Кращі подкасти про Then Podcast (2024)

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170. Celebrating The Life of Carl Erskine with Ted Green 1:02:25

6d ago1:02:25

1:02:25

The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved deeply with the Special Olympics and charities which aimed at helping people with developmental disabilities such as his son Jimmy. Carl Erskine was a MLB All-Star, World Series Champion, ally of Jackie Robinson …

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Breast Cancer and Getting It Twice 41:05

12d ago41:05

41:05

This episode is not about secondaries – that was Series 1, Episode 7. Nor is it about the fear of it coming back- that was Series 2, Episode 2. This is about when you think breast cancer is at last behind you. And then you receive the news that you have got it again. A second primary diagnosis - lightning, in the worst way, striking twice. Victoria…

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169. The Annual DSDN Retreats with Ben Hughes 59:06

13d ago59:06

59:06

This week we are fortunate to have Ben Hughes back on the podcast to discuss the Down Syndrome Diagnosis Network’s (DSDN) annual “Rockin’ Retreats” that offer our community the connection and respite caregivers truly need. Retreat information page: https://www.dsdiagnosisnetwork.org/dsdn-retreats Dad's retreat registration page: https://form.jotfor…

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Breast Cancer and Radiotherapy 40:51

19d ago40:51

40:51

There’s a lot of help and information out there for women who have to undergo chemotherapy. Perhaps there’s a bit less about radiotherapy for two reasons - it is not perceived as being as debilitating as chemo and possibly because it comes afterwards, hopefully when you are almost on the ‘home straight’. For many women it isn’t straightforward, nei…

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Breast Cancer and Surgery - Part Two 44:37

26d ago44:37

44:37

Surgery is a part of many women’s breast cancer stories and this episode puts some of your points and queries to a breast cancer surgeon who also explains why she and her colleagues make the decisions they do. Victoria is joined by a guest who felt that before she had surgery she had no idea what the results would look like- so decided to create a …

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Breast Cancer and Surgery - Part One 48:07

1M ago48:07

48:07

This is the first of two episodes looking at surgery - which is the right operation for you - what do terms like lumpectomy and mastectomy mean and should you have reconstruction? And if so, when and how? Three women share their stories with Victoria in this episode - how their fears and anxieties were overcome and how they made the decisions they …

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Breast Cancer and Boldness and Bravery 43:15

1M ago43:15

43:15

We don’t talk about ‘fighting’ the disease on this podcast but we do talk about how people are left changed by the experience of having had breast cancer. Many women decide that post-cancer they want to do something different- that from now on, it’s about experiences and living life to the full. In short, to be bold and brave. In this episode Victo…

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Breast Cancer and my unique journey with my Sister 49:04

2M ago49:04

49:04

Everyone’s cancer journey is unique and in this episode you’ll hear how Victoria’s guests demonstrate that by talking frankly about their differing responses to being told they had breast cancer. The fact that two of those guests are sisters only adds to the point. Cathy and Tracey - two siblings of seven - were diagnosed a few months apart and des…

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168. Liam's 14th Birthday: Sharing Some Insight 1:05:45

2M ago1:05:45

1:05:45

Our son turned 14 last weekend and in this episode we reflect on the joys, challenges and growth we've experienced together on this journey with Liam. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/03/09/168-liams-14th-birthday-sharing-some-insight/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our F…

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Breast Cancer and the type called Lobular 35:14

2M ago35:14

35:14

Victoria was diagnosed with her breast cancer in 2015 and she didn’t have an obvious lump. She was told she had a form of breast cancer called “lobular” and in this episode she is joined by an expert to explain what it is, how you can spot it, and what the treatment options are. Victoria’s other guests are women like her, who until diagnosis, were …

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Breast Cancer and Making Sure You Are Heard 43:40

2M ago43:40

43:40

A breast cancer diagnosis can make you feel like you have no control. Every decision is in the hands of the experts who are now taking care of you. But there is a way when your voice can be heard- that you work with the professionals who will save your life and make sure your opinion is taken on board. In this episode, Victoria talks about “advocac…

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167. A Discussion About Using The R-Word with Lynette Louise 59:26

2M ago59:26

59:26

This week we revisit our interview with Lynette Louise who is board certified in Neurofeedback. We were very interested in the science of Neurofeedback but early on in the conversation we moved to a serious discussion about the use of the r-word and the reasons why Lynette uses it. This episode may feel a bit intense for many of you and we understa…

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Breast Cancer and the Cleverly Family 46:42

2M ago46:42

46:42

How does your relationship cope when you are diagnosed with breast cancer and your partner is not only a high profile politician but he spends a lot of time travelling for his job? This special episode, from easily the grandest room we’ve ever recorded in, features Susie Cleverly, a wife and mother who was told she had breast cancer in 2021. Her hu…

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166. Finding The Right Supports Without Shame - Julie Picot 1:03:42

2M ago1:03:42

1:03:42

This week we have the wonderful Julie Picot back on the show to discuss her experience transitioning her daughter, Elyse from TK to Kindergarten. We also touch upon how very often parents feel shame when guiding their school aged children out of diapers. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2024/02/17/166-finding-the-righ…

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Breast Cancer and Sex 43:00

2M ago43:00

43:00

What does a breast cancer diagnosis mean for your sex life, now and in the future? As you digest the news that you have the disease, are you worried that your body may not look the same and how might that affect your confidence when it comes to intimacy? The Future Dreams charity gets so many questions about this, which is why this episode is neede…

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Breast Cancer and the BRCA Gene 46:47

3M ago46:47

46:47

Getting a breast cancer diagnosis is traumatic enough when it comes as a surprise. What if you know there’s a higher chance you might get breast cancer because of a genetic fault? Not only that, it might get passed on to your children. If you have close relatives who have had breast or ovarian cancer you may have a higher risk of developing the dis…

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165. Picking The Right Pediatrician with Dr. Ilona Kleiner 58:13

3M ago58:13

58:13

Dr. Ilona Kleiner has been both our children's pediatrician since birth. Today we discuss with her the importance of always seeing the whole child and how her care for Liam really isn't any different than that of a typical child. Dr. Kleiner's Bio: https://www.pamgdocs.com/copy-of-about-our-doctors-1 Recommend books: What’s Going on Down There? by …

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164. Charlotte and Riley: Not Taking No For An Answer 48:42

3M ago48:42

48:42

In this episode, we discuss Charlotte Fien’s path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has influenced him to break down barriers in his own life. It is the story of two humans creating the life they want to live and never taking no for an answe…

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163. Revisiting Patience In The New Year with Maezen Miller 55:50

3M ago55:50

55:50

Happy Martin Luther King Day! We start this new year by revisiting with our friend, Zen Buddhist Priest, Maezen Miller. We discuss having patience and letting go in order for it to all unfold. Believing and having patience can enable our children to be who they are, go where they go and do what they do, to become exactly who they are. Karen Maezen …

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162. Living In The Moment and Taking the Time to Reflect On Life 8:20

6M ago8:20

8:20

Follow Stephen while he unexpectedly flies back to Louisiana due to his mother’s illness. He reflects on the importance of experiencing all of life’s moments and truly being present. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/10/22/162-living-in-the-moment/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a l…

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161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential 30:43

6M ago30:43

30:43

October is Down Syndrome Awareness Month and in this episode, Stephen and Lori discuss another angle in your next Awareness Campaign. Some of the most important people to make aware of our community's potential are educational professionals. We as parents can advocate but it just might be our children who change the minds of those in charge of thei…

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160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey 55:17

7M ago55:17

55:17

Joining us today is Liam Starkey from The Inclusive Hub. The Hub was started in 2016 helping small groups of Autistic children around Liverpool, England take part in non-contact boxing and fitness sessions. It has now expanded and continues to empower people of all ages and abilities through exercise. Website: www.theinclusivehub.co.uk Order a tee …

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159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community 46:03

7M ago46:03

46:03

Today we are joined by Sandra Baker from the Down Syndrome Association of Los Angeles (DSALA) and Dr. Brian Skotko from the Down Syndrome Clinic To You (DSC2U) to discuss their collaboration in supporting Spanish-Speaking families that have a member with Down syndrome. DSC2U: www.DSC2U.org DSALA: www.DSALA.org DSALA Contact: (818) 786-0001 info@DSA…

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158. Best Buddies with Katelyn Quintero 1:05:38

7M ago1:05:38

1:05:38

This week we were joined by Katelyn Quintero from Best Buddies International, which is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development, and inclusive living for individuals with intellectual and developmental…

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157. Ruby’s Rainbow with Liz Plachta 1:02:14

7M ago1:02:14

1:02:14

We had such fun talking to Liz Plachta, the founder of Ruby’s Rainbow! Ruby’s Rainbow grants scholarships to students with Down syndrome who are seeking post-secondary education, including enrichment or vocational classes, and helping them achieve their dreams of higher education while spreading awareness of their capabilities and general awesomene…

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156. GiGi’s Playhouse with Nancy Gianni 1:15:43

8M ago1:15:43

1:15:43

Today, we are joined by Nancy Gianni to talk about her foundation, GiGi’s Playhouse, which provides FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages, everyday. GiGi’s Playhouse empowers families by maximizing opportunities for daily achievement and lasting acceptance and in turn, showing…

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155. Using Your IEP to Make the Most of Middle School 58:59

8M ago58:59

58:59

In this episode we give an update on our son Liam, a 13-year old in middle school, and discuss how far he has come, what supports have helped us navigate his transitions into middle school and how we are helping him find the independence every teen wants to cultivate. Citizen's Of The World Middle School: https://www.cwcsilverlake.org Episode Trans…

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154. Revisiting Our Interview with Megyn Price 1:11:45

8M ago1:11:45

1:11:45

This is our conversation with actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a positive way. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/27/154-revisiting-our-interview-with-megyn-price/2/ Please f…

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153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa 45:22

8M ago45:22

45:22

This week we revisit the story of Jad Issa, a man with Down Syndrome who is a husband, father and respected citizen. At diagnosis, parents of children with Down syndrome are immediately told all the things their child won’t do. Jad’s life shows us that these preconceptions aren’t only untrue but the very belief in them often cause limitations. As w…

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152. Revisiting The Canadian Down Syndrome Society’s Project Understood - Training Speech Recognition Technology 57:53

9M ago57:53

57:53

This episode is the entire conversation we had with Matt MacNeil and Ed Casagrande from the Canadian Down Syndrome Society concerning their collaboration with Google AI to create a database that can help train Google’s speech recognition technology to better understand people with Down syndrome. Donate your voice at: https://projectunderstood.ca Le…

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151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams 54:44

9M ago54:44

54:44

This week we are joined by Abby Brandon-Livits and Misty Adams from the National Down Syndrome Society to talk about the 2023 NYC Buddy Walk and it’s wonderful Times Square Video presentation that redefines the image of the Down syndrome community. NYC Buddy Walk website: https://give.ndss.org/event/2023-new-york-city-buddy-walk-r/e478474 National …

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150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein 1:34:05

9M ago1:34:05

1:34:05

Today we're joined again by Dr. Eric Rubenstein, an Assistant Professor of Epidemiology at Boston University School of Public Health. Eric is a researcher, a volunteer for the Special Olympics and a lifelong advocate of individuals with Down syndrome. This conversation is a round table discussion of change and evolution, progress and insights that …

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149. Down Syndrome and Alzheimer’s Research with Dr. Tom Mahan 1:27:03

9M ago1:27:03

1:27:03

Today we're joined by Dr. Tom Mahan, who specializes in Alzheimer’s research with a focus on individuals with Down syndrome. Tom is a father of three boys and his oldest son, Teddy, has down syndrome which is what sparked him into taking his already existing research of Alzheimer’s and guiding it to a focus on individuals with Down syndrome. ABC-DS…

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148. RODS Heroes - Our Interview with Brady Murray 1:15:56

10M ago1:15:56

1:15:56

This week we visit with Brady Murray of RODS Heroes, an organization meant to inspire families to answer the call to adopt children born with Down syndrome and other special abilities. Brady and his wife Andrea have seven children and it was their adopted son Cooper who brought our attention to the Murray’s advocacy though his appearances throwing …

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147. T21 Coffee - Giving Back to the Down Syndrome Community - Johan Lindborg 56:09

10M ago56:09

56:09

In this episode, we speak with Johan Lindborg, founder of t21 Coffee. We had a beautiful conversation discussing his journey with his 12 year old son Cooper and how he has transformed from the doubts he had and the darkness he felt when receiving the Down syndrome diagnosis. It is an open and honest discussion that touches on fears to which any par…

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146. Down Syndrome Diagnosis Network (DSDN) with Ben Hughes 49:42

10M ago49:42

49:42

Today we are joined by Ben Hughs to discuss the Down Syndrome Diagnosis Network (DSDN) and how it empowers new parents with online supports, information, and resources. We also talk about the in person “Rockin’ Retreats” that offer our community the connection and respite necessary, but not always utilized, on the journey for every parent and careg…

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145. A Grassroots Movement to Change the Narrative: A Conversation with Ted Green 1:01:07

10M ago1:01:07

1:01:07

Ted Green is a documentarian whose latest film, ‘The Best We’ve Got: The Carl Erskine Story’, will be airing on PBS SoCal July 4th. Ted’s film is an in-depth look at Carl Erskine, a Dodgers pitcher whose son Jimmie was born with Down syndrome 63 years ago, a time in our country’s history when segregation plagued humanity. Carl and Betty, when faced…

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144. Non-Speaking Is Not Non-Communicating - Vaish and Sid Sarathy 1:16:28

10M ago1:16:28

1:16:28

Today we are joined by Vaish and Sid Sarathy. Dr. Vaish Sarathy is a functional nutrition practitioner and science educator. She is the founder of Functional Nutrition for Kids and Plum Pudding Chemistry, both practices designed to optimize the learning potential of kids with Down syndrome and/or autism using both functional medicine and non-linear…

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143. Letting Go: A Conversation with Karen Maezen Miller 1:07:05

11M ago1:07:05

1:07:05

In this episode we speak again to Zen Buddhist Priest, Karen Maezen Miller and discuss the art of letting go, letting the answers be in the moment, and finding surrender in acceptance of that moment. Karen Maezen Miller Website: https://karenmaezenmiller.com Maezen’s books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_by…

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142. Learning From Our Mistakes: Deconstructing an IEP with Julie Picot 1:18:50

11M ago1:18:50

1:18:50

In this episode, Julie Picot shares the experience of her latest series of IEP’s meant to usher her daughter Elyse into the Los Angeles Public School system. LAUSD Complaint Response Unit Website: https://achieve.lausd.net/Page/3581 Email: EquityCompliance@lausd.net Phone: (213) 241-7682 TTY: (213) 241-2511 Directions To File A Due Process (PDF): h…

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141. Julie and Aaron Picot: The First 5 Years of Their Journey with Down Syndrome 1:02:12

11M ago1:02:12

1:02:12

In this episode we speak with Araon and Julie, parents of 5 year old Elyse, about the lessons learned, the changes seen and the realizations made from diagnosis till now. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/05/28/141-julie-and-aaron-picot/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our …

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140. Keeping Up with Bertie - An Update with Melissa Kynoch 1:14:31

12M ago1:14:31

1:14:31

In this episode we reconnect with Melissa Kynoch as her son Bertie begins primary school in Birmingham, England. You may remember that Melissa and Bertie were featured on the popular BBC Documentary Series ‘Life and Birth’. Among many things, we discuss the impact inclusion has made in Bertie’s life and the family's journey. Wouldn’t Change A Thing…

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139. Looking Back and Seeing the Effects of a Non Inclusive Environment - Indira Cruz 1:13:25

1y ago1:13:25

1:13:25

In this week's episode we have a wonderful conversation with Indira Cruz discussing the impact a non-inclusive environment had on her brother, now 50. By looking back at our past we learn from the injustices and see the consequences they had on generations of people with disabilities. Some of those lessons can be hard. This is one of them. Episode …

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138. ’Yes. No. Maybe.’ - Our Entry In The 2023 Easterseals Disability Film Challenge 29:22

1y ago29:22

29:22

This episode marks the beginning of the Easterseals Disability Film Challenge’s Awareness Campaign. It’s our 9th film and it’s taken nine years to realize the Awareness Campaign strives to tell our stories to as many people as possible and by doing that, changing the path and narrative of individuals with disabilities. Our film, 'Yes. No. Maybe.' i…

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137. Citizens of the Wold Charter Schools: Christina Aries and Maureen Lamorena-Tatsui 1:00:56

1y ago1:00:56

1:00:56

In this episode we celebrate Citizens of the World Charter Schools whose approach to inclusion was a life changing discovery for our family. We sit down with Dr. Maureen and Mrs. Aries, Co-principals of CWC, and discuss the importance of inclusion, its impact and why we as parents, if it is what is best for our student, should insist on our child’s…

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136. World Down Syndrome Day with Dr. Eric Rubenstein and his Co-Researcher Team 44:23

1y ago44:23

44:23

Happy World Down Syndrome Day 2023! In celebration of our community, we are sharing a discussion we had this month with Dr. Eric Rubenstein and his co-researcher team. Dr. Eric is an Assistant Professor in the Department of Epidemiology at Boston University and his research team is comprised of six adults with Down syndrome who engage the research …

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135. Revisiting with Children’s Hospital Los Angeles Pediatrician Dr. Mona Patel Gera 1:18:38

1y ago1:18:38

1:18:38

Dr. Mona is an attending physician in the Department of General Pediatrics at Children’s Hospital Los Angeles and an Associate Professor in the Department of Pediatrics at the Keck School of Medicine of the University of Southern California. She sat down with us to challenge the many medical myths and stereotypes surrounding children with Down synd…

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134. Your Dentistry Questions Answered - Dr. Jill Lasky 43:27

1y ago43:27

43:27

Dr. Jill Lasky discusses the importance of Pediatric Dentistry, how to introduce dental care and specifics pertaining to the Down Syndrome community. We also discuss methods and tools for parents who want to support their children in making good dental health habits. Lasky Pediatric Dental Group: https://www.laskypediatricdental.com Episode Transcr…

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133. Liam Turns 13: Let The Teenage Years Begin 43:22

1y ago43:22

43:22

This week Liam turns 13. We recorded this episode on Valentine's Day with is fitting because love is the driving force of this family. Becoming a teenager is a milestone we have been looking forward to and we are thankful for all the ups and downs that have gotten us here. Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/02/18/1…

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132. Black History Month: Revisiting Our Interview with Willie Dawkins 1:09:07

1y ago1:09:07

1:09:07

For Black History Month we revisit a phenomenal episode we had with Willie Dawkins. We honor his story and his parents who gave him the foundation of love and support he needed to find his way through an unjust world and the advocates who came before us who fought for equality and laid the groundwork for our fight for inclusion. Episode Transcript:…

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Then Podcast

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