Ask A Death Doula Podcast: How to Choose the Right Health Care Proxy for You

Ask A Death Doula

Big Ideas:

What is a Health Care Proxy? [00:20] – There is a document called an Advance Directive. It is split into two parts – a Living Will and a Health Care Proxy. The Living Will states what you want or what you don’t want in terms of care if you were to become terminally ill. The Health Care Proxy is a person appointed by you to speak your wishes listed in the Living Will for you in the event that you become incapacitated and cannot speak for yourself. Depending on what state you live in, a Health Care Proxy may also be known as a Health Care Surrogate, or a Health Care Power of Attorney. The role of this person remains the same regardless of what title is used where you live. Doulagivers Pearl: an Advance Directive is known as a legal document, but it is NOT 100% legally binding. People sometimes think that if they have completed this step that they are completely covered – but that is unfortunately not necessarily true. If a doctor does not agree with the instructions set forth in your Advance Directive, they do not have to legally follow it and the law is on their side. The other issue is that people who have filled out an Advance Directive often do not know where it is when they need it – it does not do us any good if we don’t have it ready. There are ways around this, and we will be discussing them. It is written in many places that the Health Care Proxy is the person that will make medical decisions for you if you cannot make them for yourself – this is incorrect. The Health Care Proxy is the person you have chosen to speak the decisions you have already made in your Living Will if you cannot communicate your wishes yourself for any reason. There is a huge difference.

How to Choose a Health Care Proxy [4:04] – If the person you would like to be your Health Care Proxy is not comfortable with what you have chosen, they should not be your Health Care Proxy. Why? It’s not fair to them to be put under that kind of stress. Secondly, if they’re not comfortable with your choices – it’s already very difficult to discuss things with doctors who may have different things they want to try, or think are better choices. This is usually a fast-paced crisis time when these conversations are taking place and if you do not have someone who is steadfast and grounded in their obligation to uphold your wishes – there is a good chance that they won’t. Your Health Care Proxy does not need to be a relative. There is a lot of room to choose one that is right for you. They need to be comfortable with what you’re choosing – so tell them why you’re choosing the things you are. Explain it to them. As difficult as it may be to hear, this is the time to give them the rationale behind your wishes – this will make it much more likely that your wishes will be supported later on. The person that you are trusting to speak those decisions for you needs to have a clear understanding of why you want them. You want your Health Care Proxy to be in geographical proximity to where you live, and you also always want to have two so that there is a backup available in case your primary Health Care Proxy is unavailable.

Health Care Proxy Mixers [10:37] – This is a dream/vision of mine in which a group of people who are interested in being Health Care Proxies for one another get together to fill this need. I think this would be a great idea because we currently have an Eldercare Crisis and there is a huge number of the elderly who do not have family. I hear from them all of the time and they are very concerned about who is going to be their Health Care Proxy. We want people to have peace of mind and to know that we’re in this together. For that reason, I think this idea will be useful so that elderly (or anyone) can have the opportunity to get to know each other, share ideas and philosophies, talk about what they would want or not want at the end of life and provide a space for people to explore this subject and then decide to fill that Health Care Proxy role for each other.

Memorable Quotes:

“It is written in many places that a Health Care Proxy is the person you choose to make medical decisions for you if you’re unable to speak for yourself. That is untrue. They’re not making the decisions - you are. There’s a big difference there.”

– Suzanne B. O’Brien RN

“We have an Eldercare Crisis and many elderly people do not have children or family. I hear them say all the time, ‘Suzanne, who is going to care for me? Who is going to speak for me? Who is going to be there for me at my end of life because I don’t have any family?’ We’ve got to find ways to support people.”

– Suzanne B. O’Brien RN

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xoxoxo Suzanne