with CBS. The conversation also highlights the general lack of medical understanding and effective treatment for CBS, emphasizing the importance of education and support for those affected. Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 43: Bettie Stanger-Black's CBS Caregiving Experience 54:24

6 weeks тому54:24

54:24

In this episode of The Charles Bonnet Syndrome Podcast, Shaimond interviews Bettie Stanger-Black, who shares her journey as a caregiver for her mother who has CBS. Bettie recounts the initial signs of hallucinations, the diagnostic process, and her challenges as a caregiver. They discuss the importance of proper diagnosis, the emotional toll of caregiving, and various coping strategies. Bettie emphasizes the need for awareness, understanding, and support from medical professionals and the community. This episode provides valuable insights and practical advice for caregivers and those affected by CBS. Contact Bettie at bblack0266@gmail.com Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 42: The Journey and Mission of Mary Carmel's Light 1:16:31

8 weeks тому1:16:31

1:16:31

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Eva and Kevin Potts, co-founders of Mary Carmel's Light. The organization, named in honor of their mother, was recently designated a 501(c)(3) nonprofit. They share their deeply personal and challenging journey of identifying and coping with Mary Carmel's Charles Bonnet Syndrome (CBS), including medical misdiagnoses and the lack of available resources. They discuss the importance of believing and validating the experiences of those with CBS and their caregivers, as well as the urgent need for better awareness and diagnosis procedures within the medical community. The episode also highlights Mary Carmel's Light's efforts to support people with CBS and their families, advocate for a designated billing code for CBS, and educate through support groups, helplines, and community outreach. For more information about Mary Carmel's Light or help with CBS visit https://marycarmelslight.com/ or call 704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 41: Art Beyond Sight with Selene Carboni 25:30

10 weeks тому25:30

25:30

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her experiences working at the Francesco Cavazza Institute for the Blind and her research on drawings made by blind individuals at the University of Toronto. The conversation explores how visually impaired people can engage in artistic activities, the stages of drawing development, and the importance of tactile art resources. Selene also highlights the inspirational stories of her students and the importance of raising awareness and educating others about the artistic potential of the visually impaired. Contact Selene at carboniselene@gmail.com Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate We have been recognized as one of the Top 100 Visually Impaired Podcasts on the web by Feedspot. See the full list here: https://podcast.feedspot.com/visually_impaired_podcasts/…

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Episode 40: Guide Dogs 101 with Guiding Eyes for the Blind’s Melissa Carney 40:23

12 weeks тому40:23

40:23

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Melissa Carney, Community Outreach and Graduate Support Manager at Guiding Eyes for the Blind. Melissa shares insights into her role, the criteria for obtaining a guide dog, the training process for guide dogs, and her personal experiences as a guide dog handler. She discusses the application process, the importance of teamwork between the handler and the dog, and the benefits and challenges of using a guide dog. Melissa also touches on the use of AI in mobility aids, the personalized support Guiding Eyes provides to their graduates, and how interested individuals can take the first steps toward getting a guide dog. Guiding Eyes for the Blind Contact info: 888-987-2188 Clientexperience@guidingeyes.org Is a Guide Dog Right for Me? https://www.guidingeyes.org/is-a-guide-dog-right-for-me/ Contact Melissa at mcarney@guidingeyes.org Contact me at info@cbsyndromepodcast.com For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 39: Phyllis Stanger’s Journey with CBS 39:36

14 weeks тому39:36

39:36

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Phyllis Stanger, who discusses her experiences living with CBS. Phyllis describes her journey from being diagnosed with macular degeneration to later developing CBS symptoms, which include visual hallucinations. She shares the challenges she faces, such as giving up driving and coping with daily hallucinations, and offers insight into how she manages her condition. Phyllis also speaks about the role of support groups and family and emphasizes the importance of changing environments and staying involved in activities. Her story offers hope and practical advice for others living with CBS. For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org The Charles Bonnet Syndrome Podcast Merchandise https://cbsyndromepodcast.com/merchandise Donate…

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Episode 38: Exploring Art Beyond Vision with Eriko Watanabe 36:43

16 weeks тому36:43

36:43

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond talks with Eriko Watanabe, a blind artist from Augsburg, Germany. Eriko, originally from Japan, shares her compelling journey from losing her sight due to pediatric cancer to becoming an artist specializing in tactile line drawings. Despite her blindness, Eriko creates detailed artworks using raised line drawing kits and other methods, translating her sensory experiences such as touch, sound, and smell into visual art. They discuss the unique processes behind Eriko's creations, her inspirations from traveling, and the challenges and joys of being a blind artist. Eriko emphasizes the importance of staying connected to the world and being curious, offering encouragement to listeners with visual impairments to explore their own artistic capabilities. For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org Donate…

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Episode 37: Dr. John Kennedy Discusses Imagery, Perception and CBS 50:44

18 weeks тому50:44

50:44

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. John Kennedy, a psychologist and senior investigator from the University of Toronto. Dr. Kennedy shares his extensive research on imagery, perception, and the fascinating abilities of blind individuals in creating art. He discusses his encounters with various visually impaired artists, elaborating on their experiences and his findings on Charles Bonnet Syndrome. The episode delves into the nature of visual and mental imagery, and the potential therapeutic role of art and drawing for those with visual impairments. Dr. Kennedy also highlights the importance of curiosity, passion, and continuous learning in professional and personal growth. Contact Dr. Kennedy at kennedy@utsc.utoronto.ca For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…

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Episode 36: Kim Kimberley's Journey with Charles Bonnet Syndrome 57:17

20 weeks тому57:17

57:17

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Kim Kimberley who shares her personal experiences of living with CBS after sustaining a head injury from being assaulted. She discusses the nature of her hallucinations, interactions with medical professionals, and the coping mechanisms she has developed, including the use of LED lights and support from online communities. The conversation sheds light on the challenges of diagnosing and managing CBS, as well as the importance of support and self-advocacy. Contact Kim at kimikimberley@outlook.com For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…

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Episode 35: Neuro-Ophthalmologist Andrew G. Lee, MD 39:27

22 weeks тому39:27

39:27

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Andrew G. Lee, a neuro-ophthalmologist and the Herb and Jene Lyman Centennial Chair of Ophthalmology at Blanton Eye Institute, Houston Methodist Hospital. They discuss Charles Bonnet Syndrome, a condition involving visual hallucinations due to vision loss, and explore why it is often misunderstood and stigmatized. Dr. Lee shares insights on the importance of awareness, patient support, and available treatments while emphasizing the need for holistic approaches and ongoing research. The conversation also touches on the role of neuro-ophthalmologists and the complexities of diagnosing and managing this condition. Dr. Lee’s YouTube Channel https://www.youtube.com/@Neuro-OphthalmologywithDrAndre Dr. Lee’s web pages https://scholars.houstonmethodist.org/en/persons/andrew-g-lee https://www.houstonmethodist.org/doctor/andrewg-lee/ For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…

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Episode 34: CBS Researcher Aysha Kinakool 1:04:40

24 weeks тому1:04:40

1:04:40

In this episode of The Charles Bonnet Syndrome Podcast Shaimond interviews doctoral candidate Aysha Kinakool from York University, the discussion covers various aspects of CBS. Topics include the complexity of studying CBS, patient experiences, and the necessity of raising awareness and education among healthcare providers. The conversation highlights the role of advanced neuroimaging techniques, such as fMRI, in understanding brain connectivity in CBS and the need for collaborative efforts in research. Diagnostic challenges and the scarcity of research in Eastern countries are also discussed. The episode emphasizes the urgent need for effective treatments and policy changes, advocating for a holistic and interdisciplinary approach to manage CBS and improve patient care globally. Contact Aysha at ayshak@yorku.ca For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…

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Episode 33: The Vivid World of Ruth Bieber 52:11

26 weeks тому52:11

52:11

In this episode of the Charles Bonnet Syndrome podcast, Shaimond interviews Ruth Bieber, a retired social worker and artist living with Charles Bonnet Syndrome (CBS). Bieber, who was diagnosed with legal blindness at age 6, shares her journey of losing central vision and later experiencing CBS. At 67, she reflects on her 25-year experience with CBS, during which she began seeing vivid, colorful hallucinations in her 40s. Embracing her CBS, Bieber relates her experiences to the energy fields known as chakras, influencing her art, theater work, and travels. She discusses how the syndrome's visual phenomena varied depending on her environment—from the rich colors in Calgary to the light-infused geometries of New York, and her art journey that evolved through these places. Bieber talks about her involvement in the arts, how she fosters creativity despite her vision loss, and the therapeutic power of art in giving voice to people with disabilities, as chronicled in her book 'Disability Theater from the Inside Out.' Through her narrative, she highlights how the arts can be a conduit for expressing the rich tapestry of experiences shaped by CBS and encourages listeners to connect with others in the artistic community. Contact Ruth at rbieber@ucalgary.ca Buy Ruth's Book https://www.amazon.com/Disability-Theatre-Insideout-Ruth-Bieber/dp/184991947X Check out some articles that Ruth Wrote in the Sage-ing Magazine: Issue 40: Spring 2022, Page 22. BEYOND THE HORIZON - Ruth Bieber https://www.sageing.ca/sageing40.html Issue 30: Fall 2019, Page 29. TO SEE OR NOT TO SEE: THE HEALING POWER OF THEATRE - Ruth Bieber https://www.sageing.ca/sageing30.html Issue 15: Spring 2015, Page 39. UNDER THE ARGENTINE MOON: 'BLIND SPOT' RIDING IN PATAGONIA - Ruth Bieber https://www.sageing.ca/sageing15.html Issue 8: Summer 2013, Page 38. The Right to Perform - Ruth Bieber https://www.sageing.ca/sageing8.html For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk. For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com Donate…

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Episode 32: Cognitive Neuroscientist Dr. Robin Walker 38:56

28 weeks тому38:56