Interviews with scholars of disability about their new books
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Raquel Velho on Disability, Infrastructure, and London's Public Transport System
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Peoples & Things host, Lee Vinsel, talks to Raquel Velho, Associate Professor of Science and Technology Studies at Rensselaer Polytechnic Institute, about her recent book, Hacking the Underground: Disability, Infrastructure, and London's Public Transport System (U Washington Press, 2023). Hacking the Underground provides a fascinating ethnographic …
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Jess Whatcott, "Menace to the Future: A Disability and Queer History of Carceral Eugenics" (Duke UP, 2024)
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In Menace to the Future: A Disability and Queer History of Carceral Eugenics (Duke UP, 2024), Jess Whatcott traces the link between US disability institutions and early twentieth-century eugenicist ideology, demonstrating how the legacy of those ideas continues to shape incarceration and detention today. Whatcott focuses on California, examining re…
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Elizabeth A. Wahler and Sarah C. Johnson, "Creating a Person-Centered Library: Best Practices for Supporting High-Needs Patrons (Bloomsbury, 2023)
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Creating a Person-Centered Library: Best Practices for Supporting High-Needs Patrons (Bloomsbury, 2023) provides a comprehensive overview of various services, programs, and collaborations to help libraries serve high-needs patrons as well as strategies for supporting staff working with these individuals. While public libraries are struggling to add…
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Heather Murray, "Asylum Ways of Seeing: Psychiatric Patients, American Thought and Culture" (U Pennsylvania Press, 2022)
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Asylum Ways of Seeing: Psychiatric Patients, American Thought and Culture (University of Pennsylvania Press, 2021) by Dr. Heather Murray is a cultural and intellectual history of people with mental illnesses in the twentieth-century United States. While acknowledging the fraught, and often violent, histories of American psychiatric hospitals, Heath…
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Yoga, Disability, and Animism, with Theo Wildcroft
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In this episode, Dr Pierce Salguero sits down with Dr Theodora Wildcroft, a researcher, anthropologist, and long-time teacher of what she calls “post-lineage yoga.” We discuss Theo's ethnographic research on yoga in the UK, focusing on its connections with animism, paganism, and other somatic practices. We also dive into Theo’s personal approach to…
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Ella Houston's book Advertising Disability (Routledge, 2024) invites Cultural Disability Studies to consider how advertising, as one of the most ubiquitous forms of popular culture, shapes attitudes towards disability. The research presented in the book provides a much-needed examination of the ways in which disability and mental health issues are …
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Emily Pacheco speaks with Professor Jemina Napier (Heriot-Watt University, Scotland) about her book, Sign Language Brokering in Deaf-Hearing Families (Palgrave Macmillan, 2021). The conversation focuses on child and sign language brokering, the innovative methodology Dr. Napier employed in her study, and the impacts of researching sign language bro…
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Fella Benabed, "Applied Global Health Humanities: Readings in the Global Anglophone Novel" (de Gruyter, 2024)
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Fella Benabed's book Applied Global Health Humanities: Readings in the Global Anglophone Novel (de Gruyter, 2024) highlights the importance of global Anglophone literature in global health humanities, shaping perceptions of health issues in the Global South and among minorities in the Global North. Using twelve novels, it explores the historical, p…
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Patrick McKelvey, "Disability Works: Performance After Rehabilitation" (NYU Press, 2024)
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In 1967, the US government funded the National Theatre of the Deaf, a groundbreaking rehabilitation initiative employing deaf actors. This project aligned with the postwar belief that transforming bodies, minds, aesthetics, and institutions could liberate disabled Americans from economic reliance on the state, and demonstrated the growing belief th…
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Sasha Warren, "Storming Bedlam: Madness, Mental Health, and Revolt" (Common Notions, 2024)
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Mental health care and its radical possibilities reimagined in the context of its global development under capitalism. The contemporary world is oversaturated with psychiatric programs, methods, and reforms promising to address any number of "crises" in mental health care. When these fail, alternatives to the alternatives simply pile up and seem to…
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Catherine Tan, "Spaces on the Spectrum: How Autism Movements Resist Experts and Create Knowledge" (Columbia UP, 2024)
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Movements that take issue with conventional understandings of autism spectrum disorder, a developmental disability, have become increasingly visible. Drawing on more than three years of ethnographic fieldwork and interviews with participants, Dr. Catherine Tan investigates two autism-focused movements, shedding new light on how members contest expe…
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John T. Maier's The Disabled Will: A Theory of Addiction (Routledge Press, 2024) defends a comprehensive new vision of what addiction is and how people with addictions should be treated. The author argues that, in addition to physical and intellectual disabilities, there are volitional disabilities - disabilities of the will - and that addiction is…
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Slava Greenberg, "Animated Film and Disability: Cripping Spectatorship" (Indiana UP, 2023)
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While many live-action films portray disability as a spectacle, "crip animation" (a genre of animated films that celebrates disabled people's lived experiences) uses a variety of techniques like clay animation, puppets, pixilation, and computer-generated animation to represent the inner worlds of people with disabilities. Crip animation has the pot…
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Dasha Kiper, "Travelers to Unimaginable Lands: Stories of Dementia, the Caregiver, and the Human Brain" (Random House, 2023)
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If you’ve ever worked with dementia patients before, you know how unique and bizarre the experience can be, and how little the stereotypes actually hold up to the experience. Even knowing about the diagnosis often does little to help us in caring for people, and many caregivers find themselves getting sucked into behavioral loops of their own. This…
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Season Two erupts in our ears with a film-noir soundscape—an eerie voice utters strange and disjointed phrases and echoing footsteps lead to sirens and gunshots. What on Earth are we listening to? We unravel the mystery with NYU media professor Mara Mills who studies the historical relationship between disability and media technologies. In Episode …
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Jessica Leigh Kirkness, "The House with All the Lights on: Three Generations, One Roof, a Language of Light" (Allen & Unwin, 2023)
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Emily Pacheco speaks with writer and researcher Jessica Kirkness about her memoir, The House with All the Lights on: Three Generations, One Roof, a Language of Light (Allen & Unwin, 2023). Jessica has published in Meanjin and The Conversation, as well as other outlets. Her PhD focused on the ‘hearing line’: the invisible boundary between Deaf and h…
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Faye Ginsburg and Rayna Rapp, "Disability Worlds" (Duke UP, 2024)
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In Disability Worlds (Duke UP, 2024), Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, a…
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What does an inclusive society look like? And what are the challenges and opportunities when the society in question, Timor-Leste, is one of the most resource-constrained in Southeast Asia? My guest today is interested in these questions of inclusion and participation, and argues that people with a disability are a key component of a truly inclusiv…
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Premilla Nadasen, "Care: The Highest Stage of Capitalism" (Haymarket Books, 2023)
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During the COVID pandemic, billions of dollars in relief aid was sent out to help us ride out the storm, although many people who struggled through it might scratch their heads at such a number, having seen little of it make any concrete impact in their own lives. This discrepancy is indicative of the underlying problem with the contemporary care e…
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Sunaura Taylor, "Disabled Ecologies: Lessons from a Wounded Desert" (U California Press, 2024)
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A powerful analysis and call to action that reveals disability as one of the defining features of environmental devastation and resistance. Deep below the ground in Tucson, Arizona, lies an aquifer forever altered by the detritus of a postwar Superfund site. Disabled Ecologies: Lessons from a Wounded Desert (U California Press, 2024) tells the stor…
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Sony Coráñez Bolton, "Crip Colony: Mestizaje, US Imperialism, and the Queer Politics of Disability in the Philippines" (Duke UP, 2023)
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In Crip Colony: Mestizaje, US Imperialism, and the Queer Politics of Disability in the Philippines (Duke UP, 2023), Sony Coráñez Bolton examines the racial politics of disability, mestizaje, and sexuality in the Philippines. Drawing on literature, poetry, colonial records, political essays, travel narratives, and visual culture, Coráñez Bolton trac…
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Coreen McGuire, "Measuring Difference, Numbering Normal: Setting the Standards for Disability in the Interwar Period" (Manchester UP, 2020)
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Measurements, and their manipulation, have been underestimated as crucial historical forces motivating and guiding the way we think about disability. Using measurement technology as a lens, and examining in particular the measurement of hearing and breathing, Coreen McGuire's book Measuring Difference, Numbering Normal: Setting the Standards for Di…
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Margaret Price, "Crip Spacetime: Access, Failure, and Accountability in Academic Life" (Duke UP, 2024)
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In Crip Spacetime: Access, Failure, and Accountability in Academic Life (Duke University Press, 2024), Margaret Price intervenes in the competitive, productivity-focused realm of academia by sharing the everyday experiences of disabled academics. Drawing on more than three hundred interviews and survey responses, Price demonstrates that individual …
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Mimi Khúc, "dear elia: Letters from the Asian American Abyss" (Duke UP, 2023)
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Mimi Khúc is a PhD, writer, scholar, and teacher of things unwell. She is currently the Co-Editor of The Asian American Literary Review and an adjunct lecturer in Disability Studies at Georgetown University. Her work includes Open in Emergency, a hybrid book-arts project decolonizing Asian American mental health; the Asian American Tarot, a reimagi…
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Marchella Ward, "Blindness and Spectatorship in Ancient and Modern Theatres: Towards New Ways of Looking and Looking Back" (Cambridge UP, 2023)
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The use of disability as a metaphor is ubiquitous in popular culture – nowhere more so than in the myths, stereotypes and tropes around blindness. To be 'blind' has never referred solely to the inability to see. Instead blindness has been used as shorthand for, among other things, a lack of understanding, immorality, closeness to death, special ins…
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Aaron J. Jackson, "Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities" (U California Press, 2021)
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Vulnerable narratives of fatherhood are few and far between; rarer still is an ethnography that delves into the practical and emotional realities of intensive caregiving. Grounded in the intimate everyday lives of men caring for children with major physical and intellectual disabilities, Worlds of Care: The Emotional Lives of Fathers Caring for Chi…
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Matthew Rubery, "Reader's Block: A History of Reading Differences" (Stanford UP, 2022)
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Matthew Rubery's book Reader’s Block: A History of Reading Differences (Stanford UP, 2022) explores the influence neurodivergence has on the ways individuals read. This alternative history of reading is one of the few books which tells the stories of "atypical" readers and the impact had on their lives by neurological conditions affecting their abi…
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Kate Annett-Hitchcock, "The Intersection of Fashion and Disability: A Historical Analysis" (Bloomsbury Visual Arts, 2023)
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The history of the fashion industry has been well written as it relates to people who conform to certain physical norms and cultural stereotypes, whereas the inequality in access to the world of fashion has been largely ignored. Despite this lack of coverage, much work has taken place over the centuries to enable people who live with disability to …
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Skylar Bayer and Gabriela Serrato Marks, "Uncharted: How Scientists Navigate Their Own Health, Research, and Experiences of Bias" (Columbia UP, 2023)
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People with disabilities are underrepresented in STEM fields, and all too often, they face isolation and ableism in academia. Uncharted: How Scientists Navigate Their Own Health, Research, and Experiences of Bias (Columbia UP, 2023) is a collection of powerful first-person stories by current and former scientists with disabilities or chronic condit…
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Isaac Soon, "A Disabled Apostle: Impairment and Disability in the Letters of Paul" (Oxford UP, 2023)
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For generations, Pauline scholars have responded in different ways to the Apostle’s “thorn in the flesh” (2 Cor. 12:7), our clearest indication that Paul was disabled—some with clinical diagnoses along biomedical lines, more with reticence and agnosticism as to the specifics of Paul’s disability, and others with doubts that Paul could have accompli…
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Julia Watts Belser, "Loving Our Own Bones: Disability Wisdom and the Spiritual Subversiveness of Knowing Ourselves Whole" (Beacon Press, 2023)
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A transformative spiritual companion and deep dive into disability politics that reimagines disability in the Bible and contemporary culture. "What's wrong with you?" Scholar, activist, and rabbi Julia Watts Belser is all too familiar with this question. What's wrong isn't her wheelchair, though--it's exclusion, objectification, pity, and disdain. …
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Leontina Hormel, "Trailer Park America: Reimagining Working-Class Communities" (Rutgers UP, 2023)
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In rural northern Idaho in the winter of 2013-2014, Syringa Mobile Home Park’s water system was contaminated by sewage, resulting in residents’ water being shut off for 93 days. By summer 2018 Syringa had closed, forcing residents to relocate or face homelessness. In Trailer Park America: Reimagining Working-Class Communities (Rutgers UP, 2023), Dr…
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In the fourth of five special podcasts about from the recent SSEAC field schools to Southeast Asia, we will be hearing from students and staff from the field school to Timor Leste, which looked at disability and work. This field school was offered to students from health sciences, psychology, and social work. Leader Natali Pearson is joined by co-l…
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Meghan Henning, "Hell Hath No Fury: Gender, Disability, and the Invention of Damned Bodies in Early Christian Literature" (Yale UP, 2021)
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In her book Hell Hath No Fury: Gender, Disability, and the Invention of Damned Bodies in Early Christian Literature (Yale University Press, 2021), Meghan Henning illuminates how the bodies that populate hell in early Christian literature are punished after death in spaces that mirror real carceral spaces, effectually criminalizing those bodies on E…
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The debate about whether mental health law should be abolished or reformed is one that is highly charged and to which there are no easy solutions. In Mental Health Law: Abolish Or Reform? (Oxford UP, 2021), Dr Kay Wilson does not shy away from these controversial debates. Examining the work that dignity can do, she makes the case for an holistic in…
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An autistic mom of three autistic kids, Dr. Jen Malia is the author of the children’s chapter book series The Infinity Rainbow Club and the picture book Too Sticky! Sensory Issues with Autism. Jen is Professor of English and Creative Writing Coordinator at Norfolk State University. She has a Ph.D. in English from the University of Southern Californ…
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Margaret K. Nelson, "Keeping Family Secrets: Shame and Silence in Memoirs from the 1950s" (NYU Press, 2022)
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All families have secrets but the facts requiring secrecy change with time. Nowadays A lesbian partnership, a “bastard” son, an aunt who is a prostitute, or a criminal grandfather might be of little or no consequence but could have unravelled a family at an earlier moment in history. In Keeping Family Secrets: Shame and Silence in Memoirs from the …
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Alexandre Baril, "Undoing Suicidism: A Trans, Queer, Crip Approach to Rethinking (Assisted) Suicide" (Temple UP, 2023)
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Note: This episode contains a discussion of suicide. A list of resources is available below. In Undoing Suicidism: A Trans, Queer, Crip Approach to Rethinking (Assisted) Suicide (Temple UP, 2023), Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed an…
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Eric B. Elbogen and Nico Verykoukis, "Violence and Mental Illness: Rethinking Risk Factors and Enhancing Public Safety" (NYU Press, 2023)
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Mass shootings have become a defining issue of our time. Whenever the latest act of newsworthy violence occurs, mental illness is inevitably cited as a preeminent cause by members of the news media and political sphere alike. Eric B. Elbogen and Nico Verykoukis's book Violence and Mental Illness: Rethinking Risk Factors and Enhancing Public Safety …
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Mara Mills and Rebecca Sanchez, eds., "Crip Authorship: Disability as Method" (NYU Press, 2023)
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A full transcript of the interview is available for accessibility. Mara Mills and Rebecca Sanchez's Crip Authorship: Disability as Method (NYU Press, 2023)is an expansive volume presenting the multidisciplinary methods brought into being by disability studies and activism. Mara Mills and Rebecca Sanchez have convened leading scholars, artists, and …
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Janice Rieger, "Design, Disability and Embodiment: Spatial Justice and Perspectives of Power" (Routledge, 2023)
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Janice Rieger's book Design, Disability and Embodiment: Spatial Justice and Perspectives of Power (Routledge, 2023) explores the spatial and social injustices within our streets, malls, schools, and public institutions. Taken-for-granted acts like going for a walk, seeing an exhibition with a friend, and going to school are, for people with disabil…
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Jessica Lowell Mason and Nicole Crevar, "Madwomen in Social Justice Movements, Literatures, and Art" (Vernon Press, 2023)
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Jessica Lowell Mason and Nicole Crevar's Madwomen in Social Justice Movements, Literatures, and Art (Vernon Press, 2023) boldly reasserts the importance of the Madwoman more than four decades after the publication of Sandra Gilbert and Susan Gubar's seminal work in feminist literary criticism, 'The Madwoman in the Attic'. Since Gilbert and Gubar's …
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With no known cause or cure despite a century of research, Alzheimer's disease is a true medical mystery. In Mediating Alzheimer's: Cognition and Personhood (U Minnesota Press, 2022), Scott Selberg examines the nature of this enduring national health crisis by looking at the disease's relationship to media and representation. He shows how collectiv…
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Molly Ladd-Taylor, "Fixing the Poor: Eugenic Sterilization and Child Welfare in the Twentieth Century" (Johns Hopkins UP, 2020)
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Between 1907 and 1937, thirty-two states legalized the sterilization of more than 63,000 Americans. In Fixing the Poor: Eugenic Sterilization and Child Welfare in the Twentieth Century (Johns Hopkins UP, 2020), Molly Ladd-Taylor tells the story of these state-run eugenic sterilization programs. She focuses on one such program in Minnesota, where su…
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Valentina Capurri, "Not Good Enough for Canada: Canadian Public Discourse Around Issues of Inadmissibility for Potential Immigrants with Diseases And/Or Disabilities" (U Toronto Press, 2020)
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Valentina Capurri's book Not Good Enough for Canada: Canadian Public Discourse Around Issues of Inadmissibility for Potential Immigrants with Diseases And/Or Disabilities (U Toronto Press, 2020) investigates the development of Canadian immigration policy with respect to persons with a disease or disability throughout the twentieth century. With an …
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Bookshop.org is an online book retailer that donates more than 80% of its profits to independent bookstores. Launched in 2020, Bookshop.org has already raised more than $27,000,000. In this interview, Andy Hunter, founder and CEO discusses his journey to creating one of the most revolutionary new organizations in the book world. Bookshop has found …
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Aleksandra Nicole Pfau, "Medieval Communities and the Mad: Narratives of Crime and Mental Illness in Late Medieval France" (Amsterdam UP, 2020)
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The concept of madness as a challenge to communities lies at the core of legal sources. Aleksandra Pfau, Medieval Communities and the Mad: Narratives of Crime and Mental Illness in Late Medieval France (Amsterdam University Press, 2020) considers how communal networks, ranging from the locale to the realm, responded to people who were considered ma…
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Teresa Michals, "Lame Captains and Left-Handed Admirals: Amputee Officers in Nelson's Navy" (U Virginia Press, 2021)
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The well-known Admiral Horatio Nelson fought all of his most historically significant battles after he lost his right arm and the sight in one eye. With this notable exception, however, disabled members of the military on active duty remain largely invisible. Teresa Michals' book Lame Captains and Left-Handed Admirals: Amputee Officers in Nelson's …
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Johanna Dobrich, "Working with Survivor Siblings in Psychoanalysis: Ability and Disability in Clinical Process" (Routledge, 2021)
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Johanna Dobrich, author of Working with Survivor Siblings in Psychoanalysis: Ability and Disability in Clinical Process (Routledge, 2021), is the recipient of the 2023 Sandor Ferenczi Award. The award is given for the best published work in the realm of psychoanalysis related to trauma and dissociation in adults and/or children. Survivor Siblings i…
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Gerald O'Brien, "Eugenics, Genetics, and Disability in Historical and Contemporary Perspective: Implications for the Social Work Profession" (Oxford UP, 2023)
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Gerald O'Brien's book Eugenics, Genetics, and Disability in Historical and Contemporary Perspective: Implications for the Social Work Profession (Oxford UP, 2023) focuses on the conceptual relationship between the American eugenic movement of the early 1900s and contemporary genetic research, policy and practices, and their relevance for social wor…
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