Dr. Johanna Zea-Hernandez

Living With Cystic Fibrosis

The Bonnell Foundation continues to raise awareness about cystic fibrosis and that anyone can be born with CF. Dr. Johanna Zea-Hernandez, pediatrician Pulmonologist in Grand Rapids. She Universidad Nacional de Colombia School of Medicine in Bogotá, D.C., Colombia. She completed her pediatric residency at Mount Sinai School of Medicine – Elmhurst Hospital in Elmhurst, New York, and her pediatric pulmonary fellowship at The Children's Hospital at Montefiore in Bronx, New York. Dr. Zea-Hernandez's clinical interests include asthma, cystic fibrosis and chronic lung disease.

We talk about the many challenges for the Hispanic population to get properly diagnosed. Often the Hispanic community is not diagnosed by newborn screening (only the most popular 60 panels are listed, and there are 2,000 CF mutations). It is challenging to diagnose the Hispanic CF community because they have mutations that are less common and they are not included in the panel or they also can present with different manifestations. The barriers facing the Hispanic community can be socio economic, language barriers and other factors you'll hear about in this podcast.

Please check out the Bonnell Foundations Hispanic page. Go to our website and click on Living with CF, you'll see the drop down and can click on the Latin X familia page.

For more information on The Bonnell Foundation find us at: https://thebonnellfoundation.org/

Our new CF Familia page: https://thebonnellfoundation.org/familia/en-home/

Thanks to our sponsors:

Vertex Pharma - the science of possibility. https://www.vrtx.com

Viatris: https://www.viatris.com/en

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts: https://jagindetroit.com/

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Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

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Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en