Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen.
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RareErth Podcast explores work, creativity and entrepreneurship. Over the years we’ve all found ourselves asking that question, “What am I passionate enough about to take risks for?” RareErth podcast is a collection of insights and conversations with some of those who have heeded their creative spirit or entrepreneurial calling. Learn more at https://www.rareerth.com
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Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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Discover the extraordinary journey of living with an undiagnosed rare disease on Rare Matters Podcast. Join us as we empower, educate, and uplift each other.
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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A blockchain informational podcast. We produce an annual blockchain convention called Rare Evo.
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Fighting sarcoidosis as well as other rare diseases.
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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The Rare Elements Sports Cards Podcast
Aaron Hernandez & Jeremy Aragon, Sports Card Hobbiests, Collectors and Podcasters
We discuss the sports card hobby with our own unique takes and authentic reactions to sports card news!
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Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind. Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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Escape The World Thru MusiQ.
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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Lær mere om vin og vinens forunderlige verden mens du er på farten - dét er præmissen for denne, ikke helt traditionelle, podcast udgivet af RareWine Group. Vi har kombineret podcastformatet med det bedste fra lydbøger. Således kan du her finde vores yndlingsartikler og portrætter om de største producenter og de mest populære vinområder serveret i en række korte podcast-episoder, som du kan lytte til mens du er på farten. Bliv klogere på selveste Domaine de la Romanée-Conti, lær om hvorfor C ...
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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Conversations started by The Whitworth Group
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A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
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Facts are facts if you would like to share your story or be apart of the podcast email me at 1allmostrare@gmail.com
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Podcast by rarebirdlit
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Welcome to the VeryRarePodcast
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New Simplicity Channel. Robert Bonet's Music No Published
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Every beginning carries within it the seed of its own destruction.
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General talking of jujitsu jokes movies , music health and mind set ,fitness normal chit chat also looking at my record collection and living in my local community chatting to friends and the wife at some point and anyone who drops in at my secret matted training area The Ninja Loft . .
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Funny and........ N O T H I N G
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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This is a podcast tutorial
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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Forty Fivan is a San Francisco based DJ & record collector, highly regarded for his creative mixes, and deep collection of rare Brazilian vinyl.
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Are you facing trials? Are physical and mental challenges weighing you down on our journey? Through his experiences with the rare disease myasthenia gravis, host Stephen V. Smith shares encouragement and inspiration as he seeks to create a life of meaning and connection. "Live Life Rare" is the companion podcast to the newsletter of the same name, which can be found at liveliferare.com. Join in the conversation as Stephen helps us discover and pursue what a rare life means to each of us.
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Unmet Needs in IgAN: Burden of Disease & Long-Term Impact on Patients ft. Dr. Jonathan Barratt : 2
15:44
Overview: In this episode of the Rare Kidney Disease Show, Professor Jonathan Barratt discusses the need to take a long-term approach when managing IgA nephropathy patients. He presents data from the UK National Registry of Rare Kidney Diseases (RaDaR). During this recording you will hear Professor Barratt discussing the continued risk of progressi…
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Watch the video clips on YouTube.com/An0malyhiphop My Shop: http://DreamRare.com All My Links: http://DreamRareLinks.comAn0maly
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Self He/Himmolation
1:54:30
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1:54:30
Glen and Psi talk about Bob Marley, 420, another self-immolation, The Barefoot Contessa, Flint Dibble vs. Graham Hancock, Snowden/Assange, Women's sports, and more Rare Candy Premium Episodes https://rarecandy.substack.com/Merch Store https://rare-candy-industries.myshopify.com/Rare Candy on Apple, Spotify, Rumble, Youtube, X, Instagram https://bea…
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Voor de recreatieve drugs- en drankgebruiker was de Romeinse tijd een walhalla! Alles was legaal. Geen war-on-drugs, laat staan (lokale) machthebbers die drugs uit de criminaliteit wilden halen. Zolang je je maar gedroeg, mocht alles bij de Romeinen. Olivier gebruikt zelf nauwelijks, maar weet wel waar de Romeinen hun drugs haalden. En oh ja, we he…
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Gina Mundy is an attorney specializing in childbirth cases. For over 20 years, her focus has been investigating and analyzing mistakes that arise during labor and delivery. She has spent countless hours meticulously scrutinizing childbirth cases, conducting interviews with delivery teams, and thoroughly examining medical records to understand every…
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In this episode, Joellen Brown shares her experience with pulmonary hypertension (PH) on the 15th anniversary of her diagnosis. Joellen was born with a hole in her heart and had her first open heart surgery at the age of two and a half. She believes she may have had PH since birth, but was not aware of it due to limited research in the 1950s. Joell…
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Joining me today on the FSr Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod, the most promising candidate to become the first drug developed specifically to fight sarcoidosis. Sanjay joins the podcast from Brazil, just one of the countries around the world, where the dr…
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The Song Chapter 8 - And They Lived Happily Ever After
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The only way a couple can truly live "happily ever after" is if they live their lives in obedience to the Lord. The bride has learned her loyalty is to her husband, and she wants everyone to know. She wants the world to know there is no way any other man can get to her, can steal her heart, and steal her affections. She stands with her husband, no …
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My Story: LIving with an Undiagnosed Rare Disease and Winning The Genetic Lottery
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Introducing the inaugural episode of Rare Matters Podcast, where host Mikey Stone courageously delves into his personal odyssey living with an undiagnosed rare disease. In this groundbreaking debut, Mikey offers an intimate glimpse into his profound medical journey, unraveling the complexities of his diagnosis quest like never before. Through candi…
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Just another rant session from your favorite lesbian! I want to hear from single men and single women about what you deal with while dating today! please reach out if you are single! follow me on social media! you know you want too! Intro music Please consider supporting the show! Support the showAvee
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#291 - Mercury T-Bone
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#291 - Infected mouth. T-bone goes too far. Heidi learns a difficult word. The ins & outs of conjoined twins. Uncomfortable altercation. Stoned fear. Gary Human rules. Quiet On Set. --- Support this podcast: https://podcasters.spotify.com/pod/show/rareformradio/support
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157: Friendships with People Who Don’t Have Disabled Kids w/ Jillian Arnold
1:12:34
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Friendship, especially with those who don’t have disabled children, gets more complicated once you’ve had your own child with disabilities. It’s not necessarily fair, but it doesn’t change the fact that we often end up interacting differently with friends we had before our children were born. In this episode of The Rare Life, I’m joined by Jillian …
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On this episode of Raising Rare we talk with Stacy Lloyd, a rare disease patient and board certified patient advocate. Stacy has dedicated her life, even much of her free time to healthcare in one way or another. She currently works at the American Medical Association, previously at Saavy Co-op, and is on the board of the VHL Alliance. After being …
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Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D.
48:53
Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare"…
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91. doctors at a bar, cute lab mice, & dancing dinosaurs: HPS conference recap
1:20:44
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hi hello hey, it’s springtime, which also means we get to recap one of our favorite things: the annual Hermansky-Pudlak Syndrome family conference! Back in 2021, we explained this very unique conference before back in episode 16 (!), so we recommend giving it a listen if you haven’t already. We love to recap these special times together like we did…
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118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association
7:58
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases.Rare Care Podcast
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Rare Connection Episode 6: Calciphylaxis and Multiple Endocrine Neoplasia Type 1
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Dubbed the man who died twice and Hod brought back to life, Kevin Hills Story appears in 45 national and international Newspapers and Magazines. Listen along as I talk with Kevin about his medical conditions Calcifylaxis and Multiple Endocrine Neoplasia Type 1(MEN1). You can see the full video on YouTube on my channel Rare Chef also as well as many…
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The Bespoke Gene Therapy Consortium's New Regulatory Playbook, feat. The Foundation for the National Institutes of Health and Taylor's Tale
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In this episode of the podcast we talk with Drs. Julie Gerberding and Courtney Silverthorn from the Foundation for the National Institutes of Health (FNIH). They're bringing us updates on the Bespoke Gene Therapy Consortium's new regulatory playbook that is designed to help get certain types of genetic therapies for rare diseases approved and avail…
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Movie - Henry: Portrait of a Serial Killer (1986)
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I've Been Meaning to Watch That! RCMS rounds out this theme round with Movies that are on our proverbial list, but we haven't gotten around to watching. Mike picks Henry: Portrait of a Serial Killer. The 1986 movie has roots in the original home city of the Rare Cuts Media Society. It stars Michael Rooker as Henry a kind of fictional serial killer,…
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Welcome to this month's episode of Let’s Talk Rare: The Life Science Podcast brought to you by Partners4Access. Host Georgie records this episode at the World EPA Conference in Amsterdam. She holds a panel discussion with Juliette Sinclair-Spence, Sandrine Ruiz, Neil Grubert, and Seema Sondhi, and together we shared our experiences at the EPA confe…
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The Last Episode
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We unfortunately are shutting down the podcast. We appreciate any of you that listened to us talk sports cards over the past few years! It was a blast doing this pod with my great friend and the many amazing guests we had. THANK YOU to all the supporters and stay in touch through our socials! Instagram: https://www.instagram.com/rare_elements1/ Twi…
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The small patient populations of rare diseases, the limited natural history of these conditions, and the lack of long-term experience with new treatments all contribute to the difficulty in determining the value of rare disease therapies. The issue can be further complicated by whether value is calculated in a single payer system, or a multi-payer …
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Rand sits down with Willayna Banner, Head of Growth & Innovation at Microsoft to discuss how traditional finance is navigating blockchain technology! Follow Willayna: https://www.linkedin.com/in/willayna-banner/ Learn more about Rare Evo at https://rareevo.io/ Follow us on Twitter: https://twitter.com/RareEvo Follow us on Instagram: https://www.ins…
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