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Living Rare, Living Stronger: NORD Patient and Family Forum
Manage episode 294155902 series 2655724
We sit down with Rebecca Aune and Jack Timperly to talk about the upcoming NORD Patient and Family Forum on June 26 and 27. We discuss what's planned for the event, the annual Rare Impact Awards and why it's important to have rare patients involved in advocacy and educational programs.
To register for the Living Rare, Living Stronger: NORD Patient and Family Forum, click here.
To learn more about NORD, click here.
64 епізодів
Manage episode 294155902 series 2655724
We sit down with Rebecca Aune and Jack Timperly to talk about the upcoming NORD Patient and Family Forum on June 26 and 27. We discuss what's planned for the event, the annual Rare Impact Awards and why it's important to have rare patients involved in advocacy and educational programs.
To register for the Living Rare, Living Stronger: NORD Patient and Family Forum, click here.
To learn more about NORD, click here.
64 епізодів
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