Кращі подкасти про The Hopes (2024)

1
Episode 12: Talk to the Doc: How Can We Expand Access to HD Care? ft. Dr. Alexandra Duffy 35:25

7M ago35:25

35:25

As an individual with Huntington's Disease, a family member, or a caregiver, have you ever struggled to access the medical care that you need? Huntington's Disease (HD) is a rare neurological disease that has a worldwide prevalence of 5-10 cases per 100,000 individuals. Those affected may sometimes experience long wait times or must travel thousand…

1
Episode 11: The Importance of Advocacy 19:27

7M ago19:27

19:27

What is HD advocacy? How can people get involved, and how do people who don’t have HD in their families, but still want to help, fit in? On this episode of the HOPES podcast, we speak to Max Moon, who is the volunteer director of advocacy at the Huntington’s Disease Society of America (HDSA), and Cole Holderman, who is a former co-leader of HOPES, …

1
Episode 10: Ask an Attorney: Disability & HD 41:56

7M ago41:56

41:56

Dealing with HD means having to jump through a lot of legal hoops to get the support that you need. Today on the HOPES Podcast, we feature special guest Allison Bartlett, Esq., a licensed disability attorney who currently serves as the manager of disability programs at the Huntington’s Disease Society for America (HDSA). Allison walks us through di…

1
Episode 9: End-of-Life Care 31:41

7M ago31:41

31:41

In this episode of the HOPES podcast, we meet Dawn, who took care of her partner of 35 years, Tom, throughout his life with HD. For caregivers, looking after a loved one with HD means facing the unfortunate realities of the disease, and looking for moments of connection in the worst of times. For some, it also means grieving your loved one before t…

1
Episode 6: Susie - Triplets: An Unpredictable Ending to a Long Fertility Journey 1:02:00

2+ y ago1:02:00

1:02:00

In this episode, Emma is joined by Susie to talk about her incredible (and decade long) journey to have a second child - a story that also featured on last year’s fantastic Channel 4 documentary series: 'Baby Surgeons, Delivering Miracles'. Susie and her husband Andy were one of the couples the documentary followed, telling their rollercoaster jour…

1
Episode 5: Kelly Hunter - Recurrent Loss 54:36

2+ y ago54:36

54:36

In this episode, Emma is joined by Kelly Hunter to talk about recurrent baby loss and its long term effects. Kelly talks honestly and openly about her three losses and her difficult journey to parenthood. The episode is full of advice and coping strategies. Emma and Kelly also talk about different procedures following their 8 losses, to hopefully h…

1
Episode 4: Angela Crawley MP - Private Members Bill for Paid Miscarriage Leave 27:31

2+ y ago27:31

27:31

In this episode, Emma talks to Angela Crawley MP. Angela is an MP for Lanark and Hamilton East, a Scottish National Party politician and has served as the SNP Shadow Attorney General since 2021. Angela is taking a Private Members Bill to the UK Parliament on 3 December 2021 calling on the UK government to entitle parents who have suffered the loss …

1
Episode 3: Jolyon Dean - A Male Perspective on IVF and Fertility 53:12

2+ y ago53:12

53:12

In this episode, Emma is joined by another old university friend Jo to get a male perspective on IVF and fertility struggles. Jo talks about his role in supporting his wife Katie through their journey to parenthood but also, and importantly, how he felt (and coped) navigating the highs and the lows. And Jo also discuss the impact the Covid-19 pande…

1
Episode 2: Hannah Spicer - Miscarriage & Processing Grief. 41:22

2+ y ago41:22

41:22

In this episode, Emma is joined by her old university friend Hannah to talk about miscarriage - something they have a shared experience of. They talk about the long term effects of loss and the process of grief - Hannah didn't know how to cope with her loss at the beginning but has since found ways to find a place for her grief, and remember her an…

1
Episode 1: Emz Finch - the healing power of nature and art following baby loss 35:18

2+ y ago35:18

35:18

We're back with Season 2. In this first episode of Hopes and Dreams S2 during Baby Loss Awareness Week, Emma talks to South London artist Emz Finch about miscarriage during Covid19 - something they have a shared experience of. Miscarriage is horrendous in itself, but the pandemic has made it even more isolating. However, Emz has found healing throu…

1
Episode 8: Pamela & Yon - Cancer and Surrogacy 58:08

3y ago58:08

58:08

In the final episode of Hopes and Dreams Season 1, Emma talks to her friends Pamela and Yon about their truly inspiring story to parenthood. Pamela was diagnosed with cervical cancer and was unable to carry a baby naturally. After years of research and travelling to different parts of the world, the couple decided to have their biological baby via …

1
Episode 7: Michelle Crane - Ectopic Pregnancy, Miscarriage, IVF & PTSD 1:06:51

3y ago1:06:51

1:06:51

[TW: talking about miscarriage, ectopic loss, PTSD and suicidal thoughts] In this latest episode, Emma is joined by her colleague and friend Michelle to talk openly about two ectopic pregnancies, early miscarriage, IVF and PTSD. It's a very raw and honest chat. Michelle talks about the impact her experiences and losses have had on her mental health…

1
Episode 6: Fiona Donald - SANDS - Supporting Parents After Baby Loss 30:47

3y ago30:47

30:47

June 2021 is the charity Sands (Stillbirth and Neonatal Death) Awareness Month, which aims to shine a light on the amazing work the charity does to reduce the number of babies dying and to ensure that anyone affected by the death of a baby in the UK receives the best possible care and support for as long as they need it. To celebrate 'Sands Always …

1
Episode 5: Susie Baxter - Recurrent Loss: Grief & Hope 54:44

3y ago54:44

54:44

[TW: talking about miscarriage and loss in the second trimester] In this latest episode, Emma is joined by her friend Susie to talk openly about recurrent loss, including losing a baby in the second trimester. Susie talks movingly about her experiences and losing her daughter Beau, the care the family received from NHS staff and charity Sands, as w…

1
Episode 4: Katherine Henderson - Endometriosis & Postnatal Depression 1:06:35

3y ago1:06:35

1:06:35

In this latest episode, Emma is joined by her friend Katherine to talk about Endometriosis and how it affected Kath's life for many years. And Kath also talks for the first time (outside her inner circle) about Postnatal depression - what it was like, how she navigated it and what advice she would give others going through it, especially now with t…

1
Episode 3: Bex Ryall - Polycystic Ovary Syndrome & IVF 44:14

3y ago44:14

44:14

In this latest episode, Emma is joined by her friend Bex to talk openly and honestly about Polycystic Ovary Syndrome (PCOS), early miscarriage and IVF. While talking about a difficult fertility journey (but with a happy ending), the episode is also full of light, humour and hope. Resources: Polycystic Ovary Syndrome (PCOS) -https://www.nhs.uk/condi…

1
Episode 2: Rhiannon McDonald - Neonatal Loss and Celebrating Harris 1:00:14

3y ago1:00:14

1:00:14

In this second episode, Emma is joined by her friend Rhiannon to talk openly about neonatal loss and the very difficult subject of losing a baby soon after welcoming them into the world. Rhiannon talks movingly about her son Harris, her experience of loss, and the care the family received from NHS staff and charity Sands, who provided vital support…

1
Episode 1: Juliet McEwan - Miscarriage, Recurrent Loss & Natural Killer Cells 58:15

3y ago58:15

58:15

In this first episode, Emma is joined by one of her best friends, Juliet. Juliet talks openly and honestly about her difficult journey to parenthood, including her experiences of miscarriage, recurrent loss, natural killer cells, and much more. The episode is jam packed full of advice, coping strategies and support services, including; Tommy's www.…

1
Hopes & Dreams Podcast: Introduction 15:31

3+ y ago15:31

15:31

The journey to parenthood can be a difficult one. For many, fertility can be one of life's greatest challenges. In this series, we'll be discussing many different experiences including stories of loss and grief but also, and most importantly, stories of strength and hope. In this introductory episode, join me, Emma Gilmartin as I share my personal …

1
Episode 8: Fried Eggs - Psychedelics, Cannabis, and HD 52:27

3+ y ago52:27

52:27

In this episode of the HOPES podcast, we’re talking about the brain on drugs. The recent movements to legalize cannabis and psychedelics in the United States and other countries around the world is based in part on promising research into the potential health benefits of the drugs when used in controlled settings. Listen in to hear from a psychedel…

1
Episode 7: IVF for Huntington's Disease - Up Against Chance 52:49

4y ago52:49

52:49

Having a family isn’t an easy task, but it’s a dream that many young couples hope for. When a genetic neurodegenerative disease is part of the picture, though, what does having a family look like? Today in the HOPES Podcast, we meet with a couple who found out their HD status completely by chance - and in a pretty unusual way. HD changed not only t…

1
Episode 6: Diagnosed With Huntington's Disease As a Teen 15:37

4y ago15:37

15:37

As rare as Huntington’s Disease is, even rarer is Juvenile Huntington’s Disease (JHD). What is JHD? How is it different from HD? What is it like to have JHD? Learn about JHD and hear from a caretaker of a JHD patient on this month’s HOPES Podcast!The music heard in today’s episode was found on freemusicarchive.Podcast produced by Sammy Potter and C…

1
Episode 5: The Genie Question 33:30

4y ago33:30

33:30

If you had the power to know if you would develop a neurodegenerative disease, would you want to know? How could that choice be impacted by the dynamics of family, finances, and mental health? We talk to a young woman whose family has been impacted by Huntington's Disease and how she and her siblings have dealt with the dilemma of whether or not to…

1
Episode 4: HD And The Dust Bowl Troubadour 11:40

4y ago11:40

11:40

The HOPES podcast is back! In episode 4, we spoke with Anna Canoni, Woody & Marjorie Guthrie’s granddaughter, about how Woody’s battle against HD spiraled into the international HD community we have today. From this point forward, we plan on putting out a new episode every month.For more information on Woody Guthrie Publications, visit www.woodygut…

1
Episode 3: HD Research: RNA interference 18:29

5y ago18:29

18:29

In our third episode, the HOPES podcast talks to Dr. Lisa Stanek, Senior Principal Scientist at Sanofi, about her Huntington’s Disease research. Dr. Stanek’s paper discussed in this episode can be found at: https://www.ncbi.nlm.nih.gov/pubmed/24484067. The music heard in today’s episode was found on freemusicarchives and includes the following:“Car…

1
Episode 2: Finding the gene 6:50

5+ y ago6:50

6:50

In our second episode, the HOPES podcast follows Nancy Wexler's hunt to discover the Huntingtin gene. We used music from freesound.org and freemusic archives. Today you heard:"Slow Sad Tones" by TJ Mothy"Treasure Hunt (Instrumental)" by Simon PanruckerHuntington's Outreach Project for Education at Stanford

1
Talk About: Kingdom Hearts 3 1:17:42

5+ y ago1:17:42

1:17:42

In which Sammy and Oliver talk about Kingdom Hearts 3. Major spoiler warning.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
2-2-19: Looking Fake 4:59

5+ y ago4:59

4:59

In which Sammy and Oliver decide that diary episodes should be so much shorter.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
Talk About: "You" 40:32

5+ y ago40:32

40:32

In which Sammy and Oliver talk about the first season of Netflix's original series "You." Heavy spoiler warning. --- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-31-19: Grilled cheezes 20:56

5+ y ago20:56

20:56

In which Sammy and Oliver talk about grilled cheese sandwiches and how smart their cat is. --- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
Talk About: Kingdom Hearts 47:03

5+ y ago47:03

47:03

In which Sammy and Oliver talk about the Kingdom Hearts series and their feelings on it. For. A while. Then they get into some thoughts about the upcoming Kingdom Hearts 3. This episode might have light spoilers.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-27-19: The name game 20:37

5+ y ago20:37

20:37

In which Sammy and Oliver talk about mispronouncing names and their groceries.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
Talk About: “My Lesbian Experience With Loneliness” 37:25

5+ y ago37:25

37:25

In which Sammy and Oliver talk about the manga “My Lesbian Experience with Loneliness” by Nagata Kabi. Find it here: http://www.sevenseasentertainment.com/series/my-lesbian-experience-with-loneliness/. --- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-25-19: Strange morning 16:06

5+ y ago16:06

16:06

In which Sammy and Oliver are a little self-conscious about recording during the day.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-23-19: Nostalgia and brownies 26:21

5+ y ago26:21

26:21

In which Sammy and Oliver get really deep into missing the teen versions of themselves and what that means.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-22-19: Plannin’ 24:29

5+ y ago24:29

24:29

In which Sammy and Oliver stare at their cat as they talk about wedding planning.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-21-19: Abbreviations are for suckers 14:44

5+ y ago14:44

14:44

In which Sammy and Oliver walk home.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
1-20-19: Documentation 29:59

5+ y ago29:59

29:59

In which Sammy and Oliver begin their audio diary.--- Support this podcast: https://podcasters.spotify.com/pod/show/the-hopes/support

1
Episode 1: The HOPES Podcast 19:44

6y ago19:44

19:44

We share stories of caretakers, doctors, people with Huntington’s Disease, and others in the Huntington’s community. This podcast is run by HOPES, the Huntington’s Outreach Project for Education, at Stanford.In the first episode, historian Alice Wexler guides us through the history of Huntington's Disease. Music is from freesound.org and Free Music…

Подкасти, які варто послухати

Подкасти на тему The Hopes

Подкасти, які варто послухати

Короткий довідник