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As part of the I AM A VOICE for Epilepsy Awareness™ campaign, the Voice Epilepsy™ podcast series goes over a variety of topics related to epilepsy, including medications, treatment, law, employment surgery, mental health, stress and stigma, among many others. Whether you are a person living with epilepsy or you have a personal or professional interest in epilepsy, the Voice Epilepsy™ podcast is for you! Find us on Podbean and everywhere else that podcasts are found!
 
Epilepsy Advocate Radio is one of the many resources offered by Epilepsy Advocate—a community of people and their families living with epilepsy. Epilepsy Advocate Radio provides inspirational stories and commentary from people living with epilepsy in a series of individual interviews, led by Epilepsy Advocate Chris Maxwell. The second season of Epilepsy Advocate Radio will focus on an important theme, “OK is Not Good Enough!” meaning that people living with epilepsy should feel like they are ...
 
Epilepsy Talk Radio is a service of epilepsy.com sponsored by the Epilepsy Foundation. Listen here for interviews with leading research and healthcare professionals about epilepsy-related topics. The Epilepsy Foundation, a national non-profit with 48 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The mission of the Epilepsy Foundation is ...
 
This show is for anyone who is raising a child with neurological differences. Raising a child with autism and epilepsy like my daughter Remy, I have learned quite a few lessons about the special needs world and the evolution of growth as a mom. In this show, we discuss all of it. Parenting, marriage, the autism world, epilepsy world and everything in between. Welcome, I am so glad you stopped by
 
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Chuck Carmen joins us on the Voice Epilepsy™ podcast as host Kim Davidson, the CEO & Executive Director of the BC Epilepsy Society and the Founder of the I AM A VOICE for Epilepsy Awareness™ campaign, interviews Chuck Carmen, the Executive Director of the Epilepsy Association and the founder of EpilepsyU and the EpilepsyStore to discuss all of the …
 
In this episode of the Voice Epilepsy™ podcast, host Kim Davidson, is joined by Registered Psychologist and PhD level Pediatric Neuropsychologist, Dr. Sarah J. Macoun to discuss the Dino Island research intervention from the University of Victoria (UVic) Dino Island is a cognitive intervention designed to improve attention and executive function ab…
 
In this episode of the Voice Epilepsy™ podcast, host Kim Davidson, is joined by Psychologist, Dr. Patrick McGrath and Research Assistant, Chaya Seale from the IWK Health Centre to discuss the Strongest Families Neurodevelopmental Study (part of the CHILD-BRIGHT Network). The Strongest Families Neurodevelopmental Program, “Parents Empowering Neurodi…
 
In this episode, the host of our podcast, David Clifford, talks about Personal Independence. He describes how we can maintain it while also staying safe. Though losing one’s driver’s license is frustrating, personal independence is just more than having the privilege to drive. A level-four Epilepsy Center has all the things that people need to lear…
 
"I have many heroes and here is a special one … tens of millions worldwide know her! She's been honoured by the Queen, NASA and dignitaries from around the world … modest, humble, kind and Canadian. She is Cassidy Megan, Founder of International Purple Day® for Epilepsy Awareness."-Kim Davidson, Voice Epilepsy™ Podcast Host Cassidy Megan joins us o…
 
In this episode, we describe Responsive Neurostimulation for Seizures (or RNS) and the RNS System created by NeuroPace Inc. Mike McKenna from NeuroPace Inc. generously comes on the show to describe his own experience with The RNS System. Though RNS sounds a lot like VNS, the two technologies are quite different. Does the RNS System Work? The NeuroP…
 
This episode includes the basics of Epilepsy. Have you ever asked yourself, if I had the chance to give advice what would I say? In this episode, the host of our Epilepsy podcast, David Clifford, goes back in time to 1991 to give his former-self advice about Epilepsy and seizures. Are You New to Epilepsy? You should know that it affects a little mo…
 
The EEG (or Electroencephalography) has become the quintessential tool for Neurologists (or Epileptologists) to determine what is going on in our heads. It measures the tiny electrical changes in our brain. Neurologists arrange the data in a montage so it can be inspected. A trained Neurologist can use the EEG data to determine the origination of o…
 
It's almost March which means Purple Month and International PURPLE DAY® for Epilepsy Awareness will soon be here! In this episode of the Voice Epilepsy™ podcast, host Kim Davidson, the CEO & Executive Director of the BC Epilepsy Society and the Founder of the I AM A VOICE for Epilepsy Awareness™ campaign, discusses how members of the global commun…
 
Have you ever thought about creating a fundraising event for your local Epilepsy Awareness charity? You should! We invite Josh Green (Twitter @JoshGreen321) from Epilepsy Foundation Eastern Pennsylvania to tell us about their NOLA-Themed-Virtual-Gala on March 5-7, 2021. He also provides some handy tips so you can get your own virtual gala ready for…
 
In this episode, we celebrate some stories of Presidents whose lives were entangled with seizures or Epilepsy. Were you motivated by the stories of the Presidents described in this episode? We would love to hear any comments you have. You can always reach out to us via email at social@brainablaze.com or via Twitter @BrainAblaze. Thank you so much f…
 
In this episode, Christin Godale comes on to the show to provide advice to families that include students looking to transition from high school to University. The transition from high school to university is hard on anyone that tries it. When one add Epilepsy or seizures the transition becomes even more complicated. Christin Godale Christin Godale…
 
Have you ever wondered how anti-seizure medications are discovered? In this episode, we walk you through the different generations of anti-seizure medications and tell the stories behind some of the most notable meds. We really appreciate you listening to our show. Without you, we could raise Epilepsy awareness. The National Institute of Neurologic…
 
In our Triggers episode last season, we covered many of the common Triggers that affect our Epilepsy community. In this episode, we provide tools that anyone can use to discover which Triggers affect their seizures. There are literally thousands of possible Triggers for our seizures. One can go mad thinking of the possibilities. Discovering which T…
 
In this episode, we argue that Caretakers (or carers) deserve the right to be full-fledged members in our Epilepsy Community. “He takes care of me more than I could ever take care of him.” – Angelina Simms @angelinasimms While we can never truly describe what a seizure feels like to a person who has never had one, carers (and especially Carers of s…
 
Every country (and state) treats Cannabis (or medical marijuana) differently. This has led to many questions from many people in our Epilepsy community regarding the potential use and efficacy of cannabis to reduce our seizures. In this episode, we try to clear up questions regarding cannabis and its future in […] The post 041: The Cannabis Debate …
 
Welcome back to Season 2. In this episode, our host, David Clifford, walks through the vision for the newest season of the Brain Ablaze Epilepsy Podcast. We’re looking to help even more people this year by providing content targeted to a wider audience. Can you help us by providing a […] The post 040: Welcome to Season 2 appeared first on Brain Abl…
 
Our podcast is still on hiatus until January 7, 2021, but we want to wish you all a wonderful holiday season. We hope you are safe, happy, and of course, seizure free. Thank you so much for the support during Brain Ablaze’s first year. Contact Us If you have any […] The post BONUS: Holiday Special (2020) appeared first on Brain Ablaze.…
 
Are you suffering right now? I want to talk about this because it's been top of mind as I look out into the world. Civil unrest, racial divide, a pandemic that's costing hundreds of thousands of deaths. Jobs lost, families fearing eviction, schools out, kids home, loved one's dying or being sick, and there's not much we can do about it. I've strugg…
 
There are so many people that contributed at multiple levels to make Brain Ablaze’s inaugural year so remarkable. We just want to take a moment to say, “Thank You!”. Here are just a few that made the tip-top of the list in no particular order. Jo Mackenzie Jo is Brain […] The post 039: 2020 in Review appeared first on Brain Ablaze.…
 
This podcast focuses on the use of cannabidiol (CBD) as a potential epilepsy therapy option, including the current research behind CBD, how it can be used as a treatment option for epilepsy, and what is known about CBD and its side effects and indications featuring the expertise of Dr. Chantelle Hrazdil, MD, FRCPC who is an adult neurologist and ep…
 
We at Brain Ablaze are not medical professionals. Instead, we rely on Seizure First Aid information from the Center for Disease Control and Prevention, or the CDC. Here’s an overview of what they have on their site, Seizure first aid is critically important because of just how often seizures occur. […] The post 038: Seizure First Aid appeared first…
 
November is National Epilepsy Awareness Month in the U.S.! The Epilepsy Spectrum is celebrating by sharing your stories all month long! Mike Gurash is now seizure-free after his long journey with post traumatic epilepsy! Learn about his holistic, natural approach to improving his brain health!Tiffany Webb
 
This podcast focuses on the cognitive aspects of living with epilepsy including an overview of cognition, causes of cognitive problems in epilepsy, and practical tips for people living with epilepsy to protect brain health and compensate for cognitive difficulties featuring the expertise of Dr. Jing Ee Tan, PhD, ABPP-CN, who is a board-certified cl…
 
In our third (and last) episode in this series on careers, we argue that Epilepsy shouldn’t stop any of us from having a meaningful career that we also love. There are plenty of careers that just don’t seem a great fit for people with Epilepsy, but that doesn’t mean there […] The post 037: Careers – Fired Up! appeared first on Brain Ablaze.…
 
This podcast focuses on the use of the ketogenic as a potential epilepsy therapy featuring the expertise of Dr. Linda Huh, MD, FRCPC – a pediatric neurologist and director of the Ketogenic Diet Program at British Columbia Children’s Hospital – and Lawren Fischer, BSC, RD – a registered dietician at the Ketogenic Diet Program at British Columbia Chi…
 
Have you ever asked, “When is the right time to tell a prospective employer about my Epilepsy?”. In this episode, our host, David Clifford, helps to answer that very question by telling the story of his worst technical interview experience. We know that covid-19 still ravishes economies around the world. […] The post 036: Careers – Not If, but When…
 
Have you been recently diagnosed with epilepsy? Are you a family member, friend or loved one of someone living with epilepsy and wondering how your daily life will change due to epilepsy? Are you an employer who has an employee with epilepsy? Are you a teacher or professor who has a student with epilepsy in your class? Are you a health care provide…
 
In this episode, we help you navigate the Reasonable Accommodations negotiation process by giving you tips regarding how to talk to your employer about your Epilepsy. When people with Epilepsy in the United States start a conversation about careers, one of the first things that will be mentioned is the […] The post 035: Careers – Reasonable Accommo…
 
VNS or (Vagus Nerve Stimulation) can be a new tool for you to control your seizures. In this episode, we invite the author of Vivien’s Rain: My Daughter’s Battle With Epilepsy, Mike Knox, to the show to help us learn more about VNS and how VNS has changed his family’s […] The post 034: VNS (with Mike Knox) appeared first on Brain Ablaze.…
 
In this episode, we invite French Dietician Matthew Cress to the show to help clear up some of the questions that we have about the Ketogenic diet. Initially only reserved for people with intractable (or medical-resistant) Epilepsy, the Ketogenic diet is gaining popularity for all people with Epilepsy. The Ketogenic […] The post 033: Ketogenic Diet…
 
In this episode, our host, David Clifford, tries to provide context around the statement that every person new to Epilepsy seems to make, “I just want a normal life!”. The process of adapting to Epilepsy is tough and often long. One thing that hinders us in the search for true […] The post 032: What is Normal? appeared first on Brain Ablaze.…
 
In this week’s episode, we invite Dr. Wesley Kerr, MD, PhD from the Neurology department at the University of California in Los Angeles onto the show to explain the finer details of Functional Seizures (or Dissociative Seizures). What are Functional (or Dissociative Seizures)? As Doctor Kerr described, one of the […] The post 031: What’s In a Name?…
 
On this Q&A episode of the podcast, I am responding to a question I got on Instagram that was really really good! It's all about how offended we are when we hear the R word. In the special needs arena, that is very hurtful. I have a lot of thoughts about this because it's something I’ve struggled with over the last few years, and I’ve finally come …
 
In this episode, we’re going to continue from our last episode and exploration of Stress and Anxiety. Our host, David Clifford, describes what he calls the Stress Seizure Spiral then gives you the tools to be able to recognize you’re in it and how to safely get out. Supporting Epilepsy […] The post 030: Stress Seizure Spiral appeared first on Brain…
 
In this episode, we cover Stress and Anxiety, the differences between them, and how to combat both to improve your life. Studies have shown that the incidence of Anxiety Disorders in people with Epilepsy is almost two-fold than in the general public. In our Triggers episode, we covered that all […] The post 029: Stress and Anxiety appeared first on…
 
In this episode, our host, David Clifford, gives an update regarding Brain Ablaze and reluctantly asks for your help. He reveals a vital secret that could affect the future of Brain Ablaze. We Need Your Help Unfortunately, we cannot pay. Everything we do is voluntary to help those with Epilepsy. […] The post 028: Coming Clean and Moving Forward app…
 
In this episode, it's going to be a little different. I have had the idea of adding a second episode a week. I get a lot of questions from people, a lot of questions that are really good and important to me and to the special needs community, so I really want to discuss them with all of you. In this episode, and for future Q&A's, I am just going to…
 
Today we are talking about acceptance. It is my biggest dream for every parent that has a child with special needs because what you can do with acceptance can change the world. You cannot be the best, most effective, and most loving parent until you get to this phase. The journey is you discovering what that purpose is. And I believe that your chil…
 
When my daughter Remy was diagnosed with autism, I had ALL the feels. I struggled and I felt alone. I didn’t know how I was going to be the kind of mother that Remy needed, and I didn't understand why she had special needs. How could God do this to a child? Why did God choose me? What did I do to deserve this? But I had SUCH a radical transformatio…
 
In this episode, our host, David Clifford, transports us back to 1990 when at just fifteen years old he had his first seizure. Every story has a first, a first that is the beginning of everything. Supporting Epilepsy Research We have a new initiative here at Brain Ablaze. We’re trying […] The post 027: Feels Like the First Time appeared first on Br…
 
Today’s topic is ALL about bargaining. The word bargaining is confusing for a lot of people, and whenever we talk about the stages of grief, we don't even know what it really is and want to move on to the “better” stages, because who needs bargaining? But it's one that will actually keep us stuck the longest. I don't think we even realize we are do…
 
This episode is a heavy topic, but I am really excited about it. It is about anger and grieving what your old ideas or thoughts were for your child. It is a previously recorded episode and it's one of the first one I've ever done. I wanted to play it because the discussion of the stages of grief still rings true for any mom or any parent who is pro…
 
In this episode, we stare down the monster that has plagued our Epilepsy community for decades, SUDEP, or SUdden Death from EPilepsy. We present three tragic stories of SUDEP. In the United States, there are 55 (and 1 in the UK) thousand Epilepsy-related deaths in the United States each year. […] The post 026: Mortality appeared first on Brain Abla…
 
This episode is about denial and it is one of THE most important episodes of this entire podcast. What I know now is that when you are raising a child with special needs, there is a part of you that has to die. And I know that sounds a little crazy, but raising a child with special needs requires you to change. It requires you to become a better ve…
 
Currently, I am going through a season of depression in my life. This is not a comfortable topic for me to talk about, but I realize how important and crucial this discussion is right now. I also know that one of the BEST ways to overcome it is to talk about it. So, that's what I am doing in this episode. This is just coming from my own experience …
 
Every one of us must adapt to our Epilepsy and the seizures it causes. It is a brutal process, but with the right attitude, perseverance, and luck we can solve our own puzzle and attain our goals. We guarantee it! We will always have people in our corners and people […] The post 025: Beating the Blame appeared first on Brain Ablaze.…
 
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