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Retina UK

Retina UK

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Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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This webinar was broadcast live on Thursday 21 March 2024. It is available in video format on our YouTube channel: https://youtu.be/oF5DP6XUsXk Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.Our Events and Community Fundraising Man…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2024 (Issue 182). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠RetinaUK.org.uk/resources⁠⁠. The short piano music at the beginning of thisrecording is a tribute to Norman Pampel FCA for his much acclaimed role as honorary treasurer of the Brit…
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Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery. People seem to come across conflicting advice from medical professionals, and there is understandably a lot of concern ar…
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This webinar was broadcast live on Thursday 25 January 2024. It is available in video format on our YouTube channel: https://youtu.be/3kTVF8SoA0w. With more treatments coming through the development pipeline, we are all hopeful that more of those living with inherited sight loss will be offered the opportunity to take part in clinical trials in the…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: ⁠RetinaUK.org.uk/get-involved/mailing-list/⁠. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effective…
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In this last episode of Blindingly Chatty, Laura Tyler is interviewed by Paula McGrath about her internship at Retina UK, her journeybefore it, and all that she’s gained from her time in the organisation. Laura worked as a Communications Intern at Retina UK from February - November 2023.
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In this month’s edition of Blindingly Chatty, Laura Tyler and Mark Pampel follow on from the subject of musical instruments and discuss composition, improvisation and performance. Mark tells us how he got into music, along with giving some tips for those who are thinking of taking music to that next level.…
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This webinar was broadcast live on Thursday 7 December 2023. It is available in video format on our YouTube channel: https://youtu.be/x7ZyVxmla7I Nikolas is a bioinformatician, who uses computer power to tackle medical research challenges. He will be talking about his project to develop AI that will identify the genetic cause of an inherited retina…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2023 (Issue 181). You can download a copy in PDF and Word format on the Retina UK website: ⁠RetinaUK.org.uk/resources⁠. Contents in this edition are as follows: Track 2: Reflecting back and looking forward (Tina Garvey) Track 3: Harnessing the power of AI Track 4: Searchin…
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A video version of this Webinar is available on our YouTube channel: https://youtu.be/0s1C3kXnXWc Join us for a brief overview of the Government’s Access to Work scheme, learn how it could support you at work, and hear the experiences of a number of people with inherited sight loss who receive an Access to Work grant.We will be joined by Josh Freeh…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan eff…
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We were joined for this popular ‘Ask the expert’ session by Samantha de Silva, a consultant ophthalmic surgeon at Oxford Universities Hospital Trust. She answered a wide variety of questions relating to inherited retinal dystrophies. If you would prefer to watch a video of the Webinar, it is available on our YouTube Channel: https://youtu.be/f_1UEV…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit ⁠RetinaUK.org.uk/get-involved/donate/⁠ to sign up, or, if you prefer, call us on 01280 821334.…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2023 (Issue 180). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources. Contents in this edition are as follows: Track 2: The best days of the year (Tina Garvey) Track 3: Articles for the Blind Track 4: Your newsletter, your ch…
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In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).
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Welcome to the 46th Retina UK Annual Conference where we come together for knowledge sharing, support, and empowerment within the inherited sight loss community. Whether you are attending online or in person this year, thank you for joining us. We have a packed programme for you today. This conference aims to foster a collaborative environment, bri…
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Welcome to the fourth Retina UK Professional Conference where we come together to support you in your work with the inherited sight loss community. Working in partnership we aim to equip you with the knowledge you need to make the biggest difference for your service users. We are pleased to offer CPD accreditation for today's Conference. It is avai…
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Have you ever really thought about how you use your sensations after sight loss? Does your sense of humor relate to your ability to tell a joke or hear a joke? Find the answers to these questions and more in our ‘Blindingly Chatty’ podcast from Laura and Mark.
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This event is free to attend and will be CPD-accredited. Attend in-person in London and network with colleagues, or online. Highlights include: Experience of diagnosis/points of impact for those living with inherited sight loss: Dr Jasleen Jolly, Anglia Ruskin University Sight loss pathway: A collaborative approach: Robert Cooper, Strategic Engagem…
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Book now to attend the Retina UK annual conference in London, or online, on Saturday, 24 June. The event is free to attend and highlights will include: Retina UK vision of treatments for all - Gene therapy – Augmentation, editing, and silencing: Prof Tara Moore, Ulster University. - The potential of stem cell treatments: Prof Lyle Armstrong, Newcas…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit RetinaUK.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821334.…
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This is a recording of a video held on Thursday 18 May. The full video recording can be found on our YouTube channel: https://youtu.be/3m1wWmQ8bIEhttps://youtu.be/3m1wWmQ8bIE We are excited to be joined by Hair Stylist Anna Cofone to explore all things hair and scalp care.Anna is a session hairstylist with 20 years experience working in the fashion…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
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This webinar was first shown on Thursday 13 April 2023. A recording including the video content is available on our YouTube channel: https://youtu.be/9_DeX0Q3wYE. Explore the value of volunteering with the Retina UK team, listen as they share their thoughts on volunteering and the benefits it’s brought them. From raising their self esteem and confi…
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The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer: https://www.bbc.co.uk/iplayer/episode/p0f8vnvm/blind-faith⁠This documentary highlights a really significant and concerning issue that impacts families …
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This webinar was first shown on Thursday 23 March 2023. A recording including the video content is available on our YouTube channel: https://youtu.be/0rjqHsz7EU4. Join us and the Low Vision Team from Focus Birmingham talk about how you can access your local low vision service, the benefits of a low vision assessment and see some of the equipment th…
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Kate Arkell, Research Development Manager at Retina UK hosts this edition alongside Dr Madina Kara, Director of Research and Innovation at Fight for Sight. They are joined by Prof Graeme Black and Prof Alison Hardcastle. Graeme is Professor of Genetics and Ophthalmology at Manchester Uni, and a consultant ophthalmologist at Manchester Royal Eye Hos…
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This webinar was originally broadcast on 23 February 2023. It is also available in video format on our YouTube channel: https://youtu.be/lcMpSSdxWuU. Following the success of our last round of ‘Ask the Expert’ Webinars, we will be holding three more throughout 2023. Our first Expert is Simon Keightley, a consultant ophthalmic surgeon and Director o…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
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Webinar: Supporting Retina UK And What it Can Do For You Originally broadcast on 26th January 2023. “It’s given me the boost in life I wanted and made me think I’m able to go on and achieve so much more.” Retina UK supporters Chris and Caryn, as well as our very own Information and Support Coordinator Mark Baxter share their thoughts on fundraising…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
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This content was recorded during a Retina UK webinar on Thursday 8 December 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/U8T9cAJIsqU. This webinar aims to equip you with knowledge of social security eligibility, highlighting the key benefits for people living with sight loss, top tips when co…
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This content was recorded during a Retina UK Information Event on Tuesday 6 December 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/gER4y7e9T14. We welcome you to join us for our virtual information event for the Oxfordshire area. This is a great opportunity to: hear from our speakers about the…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
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Last year, with your help, we raised an incredible £53,752, which made great strides in helping our medical research recover from the pandemic. But we can’t stop now. So, we have put a renewed focus on our research, and have developed a new strategy that will look at treatments for all. The Big Give Christmas Challenge couldn’t have come at a bette…
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This content was recorded during a Retina UK webinar on Wednesday 9 November 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/K5Dr9O7FFb4. With Christmas parties upon us, come and join Bhavini as she shares her top tips for selecting the right make up, The best way to apply and blend, how to shop…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…
  continue reading
 
This content was recorded during a Retina UK webinar on Thursday 29 September 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/YOyf3iLHK9Y. Retina UK recently launched an innovative course, Discover Wellbeing, to help those living with inherited sight loss develop an awareness of emotional wellbe…
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