Tierra shares her personal experience of MCAS, autoimmune progesterone dermatitis, POTS, celiac

The LDN Radio Show About Low Dose Naltrexone

The LDN Radio Show About Low Dose Naltrexone

21:04

Step into the mysterious and visually stunning world of The Electric State as host Francesca Amiker takes you behind the scenes with the creative masterminds who brought Simon Stålenhag’s dystopian vision to life. In this premiere episode, directors Joe and Anthony Russo, stars Millie Bobby Brown and Chris Pratt, writers Christopher Markus and Stephen McFeely, and producers Angela Russo-Otstot and Chris Castaldi reveal how they transformed a haunting graphic novel into an epic cinematic experience. Watch The Electric State coming to Netflix on March 14th. Check out more from Netflix Podcasts . State Secrets: Inside the Making of The Electric State is produced by Netflix and Treefort Media.…

рік тому 21:35

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Tierra from the United States shares her personal experience of MCAS, autoimmune progesterone dermatitis, POTS, celiac

Tierra describes how she first noticed her problems after taking bee pollen for her outdoor allergies, which led to getting blister hives everywhere and heart palpitations. Despite being misdiagnosed by a walk-in clinic, Tierra took matters into her own hands and researched her symptoms, leading to a diagnosis of Mast Cell Activation Syndrome (MCAS) by her

allergist.

Tierra also discusses chocolate as a big trigger for her, giving her migraines. Linda and Tierra confidently discuss how MCAS is more common than people realize, affecting an estimated 17% of the population.

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#Linda Elsegood

Tierra shares her personal experience of MCAS, autoimmune progesterone dermatitis, POTS, celiac

The LDN Radio Show About Low Dose Naltrexone

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MP3•Головна епізоду

Tierra from the United States shares her personal experience of MCAS, autoimmune progesterone dermatitis, POTS, celiac

allergist.

301 епізодів

#Linda Elsegood

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1
Cheryl's Experience with Long Covid and Managing Symptoms 17:42

6 днів тому17:42

17:42

Today, Cheryl from Australia, shares her story of LDN for long Covid that resulted in fibromyalgia and chronic fatigue syndrome. I got COVID in August 2021, which resulted in a severe infection with double pneumonia and landed me in the hospital for a month. When I arrived home from the hospital a month later, that was exactly when long Covid began. However, back then, it was still relatively new, and nobody knew much about it. It is actually very common for long Covid to set in a month after having Covid. As you mentioned, I've since been diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia, which are my worst symptoms. Would you like me to go through the treatment options? Yes, I would. I'd like to know when you were diagnosed, what treatment options you were given, and what has happened from then until now. I had to seek help from a long Covid clinic because no treatment options were offered, as the doctors simply didn't know what to do with my symptoms. I experienced severe pain throughout my upper body and in all of my joints, which I rated at 9 to 10 out of 10. They put me on a high dose of Gabapentin (2400 milligrams) as a treatment option, which helped alleviate the pain, but also caused drowsiness and fatigue. I eventually started researching and found out about low-dose naltrexone (LDN), which my doctor was willing to prescribe. As I gradually increased the LDN dosage, I was able to decrease the Gabapentin slowly as well. Over the years, my pain has decreased from 9-10 out of 10 to 1-2 out of 10, which has significantly improved my quality of life. I experienced a lot of drowsiness, which wasn't great since I was already dealing with fatigue. Those were my main side effects, although I also experienced extra fatigue. I always took it at night. I was on it for at least a year. When I was on Gabapentin, my pain levels were still at least 8 out of 10. They didn't reduce much, but they took the edge off the pain. The pain was very severe, and I had to take a high dose just to cope with it. It got me to a level where I could manage, but I couldn't do much. My fatigue was so bad that I could only go out once a week to shop for 18 months. The post-exertional malaise was so bad that for 48 hours after going out, I would sleep for 24 hours straight. I had to set an alarm to wake up and eat before going back to sleep. I have been taking Low Dose Naltrexone (LDN) for the past 18 months, and it has significantly reduced my fatigue. It took some time, but now I can actually get up and function. Before taking LDN, I was practically nonfunctional. Taking it when I wake up works best for me, giving me a bit of energy to cope with the day. It wasn't just about the duration of taking LDN, but also finding the right dosage for me. It's been a combination of factors that has allowed me to really improve. Between 8 and 12 months, I didn't experience much improvement, and I could only shower once a week. However, now I can go out every day, and my post-exertional malaise is almost non-existent. I always advise people to see LDN as a long-term solution and not to expect instant results. It took a while for me, but it has definitely been worth it. Some people may notice amazing results in the first month, but for others, like me, it takes time and patience. It's not easy to be patient when you're not feeling well, but sticking with it is well worth it. LDN has also significantly reduced my severe shortness of breath and swallowing issues. I used to struggle to swallow medications, but that hasn't happened in quite a few months. My nighttime throat spasms have also reduced in severity and frequency. Despite being diagnosed with paralyzed vocal cords and vocal cord dysfunction, a combination of LDN and exercises taught by a speech pathologist has helped me greatly. Additionally, the headaches with concurrent eye pain have stopped, which I am thankful for. I've been lucky to have only experienced fairly mild brain fog compared to others with severe long Covid. Cheryl hopes her story will give hope to others struggling with Long Covid.…

1
Jenn's Story of Managing MCAS, EDS and POTS 24:06

13 днів тому24:06

24:06

Jenn from Canada shared her experience with mast cell activation syndrome (MCAS) and Ehlers-Danlos syndrome (EDS). She described experiencing symptoms of disautonomia and dislocations from a young age. Her health challenges worsened during her teen years with symptoms such as mold exposure, recurrent hospitalizations for mystery illnesses, and autoimmune-related issues. It wasn't until two years ago that she was diagnosed with MCAS after discovering hidden mold in her home. After consulting with an allergist and starting on a personalized treatment cocktail, including low-dose naltrexone (LDN), she noticed improvements in her chronic headaches, sleep, and other symptoms. The LDN helped alleviate her symptoms more than she expected and significantly improved her quality of life.…

1
Sunita shares her multiple conditions and how LDN has helped. 14:46

20 днів тому14:46

14:46

Sunita from the United States who takes LDN for fibromyalgia depression dry eye and dry mouth, her journey start end of 2013 living in a house with mold. She has Thyroid issues, Sjogrn's syndrome and LDN changed her life.

1
Micaela’s Story of Mold Toxicity, Lyme Disease, EDS and Mast Cell Activation Syndrome. 15:21

5 weeks тому15:21

15:21

Dani from the US has undergone a gruelling and arduous health journey. Recently, she uncovered a tumor on her liver, prompting a series of tests that ultimately led to the diagnosis of mast cell activation syndrome (MCAS). Throughout her life, she has grappled with issues such as dislocating limbs, vertigo, gut problems, erratic sleep, rashes, and mental health challenges. By eliminating gluten and dairy from her diet, she has found some relief. It's evident that she has endured a great deal and has consulted numerous specialists before finally receiving her diagnosis.…

1
Jade's Journey: Overcoming Health Challenges with LDN 20:02

6 weeks тому20:02

20:02

ade shared her story on the LDN radio show, discussing her health struggles, including fatigue, gut issues, severe nausea, and neurological symptoms. She also mentioned being diagnosed with long COVID. Despite seeking help from various doctors and specialists, she continued to suffer. After nine months of struggling, a naturopath put her on LDN, which significantly improved her nausea. Although she started experiencing widespread pain and other symptoms later on, LDN proved to be a game changer for her. She expressed hope in figuring out her health issues with time.…

1
Living with POTS, MCAS, and EDS: Lindsay's Health Journey 17:53

7 weeks тому17:53

17:53

Lindsay shared her health journey. She discussed her experience of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mast Cell Activation Syndrome (MCAS). She described first noticing symptoms in her early 30s, leading to her POTS diagnosis in 2017 after fainting during a tilt table test. Lindsay also shared her battle with breast cancer, undergoing treatment, and successfully overcoming the challenges. In 2022, she encountered a frightening episode of rapid heart rate, trembling, and other distressing symptoms, prompting her to seek help from a functional gastroenterologist. Lindsay explained her ongoing struggle with gut issues, constipation, a dairy allergy, and skin problems, and how she has found relief through dietary adjustments and medication.…

1
Jade's Journey with Hashimoto's and Low Dose Naltrexone 20:35

7 weeks тому20:35

20:35

Jade from South Africa talks about dealing with Hashimoto's and her journey with Low Dose Naltrexone (LDN). Jade was diagnosed with Hashimoto's in 2010, but she only discovered LDN in 2019 after stumbling upon it in a Hashimoto's Facebook group. She consulted with a functional doctor in South Africa who prescribed LDN for her. Before receiving her Hashimoto's diagnosis, Jade experienced severe hair loss, which prompted her to seek medical attention. Although she didn't exhibit typical symptoms such as weight gain, she suffered from fatigue, which she later learned was related to Hashimoto's. Initially diagnosed with an underactive thyroid, it took years before she was informed of her Hashimoto's condition. After moving to Germany in 2016, Jade's symptoms worsened, leading her to research and seek out support groups to manage her condition better. Despite making dietary changes, she found that her antibodies remained high, which motivated her to explore LDN as a potential solution. Since then, she has seen significant improvement, with her antibodies dropping to remission levels. Obtaining LDN in Germany proved to be challenging, as many doctors were unfamiliar with the medication. Ultimately, Jade continues to source her LDN from her doctor in South Africa and relies on family members to bring it to her when they visit. Jade started LDN at a low dosage of 0.5mg, gradually increasing the dose each week until she reached 4.5mg. Initially, she experienced vivid dreams and fatigue for the first few weeks. Overall, Jade's journey with LDN and Hashimoto's highlights the challenges of accessing specialized treatments and the importance of advocating for oneself in managing chronic conditions. In addition to managing her Hashimoto's with LDN, Jade continued taking LDN throughout her pregnancy. Despite some doctors advising against it during pregnancy, she did her own research and found a supportive community. She believed LDN potentially helped her from having a miscarriage and had a positive impact during her pregnancy. She had a healthy pregnancy and a smooth birth, and her baby is now three months old and healthy. She values the importance of doing her own research and seeking second opinions from doctors and is grateful for the positive experience she had during her pregnancy.…

1
Makiah’s Seeking Answers to Complex Health Conditions 20:27

8 weeks тому20:27

20:27

Makiah from the US, shared her health journey, which began in childhood but became more noticeable after her second pregnancy. She experienced fatigue, gut issues, and abnormal postpartum recovery. After her third pregnancy, which was difficult and ended tragically with the loss of her son, she faced persistent health challenges, including bleeding, weight fluctuations, and fatigue. Seeking answers, she was diagnosed with endometriosis, adenomyosis, insulin-resistant PCOS, adrenal insufficiency, and gut dysbiosis. Despite following treatment protocols, she still experienced fatigue and food reactions, eventually discovering a potential link to Ehlers-Danlos syndrome (EDS) and mast cell activation syndrome.…

1
Mandi talks about LDN, MCAS, EDS, POTS and Thoracic Outlet Syndrome 16:48

9 weeks тому16:48

16:48

This interview offers a detailed and introspective look into Mandi's journey with LDN, thoracic outlet syndrome, MCAS, POTS and EDS. Through her account, she delves into the intricacies of her diagnosis, the complexities of surgical interventions, and the impact of her children's medical challenges on her own health journey. Additionally, Mandi provides an in-depth exploration of how LDN has played a pivotal role in managing these intricate conditions, offering a comprehensive and informative perspective.…

1
Living with Multiple Health Conditions: Veronique's Story 19:29

10 weeks тому19:29

19:29

Veronique from Canada shared her experience of living with multiple health conditions, including MCAS, EDS, POTS, ADHD, and autism. She faced challenges with late diagnoses, frequent falls, injuries, dislocations, and gaslighting by medical professionals. Her typical day involved extreme fatigue, cognitive difficulties, chronic pain, digestive issues, and the struggle to function normally. She also experienced vertigo, fluctuating blood pressure, and difficulty eating. Veronique's story highlights the physical, emotional, and mental impact of her conditions and the challenges she faced in managing her daily life.…

1
Unveiling Health Complexities: Cindy's Journey with Hypermobility, POTS, & Genetic Predisposition 18:35

11 weeks тому18:35

18:35

Cindy, a guest on the LDN radio show, shared her remarkable health journey. She described experiencing hypermobility from a very young age and enduring a multitude of health challenges, including menstrual issues, pots, and food allergies. Her difficult pregnancies and the revelation of her genetic predisposition to certain conditions shed light on the intricate genetic component of her health issues. Through her story, she emphasized the complexities of managing multiple health conditions and underscored the significance of comprehending the genetic factors at play in her health struggles.…

1
Debbie's Journey: Managing Chronic Pain with Low Dose Naltrexone 20:51

11 weeks тому20:51

20:51

Today, we had the opportunity to hear Debbie's Chronic Pain story, a patient from the United States who is using Low Dose Naltrexone (LDN) for chronic regional pain syndrome (CRPS). Debbie recounted going back to when she was seven years old and suffered a knee injury, leading to a series of medical interventions. Despite numerous surgical procedures, the chronic pain persisted, and she endured multiple operations without finding relief. Eventually, Debbie was diagnosed with CRPS, marking the beginning of her battle with persistent pain. In her treatment process, Debbie started LDN with an initial dose of 1 milligram, which later required adjustment due to stomach-related issues. After starting on a lower dose and gradually increasing, Debbie noted an improvement in her condition. It took approximately six months for her to fully appreciate the benefits of LDN, which has helped manage her pain levels, albeit not without fluctuations. Debbie's account emphasizes the potential efficacy of LDN in alleviating chronic pain, and her testimonial underscores the importance of individualized dosing and gradual titration to mitigate adverse effects. This insight highlights the significance of personalized treatment strategies in managing chronic pain. Overall, Debbie's experience serves as a valuable anecdote for healthcare professionals and patients alike, shedding light on the complexities of chronic pain management and the promising role of LDN. For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses We have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answers Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. www.ldnresearchtrust.org We have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/…

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Navigating Life with Complex Chronic Illness: Sara's Journey 18:45

12 weeks тому18:45

18:45

Sara, shared her experience dealing with various health issues, including hypermobility, MCAS, CCI, endometriosis, and tethered cord. She explained that CCI affects the alignment of her skull and spine, causing pain and affecting her cranial nerves. Tethered cord, a newer diagnosis, is scheduled for surgery to release the condition in July. Sara has experienced symptoms since childhood, including dizziness, hand discoloration, and migraines. Her daily life is unpredictable, with varying levels of pain and difficulty recovering from injuries. Additionally, she has had allergic reactions without a clear cause. Despite the challenges, she remains resilient, working as a special education teacher and managing her health as best as she can.…

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Living with MCAS and POTS: Sara's Journey of Diagnosis and Management 19:17

13 weeks тому19:17

19:17

The LDN radio show, hosted by Linda Elsegood, featured guest speaker Sara from the US, who shared her experience of living with MCAS (Mast Cell Activation Syndrome) and POTS (Postural Orthostatic Tachycardia Syndrome). Sara discussed her diagnosis of MCAS and how her symptoms became severe at the age of 29, possibly triggered by exposure to pesticides. She also mentioned experiencing allergies, rashes, and sinus infections since childhood, indicating early signs of her condition. Sarah emphasized the importance of dietary changes and finding a supportive doctor who recommended supplements to help manage her condition.…

1
Micaela’s Story of Mold Toxicity, Lyme Disease, EDS and Mast Cell Activation Syndrome. 20:02

14 weeks тому20:02