Living with POTS, MCAS, and EDS: Lindsay's Health Journey

The LDN Radio Show About Low Dose Naltrexone

The LDN Radio Show About Low Dose Naltrexone

22:49

Jonathan Jones is an NFL cornerback for the Washington Commanders who rose from the undrafted ranks to become two-time Super Bowl champion with the New England Patriots, a businessman, philanthropist, and licensed pilot. In 2019, Jonathan founded the Jonathan Jones Next Step Foundation in 2019, a platform dedicated to empowering youth through education, professional development, and mentorship. The foundation works to alleviate food insecurity, promote women in stem and sports, and to promote professional development in the communities where he lives. Jay and Jonathan talk about investing in the communities they live in, acknowledging the people who helped you become the person you are, and paying that same investment forward to the next generation. Episode Chapters 0:00 intro 1:24 Building local connections 4:25 Jonathan’s mentors and mentees 10:54 Jonathan’s pride in his mentees’ successes 13:04 how Jonathan chooses his causes 14:08 Jonathan’s support for girls and young women 17:19: Jonathan’s passion for flying 19:40 The Next Step Foundation 20:29 Goodbye For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/ Looking for more insights into the world of activism? Be sure to check out Jay’s brand new book, Find Your Fight , in which Jay teaches the next generation of activists and advocates how to step up and bring about lasting change. You can find Find Your Fight wherever you buy your books, and you can learn more about it at www.jayruderman.com .…

рік тому 17:53

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Lindsay shared her health journey. She discussed her experience of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mast Cell Activation Syndrome (MCAS). She described first noticing symptoms in her early 30s, leading to her POTS diagnosis in 2017 after fainting during a tilt table test. Lindsay also shared her battle with breast cancer, undergoing treatment, and successfully overcoming the challenges. In 2022, she encountered a frightening episode of rapid heart rate, trembling, and other distressing symptoms, prompting her to seek help from a functional gastroenterologist. Lindsay explained her ongoing struggle with gut issues, constipation, a dairy allergy, and skin problems, and how she has found relief through dietary adjustments and medication.

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Living with POTS, MCAS, and EDS: Lindsay's Health Journey

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The LDN Radio Show About Low Dose Naltrexone

1
Coping with Mast Cell Activation Syndrome, Functional Neurological Disorder, and Chemical Sensitivities: Elise's Journey 27:16

6 днів тому27:16

27:16

Elise from the United States, shared her experiences with mast cell activation syndrome (MCAS), functional neurological disorder (FND), and various health issues. She described dealing with symptoms since childhood, such as severe fatigue, unpredictable energy levels, infections, severe allergic reactions, and bowel issues. Elise also mentioned the psychological impact of her conditions and how she coped with chemical sensitivities, such as avoiding strong smells and educating others about the impact of scented products. She expressed that recently her chemical sensitivity has been improving, and she shared specific memories of how certain perfumes triggered her health issues. For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answers Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. https://www.ldnresearchtrust.org We have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/…

The LDN Radio Show About Low Dose Naltrexone

1
Josie's Experience Using LDN and Diet for Crohn's Disease, Asthma, and Rheumatoid Arthritis 18:19

13 днів тому18:19

18:19

Josie from the United States shared her experience of using LDN for Crohn's disease, asthma, and rheumatoid arthritis. She began using LDN after struggling with Crohn's disease for several years and undergoing multiple surgeries, as traditional medications were not effective in the long term. After researching alternative treatments, she found a specific carbohydrate diet and LDN. Surprisingly, LDN not only alleviated her Crohn's symptoms but also reduced joint pain and respiratory distress from asthma. She started taking LDN in 2007 and initially experienced euphoria and deep sleep as side effects. Before using LDN, Josie suffered from gastrointestinal pain, cramping, diarrhea, fatigue, and frequent secondary infections. She adopted a specific carbohydrate diet, which involved eliminating sugars and starches, and found it to be effective in conjunction with LDN. Although she still experiences some Crohn's symptoms, they are largely under control with the modified diet and LDN. Josie can now eat a wider variety of foods, although she still needs to be cautious with certain grains and sugars. For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answers Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. https://www.ldnresearchtrust.org We have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/…

The LDN Radio Show About Low Dose Naltrexone

1
Mark's Chronic Pain and LDN Journey 15:17

20 днів тому15:17

15:17

I'd like to share the story of our guest, Mark from Australia, who will be talking to us about chronic pain and LDN. Mark's pain journey began about 10 years ago after a snowboarding accident which led to slipped discs. Over the past 2 and a half years, he has undergone multiple treatments including heavy medications and surgeries. However, about 6 months ago, he was introduced to LDN which has significantly improved his quality of life. Before LDN, Mark's pain levels were consistently high, impacting his daily activities and sleep. Now, thanks to LDN, his pain levels have decreased, and he's able to carry out everyday tasks without as much discomfort. LDN has truly been life-changing for Mark, allowing him to regain independence and mobility. For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answers Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. https://www.ldnresearchtrust.org We have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/…

The LDN Radio Show About Low Dose Naltrexone

1
Living with Lupus and Fibromyalgia: Kerry's Personal Journey 17:55

5 weeks тому17:55

17:55

I'm Kerry from the US, I developed symptoms of lupus and fibromyalgia when I was 15. I struggled with fatigue and missed a lot of school. I was initially diagnosed with rheumatoid arthritis, but it was later changed to lupus. The treatments I received included gold salts, aspirin therapy, and eventually steroids. The steroids helped, but I experienced severe side effects, such as significant weight gain and swelling. I've been taking ibuprofen and Plaquenil, but they have their own risks and side effects. I also experienced leg pains that seemed unrelated to lupus, leading to a fibromyalgia diagnosis. LDN id deffinately helping me.…

The LDN Radio Show About Low Dose Naltrexone

1
Uncovering Dermot's Health Journey 24:37

5 weeks тому24:37

24:37

Dermot from Ireland started experiencing chronic fatigue syndrome symptoms after undergoing cancer treatment in 2018. His health declined significantly after a potential COVID-19 infection in early 2020, leading to ongoing health challenges such as nausea, fatigue, and difficulty breathing. Despite undergoing various tests and consultations, the exact cause of their symptoms remained unclear. After experiencing a brief improvement in 2022, they identified chronic fatigue mixed with irritable bowel syndrome as potential causes of their ongoing health issues and are exploring treatment options including LDN which has helpped enormously.…

The LDN Radio Show About Low Dose Naltrexone

1
Exploring the World of Compounding Pharmacy with Dr. Maria Torsiello 24:27

6 weeks тому24:27

24:27

Dr. Maria Torsiello, a pharmacist from Richmond, Virginia, was interviewed about her work at a compounding pharmacy. She discusses her journey to becoming a pharmacist and her passion for science and helping people. Dr. Torsiello also provides insights into the compounding pharmacy where she works, describing the nonsterile compounding services they offer. The conversation delves into the compounding of LDN (low-dose naltrexone) and its potential applications for various conditions, including in children and for sublingual administration. Additionally, there is mention of an upcoming conference where Dr. Torsiello's pharmacy could benefit from learning more about LDN and other pharmaceutical advancements. In the future, the pharmacy aims to continue educating providers about LDN and its potential uses, particularly in cancer treatment.…

The LDN Radio Show About Low Dose Naltrexone

1
Cheryl's Experience with Long Covid and Managing Symptoms 17:42

7 weeks тому17:42

17:42

Today, Cheryl from Australia, shares her story of LDN for long Covid that resulted in fibromyalgia and chronic fatigue syndrome. I got COVID in August 2021, which resulted in a severe infection with double pneumonia and landed me in the hospital for a month. When I arrived home from the hospital a month later, that was exactly when long Covid began. However, back then, it was still relatively new, and nobody knew much about it. It is actually very common for long Covid to set in a month after having Covid. As you mentioned, I've since been diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia, which are my worst symptoms. Would you like me to go through the treatment options? Yes, I would. I'd like to know when you were diagnosed, what treatment options you were given, and what has happened from then until now. I had to seek help from a long Covid clinic because no treatment options were offered, as the doctors simply didn't know what to do with my symptoms. I experienced severe pain throughout my upper body and in all of my joints, which I rated at 9 to 10 out of 10. They put me on a high dose of Gabapentin (2400 milligrams) as a treatment option, which helped alleviate the pain, but also caused drowsiness and fatigue. I eventually started researching and found out about low-dose naltrexone (LDN), which my doctor was willing to prescribe. As I gradually increased the LDN dosage, I was able to decrease the Gabapentin slowly as well. Over the years, my pain has decreased from 9-10 out of 10 to 1-2 out of 10, which has significantly improved my quality of life. I experienced a lot of drowsiness, which wasn't great since I was already dealing with fatigue. Those were my main side effects, although I also experienced extra fatigue. I always took it at night. I was on it for at least a year. When I was on Gabapentin, my pain levels were still at least 8 out of 10. They didn't reduce much, but they took the edge off the pain. The pain was very severe, and I had to take a high dose just to cope with it. It got me to a level where I could manage, but I couldn't do much. My fatigue was so bad that I could only go out once a week to shop for 18 months. The post-exertional malaise was so bad that for 48 hours after going out, I would sleep for 24 hours straight. I had to set an alarm to wake up and eat before going back to sleep. I have been taking Low Dose Naltrexone (LDN) for the past 18 months, and it has significantly reduced my fatigue. It took some time, but now I can actually get up and function. Before taking LDN, I was practically nonfunctional. Taking it when I wake up works best for me, giving me a bit of energy to cope with the day. It wasn't just about the duration of taking LDN, but also finding the right dosage for me. It's been a combination of factors that has allowed me to really improve. Between 8 and 12 months, I didn't experience much improvement, and I could only shower once a week. However, now I can go out every day, and my post-exertional malaise is almost non-existent. I always advise people to see LDN as a long-term solution and not to expect instant results. It took a while for me, but it has definitely been worth it. Some people may notice amazing results in the first month, but for others, like me, it takes time and patience. It's not easy to be patient when you're not feeling well, but sticking with it is well worth it. LDN has also significantly reduced my severe shortness of breath and swallowing issues. I used to struggle to swallow medications, but that hasn't happened in quite a few months. My nighttime throat spasms have also reduced in severity and frequency. Despite being diagnosed with paralyzed vocal cords and vocal cord dysfunction, a combination of LDN and exercises taught by a speech pathologist has helped me greatly. Additionally, the headaches with concurrent eye pain have stopped, which I am thankful for. I've been lucky to have only experienced fairly mild brain fog compared to others with severe long Covid. Cheryl hopes her story will give hope to others struggling with Long Covid.…

The LDN Radio Show About Low Dose Naltrexone

1
Jenn's Story of Managing MCAS, EDS and POTS 24:06

8 weeks тому24:06

24:06

Jenn from Canada shared her experience with mast cell activation syndrome (MCAS) and Ehlers-Danlos syndrome (EDS). She described experiencing symptoms of disautonomia and dislocations from a young age. Her health challenges worsened during her teen years with symptoms such as mold exposure, recurrent hospitalizations for mystery illnesses, and autoimmune-related issues. It wasn't until two years ago that she was diagnosed with MCAS after discovering hidden mold in her home. After consulting with an allergist and starting on a personalized treatment cocktail, including low-dose naltrexone (LDN), she noticed improvements in her chronic headaches, sleep, and other symptoms. The LDN helped alleviate her symptoms more than she expected and significantly improved her quality of life.…

The LDN Radio Show About Low Dose Naltrexone

1
Sunita shares her multiple conditions and how LDN has helped. 14:46

9 weeks тому14:46

14:46

Sunita from the United States who takes LDN for fibromyalgia depression dry eye and dry mouth, her journey start end of 2013 living in a house with mold. She has Thyroid issues, Sjogrn's syndrome and LDN changed her life.

The LDN Radio Show About Low Dose Naltrexone

1
Micaela’s Story of Mold Toxicity, Lyme Disease, EDS and Mast Cell Activation Syndrome. 15:21

11 weeks тому15:21

15:21

Dani from the US has undergone a gruelling and arduous health journey. Recently, she uncovered a tumor on her liver, prompting a series of tests that ultimately led to the diagnosis of mast cell activation syndrome (MCAS). Throughout her life, she has grappled with issues such as dislocating limbs, vertigo, gut problems, erratic sleep, rashes, and mental health challenges. By eliminating gluten and dairy from her diet, she has found some relief. It's evident that she has endured a great deal and has consulted numerous specialists before finally receiving her diagnosis.…

The LDN Radio Show About Low Dose Naltrexone

1
Jade's Journey: Overcoming Health Challenges with LDN 20:02

12 weeks тому20:02

20:02

ade shared her story on the LDN radio show, discussing her health struggles, including fatigue, gut issues, severe nausea, and neurological symptoms. She also mentioned being diagnosed with long COVID. Despite seeking help from various doctors and specialists, she continued to suffer. After nine months of struggling, a naturopath put her on LDN, which significantly improved her nausea. Although she started experiencing widespread pain and other symptoms later on, LDN proved to be a game changer for her. She expressed hope in figuring out her health issues with time.…

The LDN Radio Show About Low Dose Naltrexone

1
Living with POTS, MCAS, and EDS: Lindsay's Health Journey 17:53

13 weeks тому17:53

17:53

The LDN Radio Show About Low Dose Naltrexone

1
Jade's Journey with Hashimoto's and Low Dose Naltrexone 20:35

13 weeks тому20:35

20:35

Jade from South Africa talks about dealing with Hashimoto's and her journey with Low Dose Naltrexone (LDN). Jade was diagnosed with Hashimoto's in 2010, but she only discovered LDN in 2019 after stumbling upon it in a Hashimoto's Facebook group. She consulted with a functional doctor in South Africa who prescribed LDN for her. Before receiving her Hashimoto's diagnosis, Jade experienced severe hair loss, which prompted her to seek medical attention. Although she didn't exhibit typical symptoms such as weight gain, she suffered from fatigue, which she later learned was related to Hashimoto's. Initially diagnosed with an underactive thyroid, it took years before she was informed of her Hashimoto's condition. After moving to Germany in 2016, Jade's symptoms worsened, leading her to research and seek out support groups to manage her condition better. Despite making dietary changes, she found that her antibodies remained high, which motivated her to explore LDN as a potential solution. Since then, she has seen significant improvement, with her antibodies dropping to remission levels. Obtaining LDN in Germany proved to be challenging, as many doctors were unfamiliar with the medication. Ultimately, Jade continues to source her LDN from her doctor in South Africa and relies on family members to bring it to her when they visit. Jade started LDN at a low dosage of 0.5mg, gradually increasing the dose each week until she reached 4.5mg. Initially, she experienced vivid dreams and fatigue for the first few weeks. Overall, Jade's journey with LDN and Hashimoto's highlights the challenges of accessing specialized treatments and the importance of advocating for oneself in managing chronic conditions. In addition to managing her Hashimoto's with LDN, Jade continued taking LDN throughout her pregnancy. Despite some doctors advising against it during pregnancy, she did her own research and found a supportive community. She believed LDN potentially helped her from having a miscarriage and had a positive impact during her pregnancy. She had a healthy pregnancy and a smooth birth, and her baby is now three months old and healthy. She values the importance of doing her own research and seeking second opinions from doctors and is grateful for the positive experience she had during her pregnancy.…

The LDN Radio Show About Low Dose Naltrexone

1
Makiah’s Seeking Answers to Complex Health Conditions 20:27

14 weeks тому20:27

20:27

Makiah from the US, shared her health journey, which began in childhood but became more noticeable after her second pregnancy. She experienced fatigue, gut issues, and abnormal postpartum recovery. After her third pregnancy, which was difficult and ended tragically with the loss of her son, she faced persistent health challenges, including bleeding, weight fluctuations, and fatigue. Seeking answers, she was diagnosed with endometriosis, adenomyosis, insulin-resistant PCOS, adrenal insufficiency, and gut dysbiosis. Despite following treatment protocols, she still experienced fatigue and food reactions, eventually discovering a potential link to Ehlers-Danlos syndrome (EDS) and mast cell activation syndrome.…

The LDN Radio Show About Low Dose Naltrexone

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Mandi talks about LDN, MCAS, EDS, POTS and Thoracic Outlet Syndrome 16:48

15 weeks тому16:48