Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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Fighting sarcoidosis as well as other rare diseases.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen. Met dank aan de Letteren Faculteit van de Radboud Universiteit
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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Escape The World Thru MusiQ.
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Continuous mixes of deep house, 90s hip hop and other groovy goodness...
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this twice-weekly podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of th ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Facts are facts if you would like to share your story or be apart of the podcast email me at 1allmostrare@gmail.com
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Conversations started by The Whitworth Group
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New Simplicity Channel. Robert Bonet's Music No Published
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Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Podcast by rarebirdlit
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Welcome to the VeryRarePodcast
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Every beginning carries within it the seed of its own destruction.
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Are you ready to transform your real estate business? The RARE Agent Show is your ultimate guide to closing more deals, building wealth, and thriving as a real estate professional. Hosted by Dylan Tanaka, a multi-award-winning Realtor and coach, this podcast is where top-performing agents share their secrets and strategies to help you achieve consistent closings without the stress. Each episode delivers actionable insights through two dynamic formats: •Exclusive Agent Interviews: Dive deep w ...
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Funny and........ N O T H I N G
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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This is a podcast tutorial
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Welcome to Jacqueline Rare Antique (http://jacquelinestallone.com), the premier destination for antique collectors! Check Images: Jacqueline Rare antique Pin: https://www.pinterest.com/jacquelinerareantique/ FB: https://www.facebook.com/jacquelinerareantique/ TW: https://twitter.com/jacquelinerare Ins: https://www.instagram.com/jacquelinerareantique/
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Miles Davis pt. 1 w/ Eben and Matthew Fresta
1:49:55
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A sprawling discussion about the life of Miles Davis. Part one covers the beginning of Miles' career up until 1968. Part 2 is also available on this episode feed. Follow Eben on X https://x.com/sensitive_jockFollow Matthew Fresta on X https://x.com/newfacenhellGet your issue of Rango Tango https://cowardpunchrecords.com.au/Rare Candy on Substack ht…
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Send us a text In this episode I talk with Danielle, a parent of a daughter Elsa with PKU and children's book author. Her book Rosey Racoon Has PKU is available on Amazon, See link below. In this episode I talk with Danielle about Her daughter's diagnosis with PKU, and the fears and challenges she went through as a parent, her daughter's symptoms w…
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Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin deficiency (AATD) and Von Willebrand disease, a rare clotting disorder.Rare Care Podcast
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It’s time to officially kick off Season 11! This season, we’re diving deep into how this life affects you—the parent. From mental health to medical trauma to grief, and even hobbies, this season is all about how the experience of parenting a medically complex or disabled child shapes our lives too. We’re also launching our second annual Friends and…
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#332 - Granny's Boys & Robots
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#332 - Situations at the movies. Really cool clips. Missing tour. Service our firefighters. Granny's Beach Boys. The robot revolution.
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Earlier this year iECURE reported that an infant with the rare and deadly liver disease OTC deficiency had a complete response to its experimental gene editing therapy. It is believed to be the time that an infant was treated with an in vivo, liver-directed gene editor. The treatment restored ammonia levels in the child’s blood to normal and the ch…
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Five years of creating medicines, instilling hope, and overcoming steep challenges—all with the singular goal of improving the lives of nano-rare disease patients. Along the way, we’ve proven that WE CAN treat these patients safely and effectively, delivering significant benefit. But what else have we discovered throughout this journey? Thank you t…
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Case + Cass at tea, 2024Casey Greer and Cassandra Mendez
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God wants to bless us but sometimes we don't see or experience those blessings in our lives. Why is that? I trust this week's podcast will encourage you not to miss God's richest blessings. audreybroggi.com
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Nurse Practitioner, Janette Reyes, from the Pulmonary Hypertension Program at the Hospital for Sick Children shares her extensive experience caring for pediatric patients with pulmonary hypertension. Reyes discusses the unique challenges and developmental considerations involved in treating children from infancy through their teenage years, as they…
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Million Dollar Shift: How Mike Turner Built Wealth Through Real Estate Market Changes | RARE Agent Show
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🎙️ What if you could turn market chaos into million-dollar opportunities? In this episode of The RARE Agent Show , Dylan Tanaka sits down with Mike Turner, a real estate powerhouse who has mastered the art of thriving in any market. From navigating the foreclosure crisis to creating lasting passive income streams, Mike shares insider tips that ever…
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De Rare Jongens hebben afscheid genomen, maar we hebben nog een extra uitzending gemaakt. Daarin hoor je waarom we stopten, waarom er geen fluit zit in de muziek van Rare Jongens en wat we gaan doen met dit podcast-kanaal. Meer wetenschap kan je horen in de Universiteit van Nederland-podcast.
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In this episode of the Rare Kidney Disease Show, a panel of nephrology experts explore the latest data on sparsentan, as presented at ASN Kidney Week 2024. Dr. Hiddo Heerspink presents a post hoc analysis of the PROTECT trial comprised of patients who achieved complete proteinuria remission. Dr. Chee Kay Cheung shares interim data from the SPARTAN …
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Movie - The Phantom Carriage (1921)
1:14:27
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Part 4 of the Holiday Theme Time - January New YearIn today's episode, Mike picks The Phantom Carriage, a silent film to ring in the new year! Hosts Andrew, Rob, Eric, and Mike embark on a captivating journey back to the early days of cinema as they explore the 1921 Swedish silent film, "The Phantom Carriage." Join them as they unravel the film's p…
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Send us a text Whether it's burned bowls or the company thief nothing gets past us in our story times!Rare Frequency
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Meghan Weaver interviews Bradley Fisher, a dedicated teacher, father, and lifelong Chicagoan, about his experiences in adaptive cycling with his special needs daughter, Lillia. The discussion spans Bradley's journey from early biking adaptations for Lillia, who has GAND, to participating in inclusive bike camping adventures. They explore the proces…
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After3 years in the making, the Joint Clinical Assessment for the EU is in effect. From 12th January 2025 new cancer medicines and advanced therapy medicinal products (ATMPs) will require a JCA across all 27 member states. Join Owen and Georgie, along with guests Darren Callanan and Sam Morrison to discuss the main talking points of the JCA, and wh…
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It's early January and I'm starting a new job -- reflecting on both my early days and the days and years ahead -- while pondering what it all means with sarcoidosis lurking in the background. Show notes: Kerry Wong on The new Netflix show No Good Deed: https://sarcoidosisnews.com/columns/sarcoidosis-storyline-netflixs-no-good-deed-true-patients/ Ke…
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